Tag Archives: love

A Night at the Opera

It’s a big year of milestones in our family this year, with my Mum’s 70th and G’s 16th birthdays as well as our 20th wedding anniversary. You may remember that in September we spent a family weekend at the Bluestone resort in Wales for my Mum’s birthday, but her celebrations haven’t stopped there and last weekend we headed to London for a weekend of stylish fun. The main reason for the trip was to fill a long-held ambition of my Mum’s, to go to the Royal Opera House in Covent Garden. As the only members of the family lucky enough to have been there before are M and me, thanks to his 2 lengthy December admissions at GOSH, I wanted to find something to see that I thought we all would enjoy and, spotting the performance of “Sleeping Beauty” by the Royal Ballet in their calendar, knew that this was the winning choice.

Our weekend started with the train journey to London and then across London to our hotel near Borough Market. We had agreed on an early dinner to give us plenty of time to get to the Royal Opera House, so after a short walk from the hotel to St Paul’s Cathedral and back for Mike, M and me, we dressed in our finest and headed across the road to the nearby Wagamama restaurant for what we knew would be an easy and safe dinner for both G and M. From there, it was a case of hailing a black cab to whisk us to Covent Garden and we found ourselves there with plenty of time to soak up the atmosphere of this incredible building before the performance started.

For anyone wondering what to wear to the ROH, the rule really is anything goes, just as their website suggests. From jeans to evening dresses and just about everything in-between, we spotted our fellow theatre-goers wearing it all. We had opted to dress up with G remarkably, and not too reluctantly, in a black skater-style lace dress, whilst M was suited and booted in a burgundy shirt, grey tie and black waistcoat. My Mum and I had talked beforehand about what to wear and both regretted not having dressed up just a little more. Mike had told me to take one of my long dresses to wear, but I chickened out at the last moment taking a knee-length dress instead and really wish I hadn’t. Similarly, Mum had opted for smart trousers, heels and a long top, but wished she had brought a dress. Obviously, we’ve reached the sensible conclusion that we will just have to go again and wear our finest!

Coats safely deposited in the cloakroom, we wandered about the gorgeous Christmas tree to spend some time in the bar area on the first floor, sipping our glasses of champagne and people-watching before finding our seats in the side stalls. I wasn’t sure how good the view from our seats would be, but I needn’t have worried as we had a great view of the stage and only missed a few bits happening on the very side of it at times. I was also nervous about whether the children, especially M, would survive the lengthy performance – 3 hours including 2 20 minutes intervals – but again, I didn’t need to. Both children were enthralled, even if M did drift off a little towards the end and they were excited to spot different dance steps that they have been learning in their own dance classes. The performance was absolutely incredible and the whole family enjoyed our night at the opera.

A Night of SeriousFun

It’s no secret that I absolutely love listening to our local radio station. It’s a great opportunity to hear about local people and stories as well as the national and international news. Sometimes I’m lucky enough to hear a friend or acquaintance being interviewed and I’ve even been on the radio 4 times speaking about M, G and the impact that his EGID diagnosis and restricted diet have had on our family. One of my favourite times to listen is in the morning, when the regular presenter hosts his phone-in on a wide variety of subjects from the sublime to the ridiculous and it was this morning’s topic that triggered my thoughts for today.

Today is World Children’s Day, a day to focus on children and more specifically, according to the UN, To recommit to putting children first. For every child, every right: the right to be a child, the right to play and the right to be safe.”

And this made me think.

It brought to mind an event that Mike and I attended in London last week, the annual gala dinner for the SeriousFun Network, the global family of camps for children with serious health challenges, their siblings and families. We were there to support Over The Wall, the charity that runs the incredible UK-based camps that both G and M have been fortunate to attend over the last few years. Those camps work hard to help those children who go to feel “normal”, often for the first time in their lives and to realise that they are not as isolated in their experiences as they so often can feel, whether as the child living with the chronic illness or as their sibling.

I’ve spoken so many times about the impact that OTW has had on both G and M since the first time they went and those effects are long-lasting. Friendships have grown with those they’ve met at camp and for G in particular, those same people have become her tribe. Time and distance has made no difference to those connections they’ve built and each camp sees them re-establishing their friendships from where they left off in years before.

The gala dinner was a great opportunity to celebrate the work that the SeriousFun Network camps do across the world. Much to Mike’s delight we were seated, purely by chance, with a group of Canadians connected to OTW through their corporate giving and they managed to spend half the evening talking all things ice hockey with great enthusiasm. It is thanks to individuals, groups and companies like these that OTW have managed to increase the number of campers they take each year and, having broken their target of 1,000 campers this year, have now got ambitions to reach 1,200 children in 2020. We were entertained by a variety of great acts including 2019 Britain’s Got Talent winners, Twist and Pulse, singers and musicians Damien Rice, Charlie Siem and Diane Birch and comedian Steve Coogan as well as a few of the SeriousFun campers who have performed at Stage Night at their respective camps.

It was a lovely evening, spent with people who all have the same goal to support and bring a touch of the usual to the lives of children who are anything but. We feel privileged that since 2016 our children have benefitted so much from the extraordinary efforts of the surprisingly small handful of staff members and the huge army of volunteers working for Over The Wall. In a reality where M’s health challenges have been an unwelcome, yet prevalent feature, it can never be underestimated just how much of a difference OTW has made to both G and M, and Mike and I are already planning to join the party again next year.

This truly is an organisation that has committed to putting children first and focuses on that right of each child to be a child, no matter what else life has thrown at them.

Bluestone Photo round-up September 2019

A great weekend celebrating a milestone birthday with family. Food, fun and fantastic weather – what more could we ask of South Wales in September?

A quiet birthday

No sooner have we just about stopped celebrating my Mum’s 70th birthday (there are a couple  more presents to enjoy over the next few weeks), but it’s time for Mike’s birthday – and on a Tuesday of all days. Tuesday has to been one of the worst days to celebrate a birthday in our household – M has his dyslexia lesson after school, G has an hour’s tutoring to prep her for her GCSEs and we head to our local swimming pool for our half hour session between 8.30 and 9pm; and it’s pretty much non-stop until bed.

So, instead of even attempting a meal out or raucous party night, we had a rather low-key celebration over the weekend with a scrumptious buffet-style spread and bottle of wine for the adults in front of Strictly on Saturday and marked the occasion that way.

Happy birthday Mike – we love you very much xxx

A Bluestone Birthday

What do axe-throwing, high ropes, tree-climbing, birthday cakes and family have in common?

Easy; my Mum’s milestone birthday – her 70th – and a family weekend spent celebrating in style at the fantastic Bluestone resort in South Wales. For those of you who have never heard of Bluestone, the resort is set in 500 acres of beautiful Pembrokeshire national park near Tenby with stunning views out to the Preseli hills and is a complete escape from the hustle and bustle of everyday life. As well as a site which is largely car-free, it is also absolutely jam-packed with activities and adventures to choose from and our weekend proved far too short to enjoy more than just a select few handpicked choices.

With 7 of us visiting, we stayed in one of their Grassholm lodges, which slept us all more than comfortably and included a fantastic open plan downstairs space with a generous sitting room, dining area and kitchen. Those of us who could booked bikes for the weekend and G and M had a great time racing around from venue to venue for each of the activities, although some of the hills proved a little more challenging for the rest of us. Over the last year, both children have really enjoyed every opportunity to go on bike rides especially as M’s confidence in his bike-riding has grown, and we can often be found spending a couple of hours exploring the country lanes near our house as part of a family ride. It’s also possible to hire a golf buggy to drive around the site, but we spent much of our time either walking or on our bikes whenever possible.

Needless to say, the children and Mike selected their activities for the Saturday with relative ease and I spent my time trying to grab action shots as G climbed to the top of a 40+ foot tree, whilst M and Mike took on the challenge of the high ropes course. Add in the demonstration of their Canadian roots in the afternoon with some axe-throwing skills and great fun was had by all. We even managed to squeeze in a quick early evening swim before heading out for a celebratory dinner at the Farmhouse Grill. Sunday was a little quieter with a morning at the Blue Lagoon water park before a late lunch at the Knights Tarfan.

All in all, we had a brilliant weekend and it came as no surprise when both G and M asked if we could go back another time. There were lots more activities that we could have tried, both indoors and outdoors, but we just couldn’t fit them in this time round. We would highly recommend Bluestone for a weekend, or week, away from it all and it certainly has enough to keep the most active of youngsters occupied for a good few hours anyway.

Summer Photo Round-up 2019

Summer 2019 was all about home-grown entertainment and experiences before heading into a year of GCSEs – both exams and options!

Culture, crowns & crime

After our late night at the theatre, you wouldn’t be blamed for assuming that we might take it easy and start our Friday off in a more relaxed fashion; but you’d be very wrong. We had lots planned for our second day in London and wanted to achieve as much as we could before catching our train back home, which meant one thing, a much earlier sleep that maybe any of us would have chosen.

Our first stop was a tour of the Globe theatre, just 5 minutes from our hotel and G’s choice of must-see sights for our visit. It’s the first time we’ve been to the Globe, despite having walked past it and discussed seeing it on very many previous occasions. The 40 minutes spent learning more about the history of the original theatre as well as the efforts to build the reconstruction were absolutely brilliant and M enjoyed being able to ask questions of our guide based on bits and pieces he had previously learned at school. My only regret is that we hadn’t built in time to go to a Shakespeare play whilst we were there as both children have eagerly asked if we could see one, so at some point in the future, of course, we absolutely will.

With the Globe ticked off our list and a watchful eye on the impending grey clouds, we found our way back to the Tower of London and headed in to explore as much as we could given the August tourists, darkening skies and 2 children who were growing hungry rapidly. We decided to start with the Crown Jewels and just about survived the spots of rain that fell as we made our way through the fairly lengthy queue. The exhibit has been updated since the last time Mike and I visited there many moons ago and is definitely worth a visit as there is a great balance between the information boards, video footage, photographs, timelines and the Crown Jewels themselves.

Unfortunately, our late night the night before combined with the poor weather and hunger meant that G and M really didn’t want to queue to see anything else at the Tower, so we made the decision to convert our admission tickets into annual passes to allow us to return and see the bits we missed out this time over the next year. As I am keen to also visit Hampton Court – poor G is being inundated with “educational” visits that fit with her GCSE syllabuses at the moment – this will hopefully prove to be a canny decision as we can visit there as well as other palaces as part of the Historic Royal Palaces membership.

Once we all were fed and watered to our fill, we then spent some time trying to decide how to round off our day in London. The original plan had been to stay at the Tower of London for the rest of the day, so it was now time to find an alternative that would fit with our plans for dinner and the train journey home. After lots of suggestions, some more extraordinary than others, we eventually settled on a visit to the Clink Prison Museum, which is tucked away just along the road from our hotel. It was a decision based on our need to escape the rain for an hour or so, but was definitely the unexpected success story of our whole trip. This museum is not big, but it certainly is crammed full of information, artefacts and stories about what is considered to be the oldest prison in England. Both kids were able to wander through at their preferred pace and spend time in the bits that interested them the most. It was come as no surprise that M was particularly taken with the torture devices on display and shared everything he was learning with whoever would listen.

From the Clink, there just enough time to pick up our bags from the hotel, journey across London for dinner and reach the station to catch our train back home.

Time to stop and smell the roses

New job, end of term, fundraising plans, health challenges, summer holidays… sometimes it really is nice to be able to stop and smell the roses, especially when they’re as beautiful as this bunch of flowers currently gracing G’s windowsill. A thank you from her Stagecoach school for all her help last week at their summer school – a small acknowledgement of her efforts and one that has very much been appreciated and enjoyed by us all.

We’re all taking a little time this week to slow down and appreciate life. With a couple of days off planned for the end of the week, I’m winding down to just spending some much-longed-for family time together and am wondering if I can convince the children to give up their technology for at least some of that time too. M is spending the week planning 101 things he wants to do with G before we have our break, whilst G tries her best to ignore him and focus on some gentle revision instead. Mike and I will complete as much work as we can and anything left outstanding will quite simply have to wait until we head back to our desks on Monday morning.

I hope you too get the chance to stop, take a breather and appreciate life in its fullest this week.

20 years of #mischiefandmagic

A lot can happen in 20 years.

In the years since our wedding in December 1999, our family has doubled in size and we’ve moved schools, houses and jobs at a rate that has to be seen to be believed. We’ve survived illness and loss within both our families and our friends, and continue to do so on a daily basis thanks to some long-term diagnoses that have oft-times caught us when we were least expecting them. Chronic illness has become a much bigger part of our lives that we could ever have imagined, but with that has also come some amazing friendships, connections and opportunities that we never even dreamed would happen and that, in many ways, I wouldn’t change for the world.

One such relationship that we have all absolutely come to value is the one with the charity, Over The Wall. They have been a phenomenal support to G and M since both first attended their camps in 2016 and are, in an almost unbelievable stroke of serendipity, also celebrating 20 years since they were first launched by UK businessman Joe Woods following in Paul Newman’s footsteps and the development of the Hole in the Wall Gang camps in Connecticut USA in the late 1980s.

So what are we doing to make this a year of note?

As far as our anniversary goes, I’m hoping that Mike and I might manage a night out somewhere special, though celebrating the week before Christmas can make that difficult as we negotiate the huge numbers of office Christmas parties that we inevitably encounter when trying to book a table anywhere without a lot of forward planning.

And, of course, it will come as no surprise that we are also working hard to raise awareness and funds to support Over The Wall’s ambitious plans to take a record-breaking 1,000 children to camp this year. Mike started the year in style with a sponsored polar dip on New Year’s Day and we’ve turned our hands to a few other things – some old, some new – to see just how much we can raise. We followed the “sparking joy” fashion and adopted a Marie Kondo approach to clearing out our wardrobes, committed to giving a regular amount each month and even stood in the entrance of our local Tesco superstore a couple of weeks ago to collect what we could and spread the word about the camps too.

We’ve taken OTW with us wherever we’ve travelled, sporting branded t-shirts, hoodies and bandanas with aplomb and almost quite literally went “over the wall” with them during our visit to Berlin.

G and M have obviously been a big part of many of our efforts, but are now launching an appeal of their own. Their yearning to do something truly spectacular has unfortunately been somewhat hampered by not yet being quite old enough to participate in the activity of their choice, but they have instead picked the next best option in their eyes and will be taking part in a sponsored indoor skydive at the end of this month.

How can you help?

Well, it goes without saying that any sponsorship you can give would be very gratefully received by G, M and OTW, especially if you can help them meet their fundraising target of £200 – scaled back somewhat from M’s original suggestion of £20,000 – by visiting their fundraising page here.

If you’re not able to donate, but live near a Tesco store in one of the following areas*, OTW is one of their Bags of Help Centenary Grants recipients until the end of August and by adding your blue token to their box, and encouraging friends, family and fellow shoppers to do the same, you will help them receive a significant grant that will be genuinely life-changing. Remember “Every Little Helps”, even if that’s by a blue token!

Finally, sharing the OTW message of #mischiefandmagic with friends and across your social media channels will not only help the charity reach even more of the estimated 50,000 children and young people living with serious health challenges across the UK, but sharing our fundraising page will hopefully bring even more cash donations pouring in to help them achieve their goals not only this year, but in the future too.

Thank you!

*OTW is currently starring in stores across: Perth & Kinross, Angus, Stirling, Fife, Clackmannanshire, South Ayrshire, East Ayrshire, Dumfries & Galloway, Scottish Borders, East Lothian, Midlothian, Somerset (inc Bristol), Wiltshire and Swindon.

Happy Holidays!

We’ve made it!

We almost literally limped to the end of term, but we made it, not withstanding the challenges of mock exams, shingles and Lyme disease. Homework was completed (and handed in), sports day was competed in (and won) and the last day was enjoyed in all the glory of own clothes and an early finish to the day.

We might only be a week in, but already G and M have been busy. We’ve squeezed in a couple of films they wanted to watch, the beach has been enjoyed with G’s godfather and his family visiting from Canada and they’ve kicked off this week by volunteering at our Church’s holiday club for primary-age children during the day as well as taking part in the evening’s youth club for teens.

And there are plans for the weeks ahead: G is spending a week volunteering at their Stagecoach’s summer school, a visit to London to see the musical of their choice thanks to London theatre’s Kids Week and even some fundraising for the fantastic Over The Wall which they’ve planned themselves (more details of that to follow). We don’t have a “big” summer holiday planned having been to Berlin during May half-term, but instead have decided to enjoy our local area as well as the occasional overnight visit to somewhere a little further afield in the UK.

One thing’s for certain, it’s looking to be a busy, fantastic and very happy summer holidays and I hope yours are too!