I am RB, a 40-something busy Mum of 2 and full-time accountant for a local charity. Both children were born prematurely, but my second pregnancy was hard-going from the very start.
In 2011, after 5 years of battling with our local health authority, we finally got a referral to Great Ormond Street Hospital (GOSH) and discovered the challenging world of a rare inflammatory bowel disease (EGID) and multiple food allergies. The journey has been long and stressful and there is no sign of it easing in the near future.
If I am able to speak to the heart of even one parent who is going through the same turmoils, then I know the hard work will have been worth it!
These days we are big supporters and fundraisers for the incredible charity, Over The Wall, who have supported both children through their fantastic siblings and health challenges camps.
This blog has been inspired by, not only our search for an answer to M’s condition, but also my good friend and fellow blogger, theunderstudypancreas http://theunderstudypancreas.wordpress.com/