Tag Archives: health challenges

2021: Easing out of Lockdown (again!) – 7Y2D COVID-19 Diaries Weeks 55 & 56

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The last 2 weeks have been busy both for us and for the rest of the UK. G and M have been enjoying their Easter holidays from school, not least as both have been active participants in this year’s Over The Wall Camp in the Cloud sessions once again. Every day has been a combination of crafts, challenges and nightly cabin chats and it’s been lovely to see them engaged in something other than their electronic devices night and day! I’ve been honing my face-painting skills and have discovered a new outlet for my creativity, though M has been more reluctant to let me practice now that his camp has come to an end.

We’ve been impressed once again with the #CitC offerings this year, not least as the daily activities have all been different to those they completed last summer. G in particular has connected with friends she made both through the 2020 virtual camp and from attending camp in person before and is enjoying the opportunity to chat and laugh in a safe space with some lovely individuals. I’m also really pleased to see that they will continue with the opportunity for monthly cabin chats with their teams for the next 3 months and know that both children are looking forward to that as well.

The slow easing in lockdown measures hasn’t affected us too much so far, though we did take advantage of the opportunity to see my Mum on Easter Sunday. Undoubtedly, the highlight of M’s week has been the news that our local pool has reopened and he absolutely loved his first swimming session back on Tuesday evening, something he has very much missed over the last few months. We’re not ones to rush out to our local for a swift half or a meal outside in the UK weather, and we will continue to take our own small steps in widening our world once again.

Going that extra mile – 7Y2D COVID-19 Diaries Week 37

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There is no question that the last 9 months have had a huge impact on the mental wellbeing of all in the UK and worldwide. The rapid change to our usual routines left many feeling extremely discombobulated and the uncertainty of knowing when we can get back to anything that even vaguely resembles our old “normal” can lead to a sense of a loss of control, which itself can drive anxiety levels sky-high.

As we’ve all adapted to a life that is a great deal more home- and family-based than many of us are used to, so have many organisations similarly changed how they work in order to continue providing their services in whatever way they can. The benefits from doing 4 weeks of Stagecoach on Zoom were absolutely tangible for G and M, and it was encouraging to hear them giggling their way through the 3 hours of classes on a Friday evening. They’re delighted to be able to be back to “real life” classes this week and seeing some old familiar faces, both teachers and friends.

One organisation that has definitely gone the extra mile is Over The Wall. I’ve written numerous times about the amazing impact their camps have had on G and M over the last few years and this year was no different. It would have been so easy for them to simply shrug their shoulders when it became clear that camps couldn’t be held as normal, but instead they rolled up their sleeves and worked hard to produce the fantastic online “Camp in the Cloud” sessions for all who had applied for camp places. The week-long activities broke up the mundane experience of life in lockdown and challenged both children in a different way that they very much needed. That opportunity to connect with other young people who really understood how they might be feeling once again proved invaluable. Some might think that this charity’s determination to still deliver their regular offering as best they could despite the circumstances is going the extra mile, and I wouldn’t disagree, but I’m actually speaking about that something more they’ve now gone on to do.

Following the resounding success of their online camps, OTW has gone that one step further and continued to hold cabin chat sessions via Zoom on a monthly basis. G and M were both keen to participate and that hour or so at the start of each month has been a real lifeline for them. Cabin chat was open to anyone who had attended the virtual camps no matter where they are based and so both children have found themselves in groups with others from across the UK. It has been an hour to chat, laugh, accept and set challenges and just generally share how the last few months have and are affecting them. They’ve both made new friends and once again the boost to their mental wellbeing has been evident immediately. The planned chats have now finished, but we’ve all got our fingers tightly crossed that they will start again in the New Year.

Of course, none of these things could happen without the dedicated team of staff and volunteers at Over The Wall and we can’t thank them enough for going that extra mile and once again supporting G and M as best they can. Over The Wall have announced today that they are planning to continue with the virtual camps next year and beyond, even once the residential camps are able to start up again, which is quite simply the best news ever.

Camp in the Cloud – 7Y2D COVID-19 Diaries Week 20

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Since their first camps in 2016, G and M have looked forward to the start of every year to find out if they have got a place at their choice of Over The Wall camps. The initial outcome of this year’s applications saw both children on the waiting lists for their respective choices and, in M’s case in particular, with fingers tightly crossed that they might be lucky enough to make it to the actual camp when the time came about.

Like so many other activities, the coronavirus pandemic understandably shut down the Over The Wall camps this year, something that we all understood although it did leave the children somewhat disappointed. However, no sooner had we been advised that camp wouldn’t be happening this year, than an email was sent telling us that they were looking into a virtual alternative and to keep an eye out for future updates to be sent. It didn’t take long for the final details to reach me and both children eagerly signed up to the first ever Camp in the Cloud.

M was first up with the online South Health Challenges Camp and about 2 weeks before the start of camp his Camp in the Cloud box arrived on our doorstep. He did a grand reveal and shared opening his box with my Mum and Aunt over Face Time on the Saturday afternoon. Hidden inside was a padlocked box, sealed envelopes labelled for each day, face paints, a stationery set and, most importantly, his team t-shirt revealing he’s risen to the heady heights of being a green boy. The box also included a pot of M-friendly hot chocolate for cabin chat. The note on the container reminded him he could make it with the dairy-free milk alternative of his choice – a small thing that showed just how much OTW focuses on the finer details for each and every camper in their care. They also followed that up with an email just before camp began to remind me to check the ingredients to make sure I was confident that it was safe for M to drink.

The week of Camp in the Cloud came at a perfect time for M. It was a good start to his so-say summer holidays and proved to be a great distraction from the sad news of losing Grandpa the weekend before. The daily challenges gave him a focused activity to try his hand at and he loved being able to explore the virtual campsite, searching for the hidden Newman’s sauce bottles and participating in all his favourite camp activities in one way or another. The highlight of each day was most definitely the camp chat via Zoom, which gave him around 45 minutes to meet his team mates, accept, or set, team challenges and just chat in a face-to-face context, something he hasn’t really been able to do since lockdown began.

I was intrigued to see what M’s response to the week would be and it couldn’t have been more positive. Whilst he commented that it obviously wasn’t as good as going to camp itself, he loved being part of it and having something different to do after so many weeks of the same old, same old. Being able to dip in and out of the online platform during the day worked perfectly for my usually active child and the evening cabin chats really made it feel like camp. M was so impressed with the camp that he even contacted OTW himself to suggest that Camp in the Cloud is something they could continue to do in the future. He loves going to camp and always feels the bitter disappointment when he isn’t successful in getting a place. M believes that being able to offer Camp in the Cloud to those children who aren’t able to go the physical camp would be a great alternative and would reach out to offer the fantastic OTW experience to even more campers than they usually can. Whether they consider doing that, we simply don’t know, but anything we can do to help make it a reality we will.

Now we’re onto the countdown for G’s Midlands siblings camp at the end of the month – and she just can’t wait!

Finishing the summer in style

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With Christmas now just 6 weeks away – eek, where has this year gone?! – it’s hard to believe that I still haven’t finished telling the tales of our busy summer. You’d have thought our fairly last-minute plans to fly out to Canada for 2 weeks would have been more than enough to keep us all occupied, but we had even more adventures squeezed in to the final 10 days of the summer holidays before school started back.

We had the return journey from hell with a disrupted flight thanks to a group of rowdy French exchange students, who got into arguments and near fist fights with both the airline crew and other passengers, just rows away from the seats we were sitting in. I have never been so upset on a flight and am just grateful that the children were more entertained by the films they chose to watch, than scared by the events going on around them. This behaviour continued in the Dublin airport terminal and didn’t help the stress of a delayed flight back, which meant we missed our onward flight home by mere minutes. Mike and I were tired, grumpy and so fed up by all we experienced, that we complained long and hard, which fortunately secured us a later flight home, though it was 12 hours later than originally planned, and a hotel room for the day, which gave us the chance to catch up on some much-needed sleep, something that had been impossible on the plane.

We were both back at work the following day, whilst G and M went to my Mum’s for the last 2 days of the week. We rushed through the washing and then found ourselves packing once again for a weekend in Liverpool to see the Terracotta Warriors exhibition that we had missed when we visited back in April and what was, perhaps, the highlight of M’s summer holiday – a week at Over The Wall. Our weekend in Liverpool was a great success, especially as we managed a return trip to both of the fabulous freefrom restaurants we had discovered on our previous visit, something both children were desperate to do. The morning spent at the World Museum was well worth it and we all enjoyed seeing the amazing Terracotta Warriors that were on display. It’s hard to believe that it’s been 17 years since Mike and I first saw them in Xi’an, China and fantastic to introduce G and M to this incredible ancient tribute to China’s first emperor. They also insisted we explored every other part of the museum we could and given the rather miserable weather, it was a great way to entertain them whilst away from home.

From Liverpool, we headed back South, dropping M off at the Midlands OTW Health Challenges camp for what we had no doubt would be an amazing week for him again. I cannot begin to describe the incredible benefits that M gets from OTW and why this charity deserves all the support and praise we can possibly give it. Once again the camp chefs outdid our expectations and created meals for M that went beyond our wildest dreams – and yet again apparently put my attempts to shame. This year, however, I can take great solace in the fact that M shared with the chef that I put my recipes on this blog and he not only took a look at them, but also used them to help cook treats for M whilst he was at camp. Just as with his stay at the South HC camp 2 years ago, M was exhausted after a week of unbelievable fun and challenge and just about managed to survive the very final bit of our seemingly endless summer adventures.

OTW’s Midlands camp is based just minutes away from the National Memorial Arboretum near Lichfield, Staffordshire and it seemed a shame to be so close and not stop there for a relatively quick visit. The NMA is somewhere I’ve long considered visiting and we chose a beautiful day to make the trip. Both children were about studying the World Wars at school and with 2018 marking the centenary of the Armistice, it seemed fitting to spend some time walking the grounds and exploring the many memorials that are found here. It was a remarkable and moving place to visit and I’m glad we made the effort to, despite M’s reluctance and overwhelming tiredness from a week away from home.

Bitter disappointment

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Two years ago, M and I waved goodbye to G as she trekked off on the adventure that is Year 6 Camp and, as he had his NG-tube in place, we chatted about whether Year 6 camp was a possibility for him. I reassured him that Mike and I were both keen for him to go and would work hard with the school to ensure that his every need – medical, dietary or otherwise – was met as he needed, whether the feeding tube was still in place or not. Despite never having spent a night away from family, M wanted to go, to try out new activities and to challenge himself as opportunity offered.

One year ago, as I manoeuvred M’s wheelchair through the back gates of school and across the school field to his classroom, we breathed a sigh of relief that it was during Year 5 that he had spectacularly broken his left leg and not in the weeks leading up to the Year 6 camp. The slow reintroduction of foods following the removal of his feeding tube would not hold him back and once again I found myself reassuring him that, if needs be, I would bake a batch of M-friendly cakes or cookies to accompany him on the trip and that we would ensure that the camp kitchen could safely cater for whatever his food requirements were when he went. His week away at Over The Wall built his self-confidence as he realised that he could tackle anything he put his mind to and succeed.

For the last 2 years, M has been looking forward to this rite of passage, this week of school camp and practically counting down the days until it was finally his time to go. He has been in discussion with G about the different activities he might get to do and planning all that he would need to make the week the success he so desperately wanted it to be. I met with the school to talk over the arrangements for meal-times and sleep that would need to be in place and was confident that they would do everything in their power to make it a week to remember for him and all his class-mates.

And then 2 weeks ago, M had to make what has been, without a doubt, one of the hardest decisions in his life so far. The past 4 months of food challenges have taken their toll and when that was added to the stresses of SATS, we saw an unwelcome decline in his health that we weren’t sure could be overcome easily. Despite our best efforts and hard work since mid-May, M has decided that going away to Year 6 camp is not the right thing for him to do at the moment. To say that my boy is bitterly disappointed would be an understatement. For 2 years of longing and planning to come to nothing is heartbreaking for us all and has been a bitter pill to swallow. For M, life has just seemed incredibly unfair once again.

M is frustrated that he can’t go, but he has based his decisions on the health struggles he is currently facing and knows that ultimately it is the right choice for him. He has tried to remain cheerful in school and has been an active participant in the tasks set to his class as they have researched where they’re going and what they’ll be doing. Mike and I met with his teachers and arranged for Mike to take him to the camp today for a half-day*, so that he can join in an activity of his choice and not feel that he is missing out completely. What has made it even harder to bear is that he currently doesn’t have a place on this year’s OTW Health Challenges Camp and is instead on the waiting list, with his fingers tightly crossed that a place might become unexpectedly available.

I know that in the long-run, M will pick himself up and dust himself off and keep going, just as he always does, but it’s hard to comfort him when he’s railing against just how unfair life can be because, in all honesty, right now I agree with him and it’s hard to find the positive and that silver lining we so desperately need to cling to.

*I’m delighted to share that today’s morning has turned into a full day at camp with his friends. M enjoyed the mud assault course so much that he felt confident to stay on and try his hand at abseiling and anything else he could find the time to do.