Tag Archives: Awareness

Heading North for the Bank Holiday

No sooner had we arrived back from London, than G and M disappeared off to South Wales with my Mum and my Aunt for the week leading up to the August bank holiday, leaving Mike and me at home to work, wash clothes and start to sort out what was needed for our bank holiday adventure in Manchester. We travelled to South Wales on Friday evening to pick the children up and spent the night there before heading off to Manchester the following morning. We decided to try and avoid as much holiday traffic as possible, so wended our way across mid- and North Wales to reach our final destination and that decision proved to be the best one we could have made as we saw very little traffic at all. We reached Manchester, and one false start later – who knew there’d be so many Premier Inn hotels in the Salford area? – had arrived and were ready to start our visit.

Sunday was dedicated to the IWM North (that’s the Imperial War Museum for the uninitiated) to support G’s GCSE History studies about the rise of Hitler in the inter-war years and the Cold War period, and proved to be an excellent exhibit to visit. Their audio-visual short films shown every hour were a great addition to everything that was on display and there was a nice mix of interactive elements for the children to do as well. The sections covering the time periods of most interest to us were, perhaps, not as in depth as we would have liked, but overall we enjoyed the time spent there. G and I also took some time to walk around their special exhibit about the Yemen crisis, although M had definitely had his fill of all things history about that point and abandoned the galleries for the cafe with Mike. It was fascinating to see G’s reaction to the photos and displays about this more recent crisis and she was keen to express her thoughts about the responses of politicians and their excuses for not doing what they knew was needed.

Originally we hadn’t planned to do anything for the rest of the day as we weren’t sure how long we would spend at the IWM, so over our lunch, we investigated and discussed where to head next. M was keen to do something “fun as a family” and so was delighted to learn that we could visit EscapeHunt Manchester and try our hand at one of their themed escape rooms. We were lucky to get a booking for their “The Last Vikings” challenge and had just enough time to walk our way from Mediacity across the city to the escape rooms. It’s the first time we’ve attempted an escape room as a family, but is definitely something we will try our hand at again. We had lots of fun, although we failed at the final hurdle and were in the midst of solving the last clue when our time ran out.

Our decision to go to Manchester were twofold, the first being the IWM North, but our second was perhaps the more exciting, especially for G and M. This was the day for their indoor skydive in aid of Over The Wall and despite a somewhat grumpy start from our youngest, we arrived at iFly Manchester with 2 very excited children. Unfortunately, I wasn’t able to participate due to a shoulder injury I sustained at the start of the year, but Mike was keen to try his hand too, so we had booked them a family session which allowed them to split 10 minutes “flight time” between them. I was impressed at what appears to be the natural skydiving skills of my husband and children and the smiles on their faces said it all. Mike and M are both keen to go back and do it again, but G is less convinced, though glad she gave it a try in the first place. All in all, it was a fantastic bank holiday weekend and we were back home for a rest before school went back the following week.

Eating Out with Allergies in London

I wouldn’t usually think to write about where we’ve found to eat out in London as over the years we’ve often frequented one of the very many chain restaurants that we’ve come to know and love, but this time we spread our wings a little bit further and I thought it worth sharing our latest mealtime experiences.

Our Thursday evening dinner was courtesy of that old favourite of ours, Pizza Express, who were conveniently located less than 5 minutes from our hotel in Southwark, though there are many branches you can choose from no matter which part of London, or the rest of the UK, you’re in. In the 8 years or so that we’ve been frequenting their restaurants, we have only had a poor experience on one occasion, when they had run out of gluten-free pizza bases but failed to inform us until we were placing our order. Thankfully, even then, the restaurant staff worked hard to prepare other safe food for both G and M and both children managed to eat well. G  is very much a creature of habit when it comes to her food, so I knew she was likely to order the GF dough balls followed by an American pizza with goats cheese; and so she did. M loves to peruse the menu whenever he gets the chance, but this time chose a meal almost perfectly matching his sister’s, simply changing her goats cheese for the vegan mozzarella instead. The order came quickly, the food was delicious, there was no confusion or hassle about their orders and we left the restaurant with our appetites pleasantly sated,

Breakfast on Friday was a typically low-key affair and eaten in our hotel room as we had done our usual and carried travel containers filled with safe cereal for G and M to eat. M and I managed to find a small Sainsbury’s near to the theatre on the Thursday evening, so had popped in after the show to pick up a carton of rice milk. We have found that this is a routine that works really well for us and reduces the stress of choosing safe breakfast options for both children to eat. M’s only apology was that he had forgotten to research the nearest Starbucks to our hotel so that I could start my day with a coffee, but was quickly reassured when we reached the Globe theatre to spot one just across the street from it.

No sooner had we finished our Globe theatre tour, than M was clamouring for lunch even though it was only around 10.45 in the morning. This was not the result of an overwhelming hunger on his part, but rather great enthusiasm from both him and G as we had discovered a Subway sandwich shop near the Tower of London which stocked GF bread, which was also dairy- and egg-free, and they couldn’t wait to give it a go. During our holiday in Canada last year, we had seen GF bread available at the Subway on Toronto Island, but had not opted to buy one as 1) we had a packed lunch with us and 2) we had rather foolishly assumed that we would be able to buy it at other stores too. We were very much wrong in that assumption and have spent the last 12 months trying to find a shop serving GF bread somewhere in the UK, so you can just imagine how excited they both were to finally try a sub.

We were impressed with the service provided and care taken, even during a fairly busy lunch service during the summer holidays. The staff changed their gloves before handling the GF rolls for the children’s sandwiches – without me having to ask – and there was detailed allergy information available indicating the top 14 allergens present in all of the sandwich fillings and toppings. It was a strangely emotional experience as I watched G and M decide what sandwiches they wanted to try and pick out the toppings they wanted to add to make their perfect lunch. Here were my 15 and 13 year-old children, who have never been able to order at a Subway before because of their allergies, finally eating just like their friends. The look on both their faces as they made their decisions was priceless and their verdict on lunch – perfect!

We had booked tickets on a late train home to give us enough time to enjoy our planned excursions as well as the unplanned ones, and the final trip of our day was to one of our family favourite places to eat, although we hadn’t yet tried the London branch. Do you know where we went? Well, I’m afraid that’s a story for another post.

20 years of #mischiefandmagic

A lot can happen in 20 years.

In the years since our wedding in December 1999, our family has doubled in size and we’ve moved schools, houses and jobs at a rate that has to be seen to be believed. We’ve survived illness and loss within both our families and our friends, and continue to do so on a daily basis thanks to some long-term diagnoses that have oft-times caught us when we were least expecting them. Chronic illness has become a much bigger part of our lives that we could ever have imagined, but with that has also come some amazing friendships, connections and opportunities that we never even dreamed would happen and that, in many ways, I wouldn’t change for the world.

One such relationship that we have all absolutely come to value is the one with the charity, Over The Wall. They have been a phenomenal support to G and M since both first attended their camps in 2016 and are, in an almost unbelievable stroke of serendipity, also celebrating 20 years since they were first launched by UK businessman Joe Woods following in Paul Newman’s footsteps and the development of the Hole in the Wall Gang camps in Connecticut USA in the late 1980s.

So what are we doing to make this a year of note?

As far as our anniversary goes, I’m hoping that Mike and I might manage a night out somewhere special, though celebrating the week before Christmas can make that difficult as we negotiate the huge numbers of office Christmas parties that we inevitably encounter when trying to book a table anywhere without a lot of forward planning.

And, of course, it will come as no surprise that we are also working hard to raise awareness and funds to support Over The Wall’s ambitious plans to take a record-breaking 1,000 children to camp this year. Mike started the year in style with a sponsored polar dip on New Year’s Day and we’ve turned our hands to a few other things – some old, some new – to see just how much we can raise. We followed the “sparking joy” fashion and adopted a Marie Kondo approach to clearing out our wardrobes, committed to giving a regular amount each month and even stood in the entrance of our local Tesco superstore a couple of weeks ago to collect what we could and spread the word about the camps too.

We’ve taken OTW with us wherever we’ve travelled, sporting branded t-shirts, hoodies and bandanas with aplomb and almost quite literally went “over the wall” with them during our visit to Berlin.

G and M have obviously been a big part of many of our efforts, but are now launching an appeal of their own. Their yearning to do something truly spectacular has unfortunately been somewhat hampered by not yet being quite old enough to participate in the activity of their choice, but they have instead picked the next best option in their eyes and will be taking part in a sponsored indoor skydive at the end of this month.

How can you help?

Well, it goes without saying that any sponsorship you can give would be very gratefully received by G, M and OTW, especially if you can help them meet their fundraising target of £200 – scaled back somewhat from M’s original suggestion of £20,000 – by visiting their fundraising page here.

If you’re not able to donate, but live near a Tesco store in one of the following areas*, OTW is one of their Bags of Help Centenary Grants recipients until the end of August and by adding your blue token to their box, and encouraging friends, family and fellow shoppers to do the same, you will help them receive a significant grant that will be genuinely life-changing. Remember “Every Little Helps”, even if that’s by a blue token!

Finally, sharing the OTW message of #mischiefandmagic with friends and across your social media channels will not only help the charity reach even more of the estimated 50,000 children and young people living with serious health challenges across the UK, but sharing our fundraising page will hopefully bring even more cash donations pouring in to help them achieve their goals not only this year, but in the future too.

Thank you!

*OTW is currently starring in stores across: Perth & Kinross, Angus, Stirling, Fife, Clackmannanshire, South Ayrshire, East Ayrshire, Dumfries & Galloway, Scottish Borders, East Lothian, Midlothian, Somerset (inc Bristol), Wiltshire and Swindon.

Mental Health Awareness Week 2019: Body Image

This week is Mental Health Awareness Week (#MHAW19) in the UK and the focus this year is on body image – how we think and feel about our bodies. I’ve talked about mental health in relation to our family before as there is no question that the ongoing challenges of M’s ill health and the restricted diets of both children have impacted not only them, but Mike and me too. Just because I’ve not written about body image issues before doesn’t mean we haven’t faced them and I thought it was finally time to try and put my pen to paper and talk about our experiences honestly.

It’s taken me a long time to become comfortable with the way I look. I am not a size 10 having, as I have often said, passed through it on my way to bigger and better things. I struggled as a teen being taller and bigger than some of my friends and again as a new Mum, when some of my antenatal group bounced back to their size 8 jeans within a ridiculously quick space of time, something I was never going to achieve. The depression that has haunted me since my early teen years didn’t help with my sense of self worth and it has taken me 40 years to finally accept that I am the way I am and that that is enough. That doesn’t mean that I don’t occasionally have a crisis of confidence even now, but I have learned to wear clothes that flatter my shape and can truly step out with confidence when everything comes together to help me feel good about the way I’m presenting myself to the outside world.

There is no question that G is the spitting image of Mike and his side of the family, which gives her beautiful tanned skin and dark hair, although her build is very similar to mine. She has struggled at times with not being as slender as some of her friends and these days complains that she appears to have stopped growing whilst her friends are still inching past her. She is a beautiful young lady on the inside as well as out and we encourage her to find her worth in the way she behaves and reacts to the people who are around her and not her physical looks. We have all heard the criticisms of both print and social media and the airbrushed images that all too often create unrealistic expectations in our children and young people. The increasing popularity of taking selfies and then using social media filters to manipulate the image presented to the world can add to our unrealistic perceptions about the way we should look. I still remember a discussion we had with one of the paediatricians when she was little, who told us that the danger these days is that our perceptions and expectations of body shape and size are such that we fail to recognise when people are a healthy weight for their height and instead view them as overweight. G is learning to eat healthily, keep active, believe in herself and, most importantly, to not constantly compare who she is to her friends.

It is easy to believe therefore that if you’re slim you have no reason to have body image issues, but I can tell you that’s not true either. M is the complete opposite to the rest of us and has always been on the slender side. He is chatty, witty and can ooze absolute self-belief at times, and yet he has struggled with feeling too thin, too short and lacking muscles when compared to some of his friends. He refused to wear shorts during his Junior school years, even when the weather was gloriously sunny and we asked for permission for him to wear jogging trousers rather than shorts for PE – all because he hated the way his legs looked. These days he’s a little more prepared to reveal his legs, particularly when it’s too hot to be comfortable in jeans, but he frequently comments on just how much taller than him many of his classmates are.

Boys can be just as much affected by body image issues as girls can and we’re lucky that our secondary school is very aware of that fact and looks to support all of the pupils in its teaching about these matters. We are all aware that puberty is a tricky time and one that needs to be carefully navigated by all involved. At home, we look to help both G and M grow up with a positive self image and belief as well as teaching them the importance of balanced meals and regular exercise. We also encourage them to talk openly and honestly with us about how they’re feeling about various issues, not just about the way they look, and will help them find answers or solutions if they want. Our youngsters grow up sadly believing all too often that they need to be thin and conventionally beautiful to succeed in this world and I find it devastating that they do not truly understand and believe that there is so much more to achieving success than the way they look.

Pizza and Ballet

One of the Christmas presents we were treated to this year was family tickets to go and see Matthew Bourne’s “Swan Lake” at the Bristol Hippodrome. We have only been to a couple of ballets with the children over the years despite our love of the theatre and my Mum was keen for us to experience this unconventional retelling of this classic ballet. Of course, no family evening out can start without dinner out too and this time round, partly as we were later arriving in Bristol than we’d originally planned and partly because, well, why not, we decided to veer away from our known safe restaurants and look for somewhere new to try.

It’s always a challenge when eating out with G and M because of their dietary needs, but our decision over the last 18 months or so to relax M’s restrictions on high days and holidays in order to find a better quality of life and balance for him means that on occasions like this, we’re able to eat in places where we’re confident he can choose safe ingredients to make a tasty meal. We know that there are a number of restaurants near to Bristol Hippodrome from Pizza Express to Wagamama, so I made the suggestion that we wandered up Park Street to see what else might be available, with our end target being Pizza Express if nothing else seemed to suit.

About halfway up the hill, we stumbled across the marvellous Molto Buono restaurant and, spotting gluten-free pizza bases on the menu, decided to stop there and see how their food measured up to the children’s somewhat exacting standards. It didn’t take too long for G and M to decide what they wanted to eat and were delighted to discover that as well as gluten-free pizza bases, the restaurant also had vegan mozzarella available as a topping. Much to my surprise, G opted for the GF Marinara pizza – tomato sauce, olive oil and oregano – and M chose the GF Diavola – tomato, salami and vegan mozzarella. Mike joined them in trying one of handmade pizzas, whilst I settled on a pesto pasta. The dishes that arrived looked amazing and tasted even better with portion sizes that satisfied even the voracious appetite of the youngest member of our family. I wouldn’t hesitate recommending this restaurant – excellent food, prepared simply, served quickly and all at a great price.

Fully satisfied by our meal and with more than enough time to meander our way back towards the theatre, our evening had started in fine fashion. We all then sat enthralled for the next couple of hours as the story of Swan Lake unfolded before us. Matthew Bourne’s interpretation brings a more modern-day twist to the tale and replaces the well-known Dance of the Cygnets with an incredible male troupe of swans instead. The dancing was incredible and brought real inspiration to both G and M as they watched it in absolute awe, something that should never be under-estimated as M had expressed his concerns about watching a ballet – “…there are no words to explain what’s going on, so how do you know the story-line..?” before it even began.

I think we would all heartily recommend seeing this production, though it turns out that I’m something of a traditionalist when it comes to the setting, much preferring the classic portrayal of the Swan Lake tragic love story. It was fascinating to talk to G and M about their thoughts on the production, with M uncertain as to whether the second half was a dream or not and both expressing the view that the role of the Swan/Stranger represented the 2 sides oft he Prince’s psyche. This was a performance that really challenged everything we knew and expected of a ballet and was a truly amazing experience. Despite my hesitations about some parts of this version, I am fascinated to see how Matthew Bourne has adapted and updated other ballets and hope to be able to see another of his productions soon.

Be my Valentine…and #SpareARose

How did your day start today? With a card, chocolates or maybe a bunch of flowers? A promise for dinner tonight? Or maybe tonight will just be a quiet night in front of the TV.

You can’t have missed that it’s Valentine’s Day today and you may, or may not, be celebrating it.

Whatever your plans, could you please do just one more thing?

By gifting the price of one single rose (£4) to Life for a Child, you will be helping the Diabetes community to “take care of one another around the world” and giving one month’s supply of life-saving insulin to child living with T1D in an under-resourced country.

It really is that easy and what a wonderful gift to share with your loved one this year.

Happy Valentine’s Day!

#FFFA19

It seems almost impossible that a year has passed since my last journey to London for a judging stint at the FreeFrom Food Awards (#FFFA19), and yet, here I am, on the train heading home after another great day of finding some fab free from foods. I feel so privileged to be a part of the judging team and it really is no exaggeration to say that it is easily one of the highlights of my year. Not only do I get to taste and discover some fantastic new products to the market, obviously always feeling very hopeful that I might even find some that are M-friendly as well as delicious, but I have made some lovely friends along the way and the judging sessions are always the best opportunity to do some much-needed catching up over food and a cup of tea.

My day started with “Foods to Go”, which Mike and I judged on the one occasion I let him join me for the experience and which nicely balanced out the sweetness that I knew the afternoon would be filled with. You never quite know what you’re going to get in this category and this year was no different as the first few mouthfuls included dried fruit snacks, soup, noodles, sandwiches and sweet rice cakes! It was a relatively small category for us to make our way through thing – just 16 items to try – which is always a good thing and I was one of the lucky few able to try everything being neither gluten-free or vegetarian.

My highlights of this session were:

Thai Carrot & Sweet Potato Soup: This was a surprise hit for me. I am not usually a big fan of carrot soup as I find it inevitably sweet, but the delicate balance of the Thai spices alongside the vegetables gave every mouthful a tantalising delicious and fragrant flavour. I haven’t spotted this soup on the supermarket shelf before – though to be perfectly honest, I’d probably have passed it by anyway – but I will definitely be looking out for it in the future.

Made Without Wheat Chicken & Bacon Sandwich: Apologies for my failure to get a photo of this, but this was a delicious, well-filled chicken and bacon mayo sandwich, which was not only gluten-free, but also dairy-free and I know will be a definite winner with G. I was impressed by the quantity of the filling as well as the flavour and texture of the bread – you really wouldn’t be able to tell it was gluten-free if you didn’t know. Sandwiches can be one of the hardest things to find when we’re out and about, so this will no doubt become a firm favourite in our family.

Caramel Rice Cakes: These weren’t necessarily the biggest hit in the room due to their to-be-expected sweetness, but I fell in love with them as they’re pretty much safe for M and will give him a great sweet treat that can be added occasionally added to his lunch-box.

This year saw my return to one of my favourite categories, that of Tea-time treats, not least because it was there in 2016 I first discovered the incredible Borough 22, who perfected the most indescribably delicious doughnuts that are safe for both children and are still a regular favourite in our household. I had gone with strict instructions from M to see if I could find anything that might be safe for him, and with a few more ingredients to play with I was hopeful that I might just have some luck. The afternoon session did not disappoint and with 5 different chocolate cakes to taste amongst the 29 products, it was a tough job, but someone had to do it.

My highlights?:

Gluten-, dairy- and nut-free Occasion cake: First of all, we were completely blown away by the appearance of this incredible wedding cake which had been carefully driven to the FFFA HQ for our enjoyment; and then the taste simply took my breath away. Amazing sponge, creamy buttercream without being too sickly sweet and enough sharpness in the jam to cut through the sweetness – utter perfection and one I would definitely recommend.

Tea-cakes: Nothing beats a toasted tea-cake and a cup of tea and it was wonderful to find this vegan and gluten-free alternative for this Sunday tea favourite. Another one of those “I don’t think you’d know it’s free from” treats we got to try and one I’m definitely going to be trying out with G.

Raw Mince Pie: Now, this will be a surprising highlight to just about anyone who knows me as they know that I absolutely hate most things with dried fruit – fruit cake, Christmas pudding or mince pies are not anything I would willingly put near my mouth on your average day. But, this was not your average day and I absolutely had to try a small bit for the sake of fair judging. It was surprisingly tasty and whilst I’ll confess that I wouldn’t necessarily rush out to buy these for myself, I would highly recommend them to anyone looking for an allergy-friendly, vegan Christmas treat.

My thanks go to Michelle, Cressida and Sue for their hospitality today and to all those producers who keep working hard to produce these delicious free from foods that give those living with food allergies, just like G and M, the opportunity to eat the same things as the friends and family safely. Keep an eye out for the shortlist in February and final winners, who will be announced on March 20th.

Young Carers Awareness Day 2019

Today is Young Carers Awareness Day 2019 and the purpose of the day is to raise public awareness of the challenges faced by young people because of their caring role, and to campaign for greater support for young carers and their needs. Young Carers often struggle with mental health problems of their own due to the strains they can find themselves under, hence the launch of their #CareForMeToo campaign.

I was recently invited to write a blog for Over The Wall about the impact of their camps on our family and I chose to particularly focus on the importance of the siblings camps for children like G, who is recognised as a Young Carer locally. I thought I’d take the opportunity to share my thoughts here too.

 “…when one person in the family has a chronic illness, the whole family has it…”

Jamie-Lynn Sigler

When you live with chronic illness you know that it is about so much more than just the disease itself. Pain, exhaustion, medicines, appointments and hospital admissions are often accompanied by a loss of self-confidence, doubts about self-worth and mental health issues that need time, patience and understanding to come to terms with and overcome. As parents to a child with a rare illness that is little known and little understood, Mike and I have had to find a resilience and strength within ourselves to not only support M as he finds his way to understanding his condition and living his life to the fullest, but also to fight those battles that he is not yet ready to tackle himself.

For the last 8 years, since our appointment with M’s first gastro consultant, our focus has been on finding answers and researching ways to give him the best quality of life we can despite the challenges he faces. As he now heads into his teens, we are seeing the fruits of those endeavours as M begins to make his own choices about the foods he eats, knowing full well the reactions he may experience, and taking on more responsibility for his medicines.

You could say that we’re achieving what we set out to do when we got his diagnosis: to raise a young man who won’t let his illness define or constrain him and who believes that he can be successful no matter what; but we have not been alone in supporting M. Family, friends and our local community have walked every step of this journey with us, helping us in more ways than we could ever imagine was possible; but there is one person who has been there since the very beginning, without any choice and yet who loves M unconditionally and is an indisputable rock for him, even when they don’t always see eye to eye.

She is, without a shadow of a doubt, the unsung hero in our family story.

Since the day her baby brother arrived prematurely in her world, G was determined to help out whenever she could. She put up with his incessant screams from what we now realise was undiagnosed pain and looked to comfort him however she could – making him laugh, giving cuddles, reading stories or just bringing him “Cat” when nothing else would do. Like so many siblings to children diagnosed with chronic illness, G has inevitably been side-lined when that illness has dominated family life and despite our determination to make sure she doesn’t miss out because of it, I know there are times when we haven’t got that balance right and given G the attention she deserves and needs.

From the interruption of frequent hospital appointments to badly timed admissions over her birthday 2 years in a row, G has had to take the back seat to M’s illness more times than seems fair and these are not the only ways in which her life has been affected by his diagnosis. We cannot ignore the reality that having a chronically ill sibling has had a massive impact on G and her mental health too. Anxiety, panic attacks, facing fears and anger management issues are all inextricably tied up with the role of being a young person caring for another and it has been crucial we find a supportive environment for her that has taught strategies for dealing with her yo-yoing emotions and provided a safe and understanding outlet for them. Encouraging G’s involvement with our local Young Carers group as well as applying for a place at the Over The Wall Siblings camps have been important steps in recognising the impact that M’s health has had on her over the last 15 years and have helped her feel that we really do understand and appreciate all that she has had to put up with and sometimes give up too.

That time away at OTW was a week for her to be herself, not defined or viewed in her role as M’s big sister and encouraged and allowed her to take time to focus on herself without worrying about him. G came home a different child to the one who had left us, having realised that her life experiences didn’t isolate her in those circumstances and she had found a sense of self-worth that she had been struggling to develop at home and at school. G’s second camp experience saw her develop a confidence and willingness to take on new challenges, knowing that, with a little bit of self-belief and perseverance, no mountain is too big for her to conquer. OTW brought G out from the shadow of M’s ill health, helped her rediscover who she is as an independent individual and gave her her childhood back – and for that I can’t thank them enough.

Polar Dip

Despite the assertions of some Canadian friends that it couldn’t be a “real” polar bear dip without having to break some ice, in the middle of December Mike decided to take part in our local New Year’s Day polar swim. With just a smidge over 2 weeks to prepare for this madness, you wouldn’t be blamed if you thought Mike was completely mad – believe me when I say it was something that went through my mind too – but the reason for it is actually a fantastic one.

You have all heard me talk a lot about the amazing charity, Over The Wall, who provides free therapeutic camps for children with serious health challenges as well as their siblings and families. G and M have been fortunate enough to go to these camps twice each over the last 3 years and the difference it has made to them both is incredible. Since G’s first trip to the South Siblings Camp in 2016, we have taken every opportunity we’ve been able to find to raise awareness and funds for them – from M’s presentation at school to G’s sponsored hair-cut. I’ve talked to more people than I can even begin to count about just how special this charity is and in the last year have been delighted that 2 fellow EGID Mums were successful in their applications for camps too.

2019 marks 20 years since OTW’s first camp in the UK and they are looking to mark that anniversary by being able to send 1,000 children, young people and families to one of their camps. We want to help them achieve that goal, knowing from firsthand experience just how invaluable their camps truly are, and will be spending the year finding new ways to support them just as they have supported G and M.

And that’s why Mike kicked off our fundraising year in style with his Polar swim. He chose to swim in 9° water for 20 minutes – 1 minute for every year that Over The Wall is celebrating this year – and we set a tentative target of £200. Thanks to the generosity of friends and family, Mike not only more than managed his New Year’s Day dip, but also raised a fantastic £223!

If you’re able to give even a small amount, I know that Over The Wall will make very good use of it and you will be helping enrich the lives of young people living with health challenges, just like G and M. You can donate via their special 20 years donation page here.