Category Archives: Personal

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“Tomorrow is the first blank page of a 365 page book. Write a good one.”

– Brad Paisley

Happy New Year! xxx

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Reaching our majority

Another year on and we’ve finally reached our majority! 18 years of marriage, which according to this website, requires a trip to either China or Denmark. We enjoyed our nod to the first when we ate dinner in Chinatown, London on Saturday evening, but today will just be about a meal at home once the children are in bed, a glass of something cold and probably not too much else!

Happy Anniversary Mike – love you always

On the 5th Day of Christmas…

There’s nothing I love more than decorating the house for Christmas, although the last 3 years have each carried their own challenge to being able to achieve that, with admissions to GOSH 2 years in a row followed by a health scare with my eyes last year. This year we’ve all been at home, all been in reasonable health and have all had a part, however small, in bringing the Christmas spirit into our home. Sunday was the day to “deck the halls” at home and M in particular couldn’t wait to get started on trimming the tree. With Christmas carols playing in the background, mulled wine warming on the stove and the advent candle burning down on the mantlepiece, the Christmas season really has begun.

I always feel particularly nostalgic when it comes to pulling the decorations out for our Christmas tree as each bauble evokes its own precious memory. Every year we buy at least one new decoration for each child for the tree and frequently they end up with more than one depending on our travels and on friends and family members who also buy and add to our collection. By the time G and M are ready to fly the nest and have their own homes to spend the festive season in, they will each have a boxful of decorations to trim their Christmas trees. As we unwrap each ornament, the memories of time spent together and journeys made wash over me and there are often stories to share as we reminisce about times past.

It’s hard to pinpoint my favourite decoration as there are so many happy memories encaptured in the beauty of our tree. There’s the small gold bauble with a red ribbon that marks our wedding as I hand-wrote enough for every guest to have one as an alternative wedding favour to celebrate the day. I have 2 handmade snowflakes from a German Christmas market, which my Dad brought back from a business trip and that have a special place in my heart. There are many from our holidays both before and after G and M arrived in our family – China, Australia, Ireland, Canada and even Greece to name but a few. Amongst the most precious are those the children have made over the years, from simple paper and sparkles in their nursery days to the hand-decorated ceramic ones that M made during his last hospital admission.

Today is the 5th day of Christmas and I’m looking forward to the memories we’ll be creating this year as we count down to the big day itself.

FFEOA 2017

This week has been a busy week for me and, for the first time in very many months, my focus has all been on my blog and the allergy and freefrom community, rather than on my day-to-day job. Much to the disgust of both G and M, I abandoned them to my Mum for the week and headed off to London, on my own,  to the Foodmatters Live conference. My planning for these 3 days away was incredibly well-organised, though I suspect I actually have my Mum to thank for that, as I missed out on attending last year and so had apparently looked ahead 12 months and had put the dates on her calendar to make sure I could go. I had then promptly forgotten all about it until she pressed me to confirm whether the children would be staying with her for the week or not.

My main focus was the Awards ceremony on the first night for this year’s Free From Eating Out Awards (FFEOA 2017). Despite the chaos of our household right now as Mike and I are both trying to find a work-life balance that suits us all, I had been keen to be a part of the Judging team again this year and M and G were just as excited by the possibility of finding some new places to eat that would suit us all. Luckily for us, we were able to find a couple of restaurants that we felt could cater for M in particular and were delighted to put them through their paces and see just how well they could meet their allergy and freefrom promises.

The evening kicked off with a quick overview of the plans going forward for 2018, which included some new categories, a simplified entry process and the promise of a monthly newsletter. They also revealed the new interactive map, which shows all the bronze, silver and gold award winners for the last 3 years and links to the all-important judges’ comments, which can help any discerning freefrom diner decide whether to eat there or not. I think this will be a great addition to the FFEOA offering and certainly will be something I recommend to those I come into contact with in the allergy community.

Despite my best efforts on the night itself, my fingers weren’t quite nimble enough and I just couldn’t keep up with tweeting the impressive number of gold award winners that were announced in each category. For any I didn’t manage to congratulate then, my apologies, but from the sounds of it, each and every award was well-deserved. I must make special mention of the wonderful Cafe Nouveau in Frome that we judged last year, who succeeded in achieving another gold award this year and also the Bangkok Canteen in Gloucester, who also won gold this year. Mike, the children and I visited there as part of this year’s judging stint and a review will follow in due course. For a full list of this year’s winners, please visit the FFEOA website.

As ever the best bit of the evening came after the awards had been announced. I was able to spend some time chatting with a few of the lovely friends I’ve met through the allergy world over the past few years, including Natalie of Intolerant Gourmand, Ryan of Borough 22, Ruth of What Allergy? and the Free From Fairy herself, Vicki. All in all, a wonderful evening and a great start to 3 days of learning more about all aspects of the Freefrom and allergy world.

Workplace Bullying

When you hear about bullying, what does it make you think of? Does it bring back bad memories of your time at school?

According to research carried out in 2016 by one of the largest anti-bullying charities in the world, Ditch the Label, between 50 and 60% of young people aged between 12 and 20 in the UK will have experienced some form of bullying in the last year. That, to me, is a frighteningly large percentage, especially knowing that both G and M form part of those statistics; and so do I. Any child who has experienced bullying hopes that it will end when they have new friends, or find themselves in a new class, or when their time at that particular school draws to a close. You also assume that once you’ve grown up and have left education behind you, the bullying will stop, but sadly that’s not always the case. The statistics regarding workplace bullying are much harder to pinpoint, but a Forbes survey in the USA suggested that up to 75% of workers are affected by bullying and a 2015 ACAS study here in the UK revealed the undeniable truth that workplace bullying is on the increase and that many people are too afraid to talk about it.

Having struggled with bullying throughout my school years, I never dreamed that I might experience it again in adulthood and when I came up against workplace bullying the first time, it took me a while to realise and acknowledge it and then to find the courage to deal with it. M had just been born and, due to the difficulties of my pregnancy and his subsequent early arrival, I wanted to work closer to home, finding what seemed to be the perfect job in a small accountancy practice almost literally across the road from where we lived. Unfortunately, the reality of being verbally belittled and my capability as an accountant questioned in front of my colleagues on a daily basis was destructive and I eventually found myself seeking to escape that unhealthy work environment. It was only at the point of handing in my notice that I felt able to be honest with my boss about his bullying behaviour and whilst he was apologetic as he hadn’t realised his words were so damaging, that work relationship had been destroyed and I needed to move on.

I’ve been lucky since then to find myself in jobs working with some truly lovely people, who have been there to build me back up and consequently I have seen my confidence and self-belief soar. Despite what people might think, I am naturally an introvert and am most definitely not a fan of confrontation, but I’ve learned to stand my ground, speak out for myself and defend not just my decisions, but also those of my children and my colleagues. That shy, insecure little girl who wouldn’t say boo to goose still hides inside, but I’ve discovered a strength to speak up and speak out even in situations where my more natural instinct would be to run away and hide, hoping that someone else would be the one to voice their opinions.

Which is why it’s so difficult to believe that in the past year, I have found myself a victim of workplace bullying once again and in a position where it has been much more difficult to address than I could ever imagine. Sly comments questioning the professional ability of both me and my staff, carefully cloaked in phrases that could be excused away as being mis-construed by the individual they were aimed at as well as more blatant challenges of my financial decisions for the business in management meetings that have been ignored by our Executive Director have become an unavoidable part of my working week. Added to that is the deliberate exclusion of me and my team members from a number of workplace events and meetings, some far more significant than others. Exclusion is, without a doubt, one of the hardest types of bullying to deal with and whether I’m my insecure 12-year-old self or a more confident version at 40, it still eats away at what little self-belief I’ve managed to hold on to over the years.

These behaviours have left me struggling to be my usual positive and sunny self in the office, as inside I’ve been slowly crumbling to pieces. I do have a tendency to believe the very best of people, so it’s no surprise that initially I genuinely didn’t think this was a deliberate attempt to whittle away my self-esteem. The gradual realisation that nearly all of these actions have been carried out intentionally, although I still wholeheartedly think that they are reflective of the individual’s own insecurities and a need to defend her role in the business, means that I have distanced myself as much as I possibly can and will not leave myself vulnerable if at all possible.

Of course, my response now is far different to what it was as a child and yet the effects of those experiences are the same. I have been left feeling ignored, belittled and unappreciated and the deliberate decision by my direct line manager to whitewash over what is going on and excuse the behaviour of this bully as being stress-related has naturally impacted on the ongoing working relationship I have with both him and this workplace bully. I feel as if my concerns have been deemed ridiculous, unimportant and as an over-sensitive reaction on my part, which leaves me questioning just how long I can reasonably remain in this post. Unbelievably our workplace policy on bullying requires that “….Initially a member of staff should request that the bully should stop, explaining how it makes them feel either face-to-face or by writing a personal letter or email…“, something I honestly believe no-one being bullied would be able to do, especially when the most senior members of management so blatantly excuse and support the bully along the way.  It takes unbelievable courage to be able to talk openly and honestly about how you’re feeling about decisions being taken in the workplace and, in my opinion, remarkable cowardice on the part of management to dismiss what’s being said as an irrational response.

I don’t know what the next 12 months will bring when it comes to my career, but finding the courage to speak out both in the workplace and on my blog has empowered me more than I ever thought possible. Workplace bullying is real and we should never forget or ignore that truth.

All Different, All Equal

This week is Anti-bullying week and this year the campaign has adopted the tagline “All different, All equal” to promote difference and equality in schools. As the Anti-bullying Alliance’s website states, the idea behind this is to “…help children and young people celebrate what makes them, and others, unique and help them understand why it’s important that every child feels included in school able to be themselves without fear of bullying...” This has struck a particularly resonant chord with me as feeling different to classmates is something that not only do I recall from my own school days, but something I am aware both G and M have felt over the years.

For me, and let me be brutally honest right now, I hated every moment of living with T1D as a teen. Not only was I having to deal with the challenges of impending adulthood and puberty like all of my peers, but my T1D added another layer to the emotional mix that I really didn’t want to have to face. At school I felt like the odd man out. I didn’t really know anyone else my age with T1D and I was the first diabetic in my school. I suffered extreme teenage angst about not being able to buy sweets and chocolate from the break-time tuck shop and that seemingly small thing became a massive problem that I struggled to overcome. My friends accepted my differences far more readily than I did and yet I felt alienated from them. My own anxieties and poor self-image became mountains I just couldn’t scale, particularly when some of the other girls in my school year began to exclude me from friendships that had been there since I was little and threw cruel words in my direction which hit incredibly deep.  Whether they had truly identified my lack of self-esteem as an easy target for their unkind comments and actions or not, I can still recall just how devastating that time in my life was for me. I’m sure that I was not on my own with those feelings, but I felt isolated in a world that seemed to be quite happy without me.

Sadly, G struggled similarly during her Infant school years when so-called friends who had helped ease her move to a new school, discovered that her health issues could be used as a taunt against her and caused her unbelievable emotional pain. Thanks to a fantastic and supportive Year 2 teacher, G was encouraged to tackle the bullies and their behaviour head-on and she learned to stand up for herself, something I didn’t learn until I was much, much older. I know that her gluten- and dairy-free diet still makes her feel too different to the rest of her tutor group for comfort and she has struggled with sticking to the restrictions, especially when her friends are enjoying treats that she would love to be able to eat. We’ve worked to fill her lunchbox with foods and snacks that make her feel a little more “normal” and a part of the crowd, and I will continue to hope that this doesn’t become a cause for bullying as she moves her way through secondary school.

Likewise, M’s complex medical needs have left him being subjected to cruel words and unkind actions in the past, something that is not unusual in the world of chronic illness. Whether it is an obvious physical difference, or something more hidden like T1D or allergies, the sad truth is that children can, and will, be cruel. All children are fighting to find their place in the world and will look to find their footing without regard for those surrounding them and especially not for their feelings. As parents we need to teach our children about the beauty in diversity and encourage them to be kind in their thoughts and deeds. My children are wonderfully unique as are their friends and that is something to embrace wholeheartedly and without reservation. This year I will be making sure that they understand the truth in these words: All different, all equal.

I Am Not a Badge of Honour

I am not a badge of honour,

I am not a racist smear,

I am not a fashion statement to be worn but once a year,

I am not glorification of conflict or of war.

I am not a paper ornament or a token,

I am more.

I am a loving memory of a father or son,

A mother, a sister or daughter each and every one.

I am paper or enamel,

I am old or shining new,

I am a way of saying thank you,

To every one of you.

I am a single poppy, a reminder to you all,

That courage, faith and honour will stand where heroes fall.

– Paul Hunter – 

   

Perfect Faces for Radio

Looking back this evening at some of the photos taking up the precious memory that’s left on my phone, I’ve realised that there have been so many things that I haven’t quite got round to sharing with my blog. As you’ll have noticed, my foray back into the world of full-time work after being made redundant almost a year ago has meant that I just don’t have the time to dedicate to writing 2 or more blog posts a week, but I still want to share many of our recent experiences and so the updates may take just a little longer to arrive on your screens than before.

The first looks back to May, when every year we mark National Eosinophil Awareness Week and for the last 4 years, a big part of my campaign to raise awareness has involved live appearances on our local BBC radio station, talking all things EGID and answering questions surrounding the inevitable interest about M’s extremely restricted diet. Whilst it is always a challenge to think on my feet and answer questions without any prior warning about what the presenter might ask, I relish the opportunity to spend 20 minutes speaking about EGID and what it means to our family to live with it day in, day out to those listening within our regional broadcast area. I have spent 5 years being extremely grateful to those within the EGID community who have been honest about their experiences and take the time to support those who are newly diagnosed and often looking for an understanding that the medical community jut can’t offer. Sharing our story, both through my blog on a regular basis and through these occasional newspaper articles and radio appearances, are my way of giving something back to our EGID family, new members and old.

This year I wanted to change the dynamics of that radio interview if I could and so asked if I could bring G and M along to our local BBC studio to talk about what living with EGID means to them. The radio presenter and his team were more than happy to agree and so it was that on one rather glorious Monday morning, I found myself heading into town with an excited M and somewhat apprehensive G in tow. They had slight nerves that they didn’t know in advance what questions might be asked, but M had sought advice from his Stagecoach drama teacher the previous week and was confident that he knew how to develop his responses to any closed answer questions to avoid giving one word answers. I’ll be honest, I did have some concerns about both children speaking live on local radio: I wasn’t convinced that G would break from her current monosyllabic, teen state and had absolutely no idea what might come out of M’s mouth at any moment. In both cases, I would be hard pushed to exert any sort of control over them once we were on air, except by thoroughly preparing them on our car journey there and then reminding them of my expectations through meaningful glances and subtle eyebrow raises across the microphones!

To my delight, both children were absolute stars and whilst, unsurprisingly, M took to the experience like a duck to water, even G found her confidence to answer some of the questions and we had only one awkward silence to contend with during the 20+ minutes of our appearance. The children spoke clearly and slowly to make sure they could be understood and took their time to give well-thought out answers without leaving the listeners waiting for the dead air to be filled. They both loved every moment of it and have expressed an interest in finding out more about possible future careers that would see them working for the BBC, though G was fascinated by the research being done for the different news programmes and M has a yearning to explore the life of a TV camera man. My big thanks go to our local radio station who were prepared to take a chance on interviewing G and M live on air and for giving us, yet again, the opportunity to spread the word about EGID far and wide.