44I am RB, a 30-something busy Mum of 2 and part-time accountant. I am also the editor for the FABED newsletter, a new role that sits well alongside my blog. Both children were born prematurely, but my second pregnancy was hard-going from the very start.
In 2011, after 5 years of battling with our local health authority, we finally got a referral to Great Ormond Street Hospital (GOSH) and discovered the challenging world of a rare inflammatory bowel disease (EGID) and multiple food allergies. The journey has been long and stressful and there is no sign of it easing in the near future.
If I am able to speak to the heart of even one parent who is going through the same turmoils, then I know the hard work will have been worth it!
This blog has been inspired by, not only our search for an answer to M’s condition, but also my good friend and fellow blogger, theunderstudypancreas http://theunderstudypancreas.wordpress.com/
We have also just discovered a wonderful and small support group who look to proactively support families in our position.
Without these 2 things, it would have been impossible to venture along this road.