Tag Archives: Over the Wall

Virtual Events – 7Y2D COVID-19 Diaries Week 6

Somehow we find ourselves at the end of yet another week in lockdown and, as I continue to listen to the daily government briefings, it’s hard to imagine when lockdown will start to ease and what that might even begin to look like. Nor do we really know when things can begin to return to even some semblance of what we now consider as life before coronavirus. Here at 7Y2D HQ we continue to try to follow a routine each day with G and M, who start with a morning of school, stop for lunch and then spend the afternoon outside or doing other activities such as playing board games or practising dance routines. Being stuck at home for 6 weeks has started to take its toll a little on everyone, so this last week has seen us joining in some virtual events that reflect activities that we would do normally do in our everyday lives.

First, was last weekend’s 2.6 challenge – a charity initiative to replace the annual London Marathon. Now, I’m not going to pretend we have, or ever have had, any aspirations to take part in the marathon itself, but we are avid fundraisers and this challenge was a great opportunity to get both children flexing their brain cells to think up something new to do. Our charity of choice was, of course, the fantastic Over The Wall, focus of our fundraising for several years now following G and M’s experience at their camps. The 2020 camps have had to be cancelled due to coronavirus, but they are seeking to #savethemagic and launch “Camp in the Cloud” for all camp applicants instead.

From last year’s indoor skydiving to G’s dramatic hair cut a few years ago, we’ve tried our hand at a lot, so it took some serious consideration for both children to dream up a new challenge. G quite quickly settled on 262 sit-ups (well a marathon is 26.2 miles after all) and eventually M chose to attempt 262 seconds in plank. Neither managed their challenge in one sitting, but they did it and should feel rightly proud that, even during a pandemic, they have found an alternative way to support a charity that has supported, and continues to support, them.

Our second virtual event of the week was yet another annual one, this time the awards ceremony for the Free From Food Awards 2020. Usually held in London, instead the fabulous organisers of the awards took to a virtual ceremony, which started with an amazing Zoom “drinks and nibbles” ahead of the main event itself. With over 80 participants at one point, the Zoom breakout rooms proved a great opportunity to network a little and meet some new faces as well as spotting old familiar ones from afar. The awards ceremony is always a glamorous affair and so the whole family decided to dress up for the occasion. Dresses were donned, make-up applied and jewellery was carefully picked out to compliment the outfits. I even convinced myself to put on a pair of heels for the first time in weeks, though I will confess they didn’t last for the entirety of the event!

G and M put to good use some of those cooking skills they’ve been honing over the last 6 weeks and produced an excellent free-from buffet, fit to rival that usually enjoyed after the winners are announced. We didn’t have many of the gold winning items* at home, though I did enjoy the dairy- and soya-free chocolate-dipped strawberries that were beautifully crafted with a little help from Mike and took me back to my confectionery judging in January, what now seems like practically a life-time ago. All in all, has been a good week and the introduction of these new activities added some much-needed variety to what has quickly become everyday.

*you can read more about the big success stories of the #FFFA20 here and can even experience the ceremony itself by watching the presentation here

Easter on Lockdown – 7Y2D COVID-19 Diaries Week 3

It’s been a shorter week from a work and school perspective, although the lockdown continues and we’re following the government requests to #StayhomeSavelives. This week has been one of those weeks when I’m grateful for my inclination to prepare well in advance as there was no need to even contemplate venturing out of the house as dairy-free Easter treats had already been bought and squirrelled away far from the prying eyes and inquisitiveness of M in particular. Mum had also already bought some safe eggs for the children and they were left on our doorstep just as the lockdown was starting to similarly keep safe until Easter Sunday itself.

We’ve also allowed some leeway about the amount of school work being done on a daily basis. G has been brilliant at continuing her research and reading for next year’s A-level syllabus and I was impressed to receive a phone-call from her tutor, who was checking in on all students in the tutor group to see how they were coping in the current climate. M started the week off strong, but soon turned his focus to the most recent #familyfunfriday challenge from Over The Wall. He loved building a den like no other in our sitting room using a variety of household items including camera tripods, pegs and even the ironing board to create a den extraordinaire. In fairly typical M style, he then declared that he and G were to be quarantined within the confines of the den for 24 hours, allowed out only for bathroom breaks and the mandated outdoors exercise and even set the timer on his mobile phone to make sure they achieved it.

I’m looking forward to enjoying the long weekend, not so much because we have any plans or are heading off anywhere different, but simply for the opportunity to be away from my computer (and work!) for a few hours at least and spend some quality time with the rest of the family for more than a handful of minutes. I’ve even managed to uncover the plastic eggs I bought a few years ago when M had his NG-tube and am hoping to be able to set up an Easter egg hunt in our back garden for both children to enjoy.

I hope you all have a wonderful and peaceful Easter, however you spend it!

For anyone who hasn’t already seen this wonderful clip of New Zealand Prime Minister Jacinda Ardern confirming the status of the Easter Bunny (and Tooth Fairy), its definitely worth a look!

Chasing Rainbows

There’s no question about it, rainbows hold a special place in most people’s hearts. Whether you believe that they are a symbol of God’s promise to us to never again flood the earth to the Biblical proportions of Noah’s time, or simply a natural phenomenon that occurs when you have the perfect conditions of both sunshine and rain*; most people would agree that they are a wonderful representation of hope and promise to us all.

At what is one of the darkest moment of current times and an experience that few of us have ever even had to contemplate, yet alone live through, the rainbow has become a reminder that there are bright days to come again and that storms don’t last forever. Reportedly starting in Italy, and now spreading worldwide, in much the same manner as COVID-19 though at a much slower pace, households are creating rainbows and putting them on display in a show of solidarity.

In our village, the local FB group has been encouraging families to put their rainbows up and we have enjoyed spotting them when we doing our daily exercise routine. I will rapidly clarify that we are fortunate to live in a relatively small community and have rarely come across anyone else whilst we are out and about. And it’s not just our community that is inviting young people to get involved with sharing these uplifting images. Communities nation- and worldwide are seeing these images spring up and our favourite charity, Over The Wall, launched its first #MondayMayhem today with the challenge to create a rainbow and put it on show.

Never being ones to reject a challenge, and finding it a good alternative to the monotonies of an isolated life, G and M worked together to create their “alternative” rainbow – their teen years apparently wouldn’t allow them to be in anyway typical or predictable – which is now proudly in the spare bedroom window for all who travel the A-road past us to see. There were also some threats to paint one another’s faces rainbow-style when emotions ran a little high, but thankfully we’ve managed to avoid that, at least for a few days.

Have your children or you created a rainbow of your own to bring some inspiration and hope to others in your local area? Have you spotted any that have brightened your day? Please do share them.

*the “perfect” conditions include geometry, raindrops and being in just the right place with just the right refraction of the sunlight. There’s a much better explanation of it all here!

 

Snow Globe Magic

If I’m perfectly honest, G’s 16th birthday cake is an idea that has been bubbling for a few years, ever since I first saw it shared on Facebook, but it’s taken me this long to pluck up the courage to actually give it a whirl and be organised enough to start the decorations more than 24 hours in advance of her birthday. I was very nervous about whether I’d be able to get it to work, but the end result was much better than I hoped and G was absolutely delighted with it. That was especially important given this was the girl who just a couple of weeks ago said that she didn’t really want to celebrate her birthday and wasn’t bothered about having a cake!

To start with, I found a brilliant new recipe for a gluten-free, vegan sponge cake on The Loopy Whisk and, with a few tweaks to make it just as G finally decided she wanted – a vanilla and chocolate chip cake – and ended up with a wonderfully light and delicious birthday cake for her. I also whipped up a batch of cupcakes for my choir’s Christmas meet-up from the same batter and despite a few issues around getting the timing of that bake right, I was thrilled with those as well.

Next it was on to the most challenging step of all – to create a “snow globe” to encase the top of G’s cake to make it a truly magical masterpiece. The instructions on how to make the globe from high quality melted glycerine can be found here as well as my “step-by-step” photos you can see here. I attempted a larger globe than for individual cupcakes, which was successful, but much trickier to coat the balloon than the instructions suggest. Also, a word to the wise, don’t use balloons that have writing/images printed on them – the only balloons I had tucked away at home were Over The Wall ones and so G’s snow globe had an unexpected additional image, which delighted her, but wasn’t quite what I was aiming for!

I kept the design on top of the cake quite simple and attempted a new buttercream icing using goats’ butter as that’s something she can tolerate without a problem and that M can have a little of as a treat. I always find it difficult to make a dairy-free icing that is stiff enough to pipe successfully, but this batch was better than ones I’ve created before and I think it will need to be a case of continued trial and error until I find that perfect recipe. So, with a layer of desiccated coconut snow, a simply piped Christmas tree and the requisite “16” candles, G’s birthday cake was complete for another year. And this year I was only up to 1.30am finishing it off!

A Night of SeriousFun

It’s no secret that I absolutely love listening to our local radio station. It’s a great opportunity to hear about local people and stories as well as the national and international news. Sometimes I’m lucky enough to hear a friend or acquaintance being interviewed and I’ve even been on the radio 4 times speaking about M, G and the impact that his EGID diagnosis and restricted diet have had on our family. One of my favourite times to listen is in the morning, when the regular presenter hosts his phone-in on a wide variety of subjects from the sublime to the ridiculous and it was this morning’s topic that triggered my thoughts for today.

Today is World Children’s Day, a day to focus on children and more specifically, according to the UN, To recommit to putting children first. For every child, every right: the right to be a child, the right to play and the right to be safe.”

And this made me think.

It brought to mind an event that Mike and I attended in London last week, the annual gala dinner for the SeriousFun Network, the global family of camps for children with serious health challenges, their siblings and families. We were there to support Over The Wall, the charity that runs the incredible UK-based camps that both G and M have been fortunate to attend over the last few years. Those camps work hard to help those children who go to feel “normal”, often for the first time in their lives and to realise that they are not as isolated in their experiences as they so often can feel, whether as the child living with the chronic illness or as their sibling.

I’ve spoken so many times about the impact that OTW has had on both G and M since the first time they went and those effects are long-lasting. Friendships have grown with those they’ve met at camp and for G in particular, those same people have become her tribe. Time and distance has made no difference to those connections they’ve built and each camp sees them re-establishing their friendships from where they left off in years before.

The gala dinner was a great opportunity to celebrate the work that the SeriousFun Network camps do across the world. Much to Mike’s delight we were seated, purely by chance, with a group of Canadians connected to OTW through their corporate giving and they managed to spend half the evening talking all things ice hockey with great enthusiasm. It is thanks to individuals, groups and companies like these that OTW have managed to increase the number of campers they take each year and, having broken their target of 1,000 campers this year, have now got ambitions to reach 1,200 children in 2020. We were entertained by a variety of great acts including 2019 Britain’s Got Talent winners, Twist and Pulse, singers and musicians Damien Rice, Charlie Siem and Diane Birch and comedian Steve Coogan as well as a few of the SeriousFun campers who have performed at Stage Night at their respective camps.

It was a lovely evening, spent with people who all have the same goal to support and bring a touch of the usual to the lives of children who are anything but. We feel privileged that since 2016 our children have benefitted so much from the extraordinary efforts of the surprisingly small handful of staff members and the huge army of volunteers working for Over The Wall. In a reality where M’s health challenges have been an unwelcome, yet prevalent feature, it can never be underestimated just how much of a difference OTW has made to both G and M, and Mike and I are already planning to join the party again next year.

This truly is an organisation that has committed to putting children first and focuses on that right of each child to be a child, no matter what else life has thrown at them.

Hair today…

…and gone tomorrow!

It’s an old joke, I know, but it sums up perfectly the start of the new school year for G. For those of you who’ve been following me for a while, you may remember that 2 years ago G took the plunge and decided to cut her beautiful long hair for charity. She donated the hair itself to the Little Princess Trust, who use it to create real hair wigs for children who have lost their hair due to intensive medical treatments. G also took the opportunity to raise funds for Over The Wall and it turned into an impressive occasion, leaving her with a very grown-up hairstyle as well as raising £500, which was then match-funded to create a staggering £1,000 fundraising total.

Over the summer months, G has been talking once again about wanting to cut her hair – I think the hassle of combing numerous tangles and knots out of it had all become too much – and so at the end of her second day back at school, she headed to our local hair salon and once again braved the cut. Mike suggested to her that she consider donating to the Little Princess Trust once again and as soon as she realised that there was enough length to allow her to do it, there really was no stopping her.

This time round she’s gone a little shorter than before, but it’s still an absolutely stunning style for my fast growing-up firstborn. We are so proud that she didn’t think twice about making the donation and even more so when she said that she wants to continue to donate her lengthy locks whenever she can. To paraphrase G, she wants to “…donate my hair, just like Dad donates his blood” – a fantastic ambition and who are we to argue.

Summer Photo Round-up 2019

Summer 2019 was all about home-grown entertainment and experiences before heading into a year of GCSEs – both exams and options!

Heading North for the Bank Holiday

No sooner had we arrived back from London, than G and M disappeared off to South Wales with my Mum and my Aunt for the week leading up to the August bank holiday, leaving Mike and me at home to work, wash clothes and start to sort out what was needed for our bank holiday adventure in Manchester. We travelled to South Wales on Friday evening to pick the children up and spent the night there before heading off to Manchester the following morning. We decided to try and avoid as much holiday traffic as possible, so wended our way across mid- and North Wales to reach our final destination and that decision proved to be the best one we could have made as we saw very little traffic at all. We reached Manchester, and one false start later – who knew there’d be so many Premier Inn hotels in the Salford area? – had arrived and were ready to start our visit.

Sunday was dedicated to the IWM North (that’s the Imperial War Museum for the uninitiated) to support G’s GCSE History studies about the rise of Hitler in the inter-war years and the Cold War period, and proved to be an excellent exhibit to visit. Their audio-visual short films shown every hour were a great addition to everything that was on display and there was a nice mix of interactive elements for the children to do as well. The sections covering the time periods of most interest to us were, perhaps, not as in depth as we would have liked, but overall we enjoyed the time spent there. G and I also took some time to walk around their special exhibit about the Yemen crisis, although M had definitely had his fill of all things history about that point and abandoned the galleries for the cafe with Mike. It was fascinating to see G’s reaction to the photos and displays about this more recent crisis and she was keen to express her thoughts about the responses of politicians and their excuses for not doing what they knew was needed.

Originally we hadn’t planned to do anything for the rest of the day as we weren’t sure how long we would spend at the IWM, so over our lunch, we investigated and discussed where to head next. M was keen to do something “fun as a family” and so was delighted to learn that we could visit EscapeHunt Manchester and try our hand at one of their themed escape rooms. We were lucky to get a booking for their “The Last Vikings” challenge and had just enough time to walk our way from Mediacity across the city to the escape rooms. It’s the first time we’ve attempted an escape room as a family, but is definitely something we will try our hand at again. We had lots of fun, although we failed at the final hurdle and were in the midst of solving the last clue when our time ran out.

Our decision to go to Manchester were twofold, the first being the IWM North, but our second was perhaps the more exciting, especially for G and M. This was the day for their indoor skydive in aid of Over The Wall and despite a somewhat grumpy start from our youngest, we arrived at iFly Manchester with 2 very excited children. Unfortunately, I wasn’t able to participate due to a shoulder injury I sustained at the start of the year, but Mike was keen to try his hand too, so we had booked them a family session which allowed them to split 10 minutes “flight time” between them. I was impressed at what appears to be the natural skydiving skills of my husband and children and the smiles on their faces said it all. Mike and M are both keen to go back and do it again, but G is less convinced, though glad she gave it a try in the first place. All in all, it was a fantastic bank holiday weekend and we were back home for a rest before school went back the following week.

Time to stop and smell the roses

New job, end of term, fundraising plans, health challenges, summer holidays… sometimes it really is nice to be able to stop and smell the roses, especially when they’re as beautiful as this bunch of flowers currently gracing G’s windowsill. A thank you from her Stagecoach school for all her help last week at their summer school – a small acknowledgement of her efforts and one that has very much been appreciated and enjoyed by us all.

We’re all taking a little time this week to slow down and appreciate life. With a couple of days off planned for the end of the week, I’m winding down to just spending some much-longed-for family time together and am wondering if I can convince the children to give up their technology for at least some of that time too. M is spending the week planning 101 things he wants to do with G before we have our break, whilst G tries her best to ignore him and focus on some gentle revision instead. Mike and I will complete as much work as we can and anything left outstanding will quite simply have to wait until we head back to our desks on Monday morning.

I hope you too get the chance to stop, take a breather and appreciate life in its fullest this week.

20 years of #mischiefandmagic

A lot can happen in 20 years.

In the years since our wedding in December 1999, our family has doubled in size and we’ve moved schools, houses and jobs at a rate that has to be seen to be believed. We’ve survived illness and loss within both our families and our friends, and continue to do so on a daily basis thanks to some long-term diagnoses that have oft-times caught us when we were least expecting them. Chronic illness has become a much bigger part of our lives that we could ever have imagined, but with that has also come some amazing friendships, connections and opportunities that we never even dreamed would happen and that, in many ways, I wouldn’t change for the world.

One such relationship that we have all absolutely come to value is the one with the charity, Over The Wall. They have been a phenomenal support to G and M since both first attended their camps in 2016 and are, in an almost unbelievable stroke of serendipity, also celebrating 20 years since they were first launched by UK businessman Joe Woods following in Paul Newman’s footsteps and the development of the Hole in the Wall Gang camps in Connecticut USA in the late 1980s.

So what are we doing to make this a year of note?

As far as our anniversary goes, I’m hoping that Mike and I might manage a night out somewhere special, though celebrating the week before Christmas can make that difficult as we negotiate the huge numbers of office Christmas parties that we inevitably encounter when trying to book a table anywhere without a lot of forward planning.

And, of course, it will come as no surprise that we are also working hard to raise awareness and funds to support Over The Wall’s ambitious plans to take a record-breaking 1,000 children to camp this year. Mike started the year in style with a sponsored polar dip on New Year’s Day and we’ve turned our hands to a few other things – some old, some new – to see just how much we can raise. We followed the “sparking joy” fashion and adopted a Marie Kondo approach to clearing out our wardrobes, committed to giving a regular amount each month and even stood in the entrance of our local Tesco superstore a couple of weeks ago to collect what we could and spread the word about the camps too.

We’ve taken OTW with us wherever we’ve travelled, sporting branded t-shirts, hoodies and bandanas with aplomb and almost quite literally went “over the wall” with them during our visit to Berlin.

G and M have obviously been a big part of many of our efforts, but are now launching an appeal of their own. Their yearning to do something truly spectacular has unfortunately been somewhat hampered by not yet being quite old enough to participate in the activity of their choice, but they have instead picked the next best option in their eyes and will be taking part in a sponsored indoor skydive at the end of this month.

How can you help?

Well, it goes without saying that any sponsorship you can give would be very gratefully received by G, M and OTW, especially if you can help them meet their fundraising target of £200 – scaled back somewhat from M’s original suggestion of £20,000 – by visiting their fundraising page here.

If you’re not able to donate, but live near a Tesco store in one of the following areas*, OTW is one of their Bags of Help Centenary Grants recipients until the end of August and by adding your blue token to their box, and encouraging friends, family and fellow shoppers to do the same, you will help them receive a significant grant that will be genuinely life-changing. Remember “Every Little Helps”, even if that’s by a blue token!

Finally, sharing the OTW message of #mischiefandmagic with friends and across your social media channels will not only help the charity reach even more of the estimated 50,000 children and young people living with serious health challenges across the UK, but sharing our fundraising page will hopefully bring even more cash donations pouring in to help them achieve their goals not only this year, but in the future too.

Thank you!

*OTW is currently starring in stores across: Perth & Kinross, Angus, Stirling, Fife, Clackmannanshire, South Ayrshire, East Ayrshire, Dumfries & Galloway, Scottish Borders, East Lothian, Midlothian, Somerset (inc Bristol), Wiltshire and Swindon.