Tag Archives: family

Taking Over once again

In November 2016, G and M were lucky enough to be invited to participate in the first ever Takeover Challenge at GOSH. They spent the day running the Development and Property services department at the hospital and even managed to somehow convince the staff to take them onto the building site of the new research centre being built opposite nearby Coram Fields. One of the jobs they had undertaken during that Takeover Day was to help design the hoarding to surround the building site and we were delighted to see it in place when we visited GOSH for the Big Youth Forum Meet-Up in mid-October as both children got to see their hard work actually being used in real life.

 

So it will come as no great surprise that the minute they heard that there would be another opportunity to Takeover at GOSH this year, both G and M leapt at the chance. Unlike last year, when they opted to be part of the same department, this year they determined to do different things and each took on very different roles with G joining the ICT department as an ICT project manager, whilst M became a clinical scientist for the day. We were fortunate that their secondary school recognised the value in them attending this day and were happy to authorise their day off, something that M in particular was delighted about. I was already in London for the week attending the Foodmatters Live conference and so Mike set off from home extremely early on the Wednesday morning to get the children to the GOSH reception area in time for their respective days to start.

We had arranged that I would meet up with them for tea and over an early supper at Wagamama in Leicester Square, I was regaled with excited tales about the adventures of their day. G’s day was spent learning about how the ICT department is involved in the day-to-day running of GOSH and more specifically understanding how the staff ICT helpdesk is run and looking at solutions to common IT problems. G had an opportunity to visit different hospital departments and help resolve the problems some staff members were experiencing and even managed to successfully close a couple of cases herself. Her final task of the day was to visit the brand new clinical building that has recently opened at GOSH and understand how the decisions around what ICT equipment to provide for patients are made. One of her mentors for the day also took her to visit one of the laboratories in the hospital knowing that M was based there, although she didn’t spot him during her visit.

M’s day was focused on understanding the role of the clinical science team at GOSH and in particular learning more about gene and cell therapies as well as the research that is undertaken in the hospital. He was keen to take on this role because of the rare status of his own condition, EGID, as it demonstrated just how important this type of research is. M spent the day  learning how to split blood samples into different cell types, preparing the cells for analysis, generating DNA fingerprints and analysing DNA for mutations. The team also showed him what eosinophils look like when they’re put under the microscope and gave him an insight to what his scopes might have looked like prior to his diagnosis. As usual, M learned a lot from his day and when he and I attended our local hospital a week later for a set of bloods to be taken, he was keen to explain to the nurses there just what would happen next with the samples they were taking from his arm.

Both G and M had an amazing day at GOSH and we are, as ever, extremely grateful to the YPF and youth liaison team who not only offered them this fantastic opportunity, but also made sure the day was a huge success for them both. I know M already has his sights set on Taking Over yet another department next year, but we will just have to wait and see what happens!

Advertisements

A Winter-themed weekend

For the 4th year in a row, I found myself not only in London, but also spending a little time at GOSH during the weekend closest to G’s birthday. Thank goodness that this year there was no admission attached to what is fast-becoming a December tradition, instead, just like last year, our reason for going was the December meeting of the GOSH YPF and with both G and M now active members of the YPF, we decided to make a weekend of it and round off the birthday celebrations in style, whilst gently kicking off our Christmas ones as well.

In the lead up to a previous YPF weekend, I was lucky enough to stumble across the Travelodge in Hounslow, which has quickly established itself as our destination of choice whenever we need to head to London for the weekend. A lot more affordable than central London prices, it is a short walk away from a secure car park and both the East Hounslow and Hounslow Central tube stations, making it an easy commute into GOSH in particular as all are stops on the Piccadilly line. This close to the end of term, we were able to take advantage of the fact that the out-of-school activities have now finished and headed to London on the Friday evening once G and M’s school day was over, and even managed a reasonable night’s sleep before our busy winter weekend began.

It started with our morning commute to GOSH, where we dropped G and M, both kitted out in their Christmas finery, for a YPF meeting filled with a whole host of activities and treats, including a hotly challenged Christmas quiz. Once the children were settled, Mike and I set off on foot towards Covent Garden and spent our day meandering the streets, exploring the shops and even managing to pick up the odd present or two as well. We stopped for a light lunch at the amazing Cafe in the Crypt at St-Martin-in-the-Fields, just off Trafalgar Square. This is fast becoming one of our favourite spots whenever we are in London as the food they serve is simple, yet delicious, they serve a few allergy-friendly snacks too and is a place I would heartily recommend to anyone looking for a peaceful break from the busyness of London itself.

Lunch done, we started our trek back to GOSH along Shaftesbury Avenue and stumbled across this group of festive, charity bike riders as we turned the corner towards our final destination. It really was a sight to behold as we were surrounded by Father Christmases as far as the eye could see and lovely to watch excited small children wave and shout out Christmas greetings as the cyclists sped past.

 

There was one last stop I wanted to make before we met G and M and that was at the Baileys Treat Stop pop shop located not far from Covent Garden. It was only open for 2 weeks and I was determined to take advantage of our trip and pay a visit there for a Baileys-inspired hot drink. The queue was long and it took over 40 minutes to finally get into the shop itself, though our patience was well-rewarded by the plethora of treats that was brought out to keep those waiting happy – chocolate eclairs filled with Baileys-infused cream, cups of popcorn and chocolate covered Baileys fudge and toffee. I finally made it to the front of the queue and having never tried their Pumpkin Spice version and not fancying a treat-laden hot chocolate, I decided to customise a Pumpkin Spice latte instead. I think the server was a little disappointed with my rather tame selection of “just” chopped nuts and wafer straws, but despite his best efforts, I held firm to my decision, which I maintain was absolutely the right one. However, the latte itself was incredibly disappointing and absolutely not worth the time and money I’d spent to get it. What I hoped would be a small Christmas treat for me really wasn’t and we wasted close to an hour with that detour.

However, the rest of our Saturday went according to plan and was a fantastic ending to G’s birthday celebrations. Both children had a great day at the YPF meeting and came away with some small and unexpected gifts and treats. G was really keen to have a Chinese meal for dinner and so we chose to double up M’s medicines throughout the day and then allowed him to relax his diet for the evening. Mike and I had done scouting around Chinatown during our day and we headed to the Feng Shui Inn for a few carefully selected dishes which the whole family enjoyed. From there, it was just a stone’s throw away to the Prince Edward theatre where we were treated to the delights of Agrabah, the fantastical quirks of the Genie and the addition of a handful of new songs to Disney’s Aladdin. This was G’s choice of show and I knew she’d enjoyed it when she asked at the end if we could see it again! It was an amazing production and we were incredibly lucky to see Trevor Dion Nicholas in the role of the Genie, a role he was reprising after a successful stint on Broadway.

Sunday morning saw another tube ride into London, though this time our destination was the Tower of London where we had booked an ice-skating session on the rink set up in the moat. Both children were keen to have a go at skating once again and Mike was just as excited. It took a little while for G and M to find their feet, but they were soon off and even attempting to get around on their own, away from the barrier. The session only lasted 45 minutes, but that was more than enough for all of us and M and I even left the ice a few minutes early due to the uncomfortable hire skates we were wearing. All in all, we had a fantastic and fun-filled family winter-themed weekend and it felt like a fitting end to what has been a long school term.

Unexpected Christmas treat

Whenever I write a review and share it on my blog, I do so because I’ve found a product or place that I’m impressed with and want to spread the word throughout the allergy community. Sometimes I’ve been fortunate enough to have received a freebie or two in advance for us to taste test and review – something you will always see declared on my posts – and I guarantee that we will always be honest with our opinions. It’s true that I rarely share things I don’t rate, although when I’m less than impressed with the service we’ve received, I will always make sure I shout that from the rooftops too. However, I never review with an expectation that we will receive something afterwards, though I’m honest enough to say that it’s always nice when we do!

That’s why, when I wrote about my discoveries at the FoodMatters Live conference a couple of weeks ago, I did so because I was just thrilled to have some new goodies for M to safely enjoy, which is always fantastic especially in the lead up to Christmas. What I didn’t expect was this marvellous parcel that was sent on to me just a few days after my post was published:

M spotted it propped up against the front door as we drove onto our driveway after school on Tuesday and was eager to be the first out of the car and to the door to pick it up and discover what had been delivered. His glee when he spotted the “Freedom Mallows” label on the front was unstoppable and he couldn’t wait to get it to the kitchen table and open it up. I had been in the know, as Elvin had contacted me asking for a postal address, but I’d only expected a small bag, or maybe 2, of mallows which I could sneak into their stockings on Christmas Eve. The treasures hidden within this box are immense and no stocking in our household is big enough to hold it all. Without a doubt, the excited squeals of both G and M which shook our house reverberated around our village and I just wish I could adequately capture that moment of absolute joy to share with you all.

A big thank you to Elvin at Freedom Mallows – you’ve made 2 not-so-small-anymore children very, very happy!

On the 5th Day of Christmas…

There’s nothing I love more than decorating the house for Christmas, although the last 3 years have each carried their own challenge to being able to achieve that, with admissions to GOSH 2 years in a row followed by a health scare with my eyes last year. This year we’ve all been at home, all been in reasonable health and have all had a part, however small, in bringing the Christmas spirit into our home. Sunday was the day to “deck the halls” at home and M in particular couldn’t wait to get started on trimming the tree. With Christmas carols playing in the background, mulled wine warming on the stove and the advent candle burning down on the mantlepiece, the Christmas season really has begun.

I always feel particularly nostalgic when it comes to pulling the decorations out for our Christmas tree as each bauble evokes its own precious memory. Every year we buy at least one new decoration for each child for the tree and frequently they end up with more than one depending on our travels and on friends and family members who also buy and add to our collection. By the time G and M are ready to fly the nest and have their own homes to spend the festive season in, they will each have a boxful of decorations to trim their Christmas trees. As we unwrap each ornament, the memories of time spent together and journeys made wash over me and there are often stories to share as we reminisce about times past.

It’s hard to pinpoint my favourite decoration as there are so many happy memories encaptured in the beauty of our tree. There’s the small gold bauble with a red ribbon that marks our wedding as I hand-wrote enough for every guest to have one as an alternative wedding favour to celebrate the day. I have 2 handmade snowflakes from a German Christmas market, which my Dad brought back from a business trip and that have a special place in my heart. There are many from our holidays both before and after G and M arrived in our family – China, Australia, Ireland, Canada and even Greece to name but a few. Amongst the most precious are those the children have made over the years, from simple paper and sparkles in their nursery days to the hand-decorated ceramic ones that M made during his last hospital admission.

Today is the 5th day of Christmas and I’m looking forward to the memories we’ll be creating this year as we count down to the big day itself.

The Newest Addition

Back at the start of this year, Mike and I managed to escape the UK and headed to New York for the week to celebrate my 40th birthday. It was a fantastic trip where we had so many fabulous experiences and yet a single event managed to interrupt our time away from home and left us having to consider how to break some very sad news to our youngest once we were back.

M’s beloved cat, Ginger, who had proved to be an invaluable part of our family as he brought so much comfort to M at some of the most difficult times of his treatment over the years, was hit and killed by a car on the main road near our house. My Mum, who was looking after G and M whilst we were away, somehow managed to keep this news from them both, even though they were checking in at home every couple of days to feed the cats and M’s dragon, Leo. I knew that this would be hard news for M to hear and feared a similar reaction to when we discovered one of our twin black cats had suffered the same fate 6 years ago when M was just 5. Back then, M had spent the entire evening and much of the night in tears and refused to eat for nearly 24 hours, an experience I hoped we’d be able to avoid.

Both children were upset when we finally broke the news, and although G’s response was fleeting, M struggled almost as much as we had expected. Much to my relief, the effects of this loss were not so long-lasting and within days M had moved on to what was obviously to be the final part of him coming to terms with the situation: the request for a new kitten. Knowing our son as well as we do, this didn’t come as any surprise to either Mike or me and we had already agreed on our answer. We would consider getting him a new kitten, but it would need to wait until we had got through SATs, past our summer holiday in Greece and were settled into the new school year.

Much to our delight, M could see the sense in this suggestion (something that doesn’t often happen) and happily agreed to delaying our search until the end of the summer at the earliest. Over the following weeks and months, G and M discussed at length what they were hoping for in a replacement pet. It had to be a kitten (because they’re cute), it had to be ginger (because Ginger was) and it had to be a boy (because…well…just because). Almost as soon as we arrived home from Greece, the search began and I spent the next couple of weeks online to find out what kittens were available in one of the many cat rescue centres in the area. To our delight, my enquiry about a different set of kittens led us to the discovery of the delightfully named “Bill and Ben”, a pair of ginger toms who were both looking for a new home.

Despite the best entreaties of G, who fell in love with “Ben” when we met them for the first time, and the surprising expectation of both Mike and my Mum that I would come home with both kittens, I managed to stick to what we had originally agreed and so it was that “Bill” joined our family at just 10 weeks old. He has been a source of great joy and many giggles since he first joined us at home, though his current tendency to bite everything in sight, particularly ankles and feet, has led to some frustrated shouts of pain too.

Now at nearly 4 months old, I take great pleasure in introducing you to the newest addition to the 7Y2D household: Biggles!

    

Halloween Pumpkins

Ok, so it might not be Halloween just yet, but I thought I’d share some photos of the pumpkins that Mike and the children have spent time designing and carving over half-term. Halloween has never been a time to celebrate for me and was certainly never a significant time of year when I was growing up. My childhood was spent making a Guy for Bonfire night, rather than carving a pumpkin for Halloween and I never imagined it would become a regular part of our household’s routines. However, 20 years on from when I first met Mike in Canada and experienced trick-or-treating North-American style with my university friends, Halloween has become a family time with the children not only carving pumpkins with Mike, but often also with my Mum during half-term.

I’ll be honest, I’m not a fan of Halloween at all. We don’t go trick-or-treating with the children, though I absolutely support the work of the Teal Pumpkin Project which encourages households to provide non-food treats as a safe alternative to sweets for allergy children, so they can be a part of the experience alongside their friends. And I spend most of the week leading up to the day itself in an increasingly dark mood as October 31st is the anniversary of losing my Dad. It is always a difficult time of year for me, but I’m glad that the children are able to enjoy some fun time being creative with Mike and carving the pumpkins helps them celebrate their dual heritage in a unique way.

 

 

 

Greece Photo Round-up 2017

Making the most of our 10 days in Greece was everything we needed it to be this summer. It’s been a big year: with me changing job, G becoming a teenager, M taking SATs and the move to having 2 children at secondary school; and we all appreciated the chance to escape from the day-to-day and spend some precious family time together relaxing and enjoying each other’s company. From the ancient monuments in Athens to the beauty of Syros, Greece was an amazing holiday destination and one place we would love to return to again.

Unexpected Greek Treats

We might have packed a suitcase full of a variety of allergy-friendly foods to keep us going during our 10 days in Greece, but, as ever, we kept our eyes open for any M- and G-friendly Greek treats that we could spot in the supermarkets. delicatessens and local shops in Athens and on Syros. I had no doubts that we could find the bare essentials of soya milk, goats’ cheese and rice, but it’s those unexpected finds that make all the difference when we’re travelling as a family.

The first fantastic find, and one that we found ourselves stocking up with to last the duration of our stay, was this unassuming pack of smoked chicken fillet that quickly became a firm favourite with M. Mike had ventured out of our Athens studio one afternoon and found a delightful small deli less than 5 minutes walk away. They had a huge selection of fresh and dried olives, oils, cheeses, breads and cooked meat, but it was the smoked chicken that caught his eye as we had been struggling to find an appetising way to cook and serve chicken for M, who is not the biggest fan of cold chicken at the best of times. The smokey flavour was something new to him and whilst he was prepared to let the rest of the family have a small taste to see just how delicious it was, he insisted that the remaining slices were his and his alone. Mike also discovered these brown rice cakes with pink Himalayan salt, a surefire hit with M and the perfect base for his smoked chicken fillet sandwiches that became a lunchtime staple.

As we had expected, we had no problem in sourcing goats milk, butter and cheese for G in Athens and were also delighted to find both almond and hazelnut milk there too. She quickly fell in love with the traditional Greek Feta cheese and ate it as frequently as M devoured the chicken fillet for lunch. We also found a small selection of gluten-free crisps that they both enjoyed on occasion as just a small snack when needed. However, it was on Syros that we were truly amazed by the unexpected plethora of allergy-friendly foods we found in the very small supermarket in the seaside village of Finikas. When we ventured inside on our first day on the island, we were hoping that we might be lucky to find some soya milk for G to drink and were completely blown away by this astonishing selection of dairy-free alternatives, from almond milk to chocolate soya milk, goats cheese, butter and yoghurt, and the one item we had never expected to find there: rice milk.

This tiny treasure trove also stocked a small, but comprehensive selection of gluten-free products including rice cakes for M, gluten-free pasta, bread and biscuits. We bought a couple of different flavours of the allergy-friendly biscuits that quickly became a favourite with G. These were a welcome treat and alternative to dessert for her especially when accompanied by some small slivers of Feta, whilst M enjoyed the opportunity to pick and devour fresh figs from the trees surrounding our villa at the Good Life. Having discovered these unexpected Greek treats, we made an effort to buy a few extra packs of biscuits and rice-cakes alike to bring back home with us to keep the memory of our Greek adventures alive for just a little longer.

Eating Out with Allergies in Greece

It feels a little as if this is becoming a mini-series in itself: a list of the countries where we’ve successfully managed to find a safe way to eat out with food allergies with both children. In the last year, Mike and I have been impressed by the options we have found in both Italy and New York whilst travelling without the children and our summer in Portugal last year was a great success thanks to the freefrom choices we uncovered there. Our decision to venture to somewhere new this August meant we had to adopt our usual 3-prong approach to travelling with food allergies:

  1. Pack an extra suitcase with the bare minimum of everyday essentials that we will need to cater for both G and M in our self-catering accommodation;
  2. Relax the rules a little for M and allow him to enjoy the full Greek experience on occasion, whilst keeping him strictly to his restricted diet the rest of the time; and
  3. Be prepared by doing some research about restaurants in advance and be willing to explain at length numerous times just how restricted his diet is.

Our careful planning ahead meant that we were all able to eat 3 meals a day without too much stress and we achieved some great successes along the way. We had started a new approach to food trialling about 6 weeks before we travelled, whereby we chose 3 foods to challenge M with over a 3-month period and had strategically picked the ones we thought would be of most use whilst we were in Greece. This is the 3rd way of food-trialling we’ve tried over the last 12-18 months, all with the support of our local hospital, and whilst I still have my concerns about whether this really is the best approach to take, it did allow us more flexibility that we’ve had before. M decided he wanted to trial olives, prawns and bananas and these seemed a good fit with our Mediterranean break.

We found several highlights in Athens, including our perennial favourite, the Hard Rock Cafe, where we ventured on one of our more relaxed days to the topic of M’s restricted diet. He enjoyed every mouthful of his gluten-free burger and chips with great gusto and even though the increased dose of medicines we had agreed with his consultant before we went didn’t fully tamper down his body’s response, it was a real treat for us to see the delight on his face when faced with something a bit different to the varieties of chicken, rice and cucumber that he’s become accustomed to at home. The waiting staff worked hard to accommodate our additional requests around making sure the meals were also dairy-free and the vegetables added to the plate were restricted to just cucumber for both children as we had asked.

When you wander through the Plaka in Athens, you are surrounded by a huge array of small tavernas to choose from, ranging in price and, if I’m honest, authenticity. It was surprisingly easy to cater for M at nearly all of these and the ones we ended up eating at were delightfully keen to prove themselves to us. Every menu seemed to contain grilled chicken and rice and it was just a case of just how much of an accompaniment they were able to serve, with most preparing small salads of cucumber, apple and pear. G tended to play it safe and opted for the easy option of steak and chips – or sometimes steak and rice – though we did manage to convince her to try mouthfuls of our more authentic Greek dinners, which she reluctantly had to admit to enjoying despite herself and her preconceived ideas! One evening we even found a restaurant serving gluten-free pasta and G enjoyed a delicious spaghetti bolognaise, albeit in the wrong part of Europe.

We didn’t really eat out too much on Syros as we instead took advantage of the beautiful local produce that Nick had kindly sourced for our pantry at the Good Life and spent time preparing, cooking and enjoying simple meals at our villa. However, we did choose to eat some lunches at the beachside restaurants and this is where having olives and prawns as a menu option really came into its own as M indulged in some delicious meals including those tasty morsels, whilst munching on the Greek rice-cakes we had managed to buy in both Athens and Syros.

Living the Good Life

Are you more “Tom and Barbara” or “Jerry and Margot” when it comes to your approach to life? There’s no way I could let a reference to this unforgettable 70s British sitcom pass without a gentle nod in their direction, but my blog post is actually all about our exceptional retreat in Syros during our recent Greek holiday. Somewhere that embraces the self-sufficient lifestyle of the Goods and yet provides an experience that even the pickiest Leadbetter would struggle to complain about.

The Good Life Greece is owned by the charming and laid-back Nick, who, despite having called Greece his home since 2004, still speaks with a distinguishable Australian accent and, with the help of his sons also set up a number of small businesses in Athens, including our base whilst we were there, the Athens Studios. Escaping the noise and busyness of the capital city, the Syros villas match the peaceful beauty of their location and gave us a chance to recharge our batteries whilst embracing the simplicity of Greek island life.

Our home for the week was the idyllic Balance villa, a traditional stone house surrounded by vineyards and olive groves. Carefully designed to be sustainable and eco-friendly, the villa was simple with an understated luxury that we all enjoyed. The children were welcome to pick vegetables, hunt for eggs and harvest the figs on the nearby trees; and enjoyed every moment as they explored the grounds around the villa. With 2 bedrooms, a kitchen I’d love to have at home, bathroom and spacious living/dining area complete with TV and DVD player, there was more than enough space to house us all without risk of getting in each other’s way. A beautiful stone patio circled 2 sides of the house with amazing sea views, which we enjoyed on our quiet Sunday “at home” when we spent the day playing card games, listening to music and soaking up the sun in absolute peace.

Before we arrived on Syros, Nick and I had exchanged a couple of emails and I gratefully accepted his offer of a pack of local foods to welcome us to the island. I was so delighted by this decision when we discovered the wonderful array of goodies that filled the fridge and pantry. Fresh fruit and vegetables, goats’ cheese, yoghurt and milk for G, local sausage, cooked meals and chicken kebabs for M as well as eggs, fresh bread and, most importantly, local beer and wine gave us everything we needed for the first few days. Nick also hosted a wine-tasting evening mid-week, where he introduced us to a number of fantastic Greek wines accompanied by a spread of delicious local foods. We met our Dutch next-door neighbours, whose 11 year-old son quickly became great friends with both M and G as well as a willing partner-in-crime!

We loved every moment of our holiday on Syros and would go back in a heartbeat. I am particularly tempted by the thought of a Christmas spent there and, who knows, maybe we’ll make it back before too long.

Marks out of 10: 10/10 without hesitation