Tag Archives: lockdown

Awareness in Lockdown – 7Y2D COVID-19 Diaries Week 9

This week has been a focus for raising awareness for 2 causes close to our hearts: National Eosinophil Awareness Week (NEAW) and Mental Health Awareness Week (MHAW). It somehow feels apt that these two go hand-in-hand this week as we have so often experienced first-hand how closely linked life with EGID is with the mental health well-being of all in our family. This year that is even more important as so many of us are struggling with the changes that the coronavirus lockdown has brought with it and none more so than the young people in our household.

National Eosinophil Awareness Week: We have been very active in raising awareness about eosinophilic diseases for a number of years, but decided to start taking a step back from that last year. Eosinophilic Colitis (EC) was the initial diagnosis that we received for M all those years ago from his consultant at GOSH, but in recent times, the diagnosis criteria for this condition have faltered and existing diagnoses have been actively questioned by many within the medical community. These days conditions such as mast cell activation syndrome (MCAS) have been bandied about in relation to M, but ultimately the root cause of his health problems still remains a mystery to us all. As I’ve said so many times, having a name to put to his health issues has helped us all, even when very little is known about it, and I continue to use both his original diagnosis of EC and the newer one of MCAS when filling in paperwork or talking about M with other people.

Despite our own uncertainty about whether EGID is the correct diagnosis for M or not, I will always continue to encourage and support the fundraising and awareness-raising efforts of organisations seeking to research and understand this family of conditions more. Lockdown maybe stopping us doing anything active to raise awareness this week as we have in the past, but it’s good to be able to do my bit even from within the constraints of my own home.

Mental Health Awareness Week: Mental health well-being has been a buzz word in our household for a number of years and never has that been more important than now as we see the impact of 9 weeks in lockdown on us all. I’m a happy introvert, who enjoys spending time in my own company and so, in many ways, lockdown life is suiting me quite well. Regular contact with my work colleagues through Zoom and conference calls, webinars and online catch-ups with other friends is keeping me in touch with the outside world, which is especially important at a time when my T1D is keeping me at home.

However, I see a greater effect on Mike and the children and I think a lot of that is due to the changes to their daily routines. I am still working 9-5 every weekday, albeit from home and more often 8-7, but the 3 of them are going through a very different experience to me. Mike was furloughed from his job as a chartered surveyor on 1 April and for someone who is very used to being out and about as he values or surveys properties every day, the restriction of staying at home has been difficult. He is also much more of a social bug than I am, so not having daily face-to-face time with anyone other than the children and me has also taken its toll. However, that being said, the online capability to chat to family and friends across the world is something he has definitely embraced, even taking part in his regular whiskey-tasting evening via Zoom the other night!

As for the children, well G and M are almost a perfect reflection of Mike and me. G is comfortable entertaining herself and being in her own company, whereas M thrives on spending time with his peers as well as being constantly active and mentally challenged by them. Both have found lockdown difficult and we have worked, and continue to work, hard together to find the best outlet for their emotions as well as effective ways to meet their social needs. Chatting on WhatsApp or connecting via the PS4 has been a good solution and both are also having tutoring sessions via Zoom or MS Teams every week. This connection with people from outside of the family has been key to giving them something that is a very faint semblance of what they’re used to experiencing daily. Keeping them in a routine has also been important as Mike and I are very conscious that their return to school in September, after the best part of 6 months home-schooling, will exhaust them physically, mentally and emotionally from the minute they step through the school doors, if not before.

The buzzword for MHAW has been Kindness and considering what random acts of kindness you can do for others has been much encouraged. However, I think it’s key to remember that, whilst showing kindness to others in all situations is important, so is showing kindness to ourselves. We truly are living through extraordinary times and we shouldn’t feel guilty if we are not coping as well as we perhaps believe we should. Be that by taking some time to do something we love to do as an individual – bubble bath anyone? – or spending time relaxing with our family or even reaching out to a friend because we just need to talk, being kind to ourselves will improve our own well-being, which is something we all need right now.

The Box Bakery

At the end of April, we enjoyed a great evening joining in the virtual awards ceremony for the FreeFrom Food Awards 2020 (#FFFA20). It’s always great fun to go to the evening as not only do I finally get to share with the rest of the family the gold winners from the categories I’ve judged, but it’s also a fantastic opportunity to discover some of the other great products that might prove to be safe for M and something new we can introduce to his food repertoire.

This year was no exception, despite lockdown meaning that the Awards could only be held via Zoom and there were a couple of products I made note of to search out as soon as the celebrations were done. Thanks to the power of shopping on the internet, at least one of these new discoveries has already arrived with us, gone through quarantine and been used. Winning a gold in the innovation category, the Gluten free Wholegrain bread mix by The Box Bakery fascinated us all. The idea that we (by which I of course actually mean G and M) could whip up a safe loaf with nothing more than the box, the oven and some water obviously meant that it was something that had to be tried as soon as I could get my hands on it.

In almost no time at all, the boxes arrived at our house and with VE day celebrations looming, it seemed to be the perfect opportunity to get M started on his first loaf of bread, especially during lockdown. I left him to it, with some minimal supervision from Mike, and the end result was absolutely brilliant. It really was as easy as it…well…as it says on the box. He measured and added the water, gave it a good shake and popped it into the oven. The final loaf needed a few minutes more than was recommended, but it was worth the wait. Both M and G were delighted with the loaf and it’s nice to be able to add another safe bread to M’s diet. The flavour, texture and ease of baking all scored highly in M’s books and he was especially delighted by the crust. He also much preferred it fresh from the oven, but was happy to finish it off in sandwiches the following day.

M’s marks: 9.5 (he deducted the half point as it wasn’t as good once it was “cold”!)

Food Boxes – 7Y2D COVID-19 Diaries Week 8

One of the many things that have changed hugely during lockdown for everyone has been the process of buying food and this has been particularly challenging for those families living with food allergies. In the initial rush to panic buy the bare essentials – loo roll, pasta and flour to name but a few – those individuals who needed to buy freefrom foods found their usually more plentiful supplies being depleted by others who chose to buy allergy-friendly when their “normal” stocks ran out.

Thanks to my hoarding tendencies and the regular “big” shop that I do twice a month, we had enough safe milk, bread, flour and pasta to keep us going for several weeks and initially had no problems in buying more rice milk as that seemed to be the one dairy-free milk alternative that no-one else wanted. However, for a family who goes through around 40 litres of rice milk a month, the restrictions introduced where we could only buy 3 of any product proved to be a little more challenging in keeping our cupboards full. G and M have been brilliant at switching to drinking water, or occasionally squash, during the day, rather than the huge quantities of milk that they both prefer, which has certainly helped to eke out the supplies we have had at home.

Its been a case of not only trying to find the food you need and can eat, but also how you actually do your regular food shop. This has been especially true for our household as my T1D places me squarely on the clinically vulnerable list and as such, the advice has been clear that I should be staying at home. Fortunately for us, we already do a lot of our food shopping online, using our local food co-operative for our fresh fruit, veg and meat as well as Sainsburys and Ocado for our store cupboard essentials and, most importantly, the more specialised foods we need to keep G and M healthy and safe when they eat. The increased need for home delivery caused huge problems for many people at the start of the coronavirus crisis, but as we all settled into our new sense of normal, supermarkets and other food suppliers rose to the challenge of how to help more people in any way that they could and found a solution by introducing a variety of food boxes.

Now this will come as no surprise to anyone in the allergy community, but it took a little longer for these same organisations to realise that there was a whole group they were forgetting to cater for and now there’s a reasonable mix of freefrom boxes available too, though they do predominantly focus on the gluten-free market as far as I can see. We have ordered 3 different food boxes over the last few weeks and I thought I’d share our experience and opinion of each in turn:

Morrisons Food box (starting from £35) – one of the first food boxes to become available as far as I am aware and as the weeks have gone on, they have expanded their offering beyond the basic meat or vegetarian essentials boxes they started with. I ordered a meat essentials box, which arrived promptly and was well-packaged, including ice packs to keep the fresh produce chilled until I had time to put the food away. Our box contained, as it said, the essentials needed to keep us eating well: milk, bread, pitta breads, pasta, butter, cheese, meats, fruit, vegetables,tinned goods and the much-need pack of loo rolls were all included in it. Whilst it wasn’t the solution we needed in terms of safe foods for the children, it kept Mike and I going for another week at least and supplemented well what we already had in the house.

Marks and Spencer Food box (starting from £15) – with Easter coming so quickly after the start of lockdown, my Mum had managed to buy dairy- and soya-free chocolate for G and M, but apologised to me that she hadn’t had time to buy an Easter egg for me or Mike. Instead, she sent us a Marks & Spencer Fruit box and what a wonderful treat it was when it arrived. Again, it was a well-packaged delivery and contained a great variety of fruits to satisfy all tastes within the family. Whilst we order what I would term as our basic fruits every week (apples, bananas, oranges), the box also contained some more exotic fruits which, to put it simply, brightened my day. We received a plentiful supply of those regular fruits, which are always needed as we’re living with a 14 year old who lives for his regular smoothies and has a growing appetite at the moment, but I enjoyed the fresh mango and pineapple as part of my breakfast or lunch for a few days too.

Doves Farm Gluten-free Food box (£25) – this was an unexpected find, but a much welcome one. Surprisingly, I hadn’t seen anything mentioned about it through my usual allergy community social media platforms, but rather spotted it as a photo and post by an old friend on their FB feed. Discovering a box that not only catered amazingly for the gluten-free needs of our household, but also included 3 bags of safe flour was amazing and I couldn’t wait for this one to arrive on our doorstep. Add in the pancake batter mix, boxes of cereal and 8 delicious cereal bars that are safe for both children, there really was nothing to complain about. It was also great to find a new safe snack for M and I will definitely be looking to buy the apricot freee oat bars again.

Getting Back to Nature – 7Y2D COVID-19 Diaries Week 7

One of the advantages of living in a village surrounded by expansive fields and glorious countryside is that our walks for the government-mandated daily exercise are many and varied. During the week Mike and I tend to venture out in the evenings once my work day has come to an end, although we tend to stick to the same few routes which are long enough to reach at least 10,000 steps and safe enough for even my poor eyesight to manage as dusk falls. G and M spend their time out in our garden: running around, climbing trees, building obstacle courses and bouncing on the trampoline as well as performing regular dance routines inside and out, from G in particular. However, at weekends, we insist on taking both children out with us and go for a much longer explore, along numerous trails which have taken us past our village’s Jubilee stone, through the woods in just about every direction you can imagine, across the fields to the next village over and past our farm neighbours to the fishing “lakes”, railway line and beyond.

Mike and M have taken their cameras with them on several occasions, seizing the opportunity to snap the wildlife, flowers, trees and anything and everything else we’ve come across along the way. M got some wonderful photos of the local bluebells covering the forest floors recently and has even tried his hand at taking pictures at night, including of the impressive pink moon that graced our skies a few weeks ago. Even when the camera hasn’t been packed for the trip, M can often be found using his, or my, mobile phone to capture what he spies as we walk and has achieved some amazing shots this way too.

These walks have been a great chance to spend some time together as a family and we always make sure that we have supplies with us to allow a stop for a drink and a snack on our journey. The beauty of our small village is that we rarely come across anybody else and, even when we do, there’s more than enough space to pass whilst following social distancing guidance. We’ve discovered more of our local area than in the 10+ years we’ve lived here so far and have been able to experience nature unlike ever before. Being able to watch 2 beautiful deer running and leaping through the fields alongside us last weekend was simply fantastic and whilst nobody managed to capture the it on film, I’m glad we were able to see and enjoy it without a lens or screen in the way.

Virtual Events – 7Y2D COVID-19 Diaries Week 6

Somehow we find ourselves at the end of yet another week in lockdown and, as I continue to listen to the daily government briefings, it’s hard to imagine when lockdown will start to ease and what that might even begin to look like. Nor do we really know when things can begin to return to even some semblance of what we now consider as life before coronavirus. Here at 7Y2D HQ we continue to try to follow a routine each day with G and M, who start with a morning of school, stop for lunch and then spend the afternoon outside or doing other activities such as playing board games or practising dance routines. Being stuck at home for 6 weeks has started to take its toll a little on everyone, so this last week has seen us joining in some virtual events that reflect activities that we would do normally do in our everyday lives.

First, was last weekend’s 2.6 challenge – a charity initiative to replace the annual London Marathon. Now, I’m not going to pretend we have, or ever have had, any aspirations to take part in the marathon itself, but we are avid fundraisers and this challenge was a great opportunity to get both children flexing their brain cells to think up something new to do. Our charity of choice was, of course, the fantastic Over The Wall, focus of our fundraising for several years now following G and M’s experience at their camps. The 2020 camps have had to be cancelled due to coronavirus, but they are seeking to #savethemagic and launch “Camp in the Cloud” for all camp applicants instead.

From last year’s indoor skydiving to G’s dramatic hair cut a few years ago, we’ve tried our hand at a lot, so it took some serious consideration for both children to dream up a new challenge. G quite quickly settled on 262 sit-ups (well a marathon is 26.2 miles after all) and eventually M chose to attempt 262 seconds in plank. Neither managed their challenge in one sitting, but they did it and should feel rightly proud that, even during a pandemic, they have found an alternative way to support a charity that has supported, and continues to support, them.

Our second virtual event of the week was yet another annual one, this time the awards ceremony for the Free From Food Awards 2020. Usually held in London, instead the fabulous organisers of the awards took to a virtual ceremony, which started with an amazing Zoom “drinks and nibbles” ahead of the main event itself. With over 80 participants at one point, the Zoom breakout rooms proved a great opportunity to network a little and meet some new faces as well as spotting old familiar ones from afar. The awards ceremony is always a glamorous affair and so the whole family decided to dress up for the occasion. Dresses were donned, make-up applied and jewellery was carefully picked out to compliment the outfits. I even convinced myself to put on a pair of heels for the first time in weeks, though I will confess they didn’t last for the entirety of the event!

G and M put to good use some of those cooking skills they’ve been honing over the last 6 weeks and produced an excellent free-from buffet, fit to rival that usually enjoyed after the winners are announced. We didn’t have many of the gold winning items* at home, though I did enjoy the dairy- and soya-free chocolate-dipped strawberries that were beautifully crafted with a little help from Mike and took me back to my confectionery judging in January, what now seems like practically a life-time ago. All in all, has been a good week and the introduction of these new activities added some much-needed variety to what has quickly become everyday.

*you can read more about the big success stories of the #FFFA20 here and can even experience the ceremony itself by watching the presentation here

Honing lifeskills – 7Y2D COVID-19 Diaries Week 5

One of the unexpected advantages of living in lockdown has been seeing G and M start to take on a little more responsibility at home and honing some important lifeskills to see them surviving when they hit adulthood. I started with expecting them to fend for themselves at lunchtime, avoiding too many snack-based choices and including some healthier options to ensure a relatively balanced meal and, after a first week of moans and groans about what they were eating for dinner, sat them down to meal plan their dinners for the following week. They had to work together on agreeing meals that they would both enjoy and, where a compromise couldn’t be reached, settling on something that would be similar, but different. An example of this was the great lasagne vs. macaroni cheese debate, as G dislikes the texture of lasagne, whilst M would choose to eat anything but macaroni cheese. They agreed to disagree and so have one night in the week where they eat their own preferred pasta option.

Whilst planning their menu for the week ahead, G and M also had to take into consideration what staples we had in the house and what would need to be added to our weekly food delivery. We have been using a local food co-operative for well over a decade for our fresh fruit, veg and meats and they have been great at continuing to provide their food delivery service during the coronavirus crisis. The natural next step from meal planning was to get them more involved with cooking dinner as well, building off the cookery lessons they’ve both had at school. They were already well-versed in prepping their own fruit and veg for a meal, but they can both now competently fully make some of the simpler meals as well as working alongside either Mike or me with the more complex ones.

G and M have an undeniable sweet tooth and the last few weeks have been a great opportunity for them to flex their baking muscles too. The interesting thing has been that they have worked both together and independently when it has come to choosing and making their sweet treats. The starting point has almost always been to see what recipes they can find on my blog and then checking if we have the ingredients in the kitchen cupboards. So far, we’ve enjoyed chocolate cookies, shortbread and carrot cake and I can’t wait to see what they whip up next.

The great thing is that G and M are not only learning to cook and bake, but they’re also honing their skills in following a recipe and realising when sometimes it might need to be tweaked slightly to make the perfect dish. They’ve discovered the benefits of menu planning and experienced the frustration of when a key ingredient is missing from the store cupboard and needing to think on their feet to find an alternative. They’ve learnt to really work together, to listen to and respect what the other is saying and, when a compromise can’t be found immediately, to walk away and give each other space. I think that they’ve also discovered that cooking and baking can bring a much-needed therapeutic release from the tensions that we’re all experiencing from living on top of each other in uncertain times and re-centre their sense of emotional and mental well-being.

A Night Out Quarantine-style – 7Y2D COVID-19 Diaries Week 4

As many of the regular readers of my blog will know, there is nothing we love more as a family than a night out together, mostly at the theatre, though a trip to the cinema comes in a close second, especially when there’s a meal out involved too. We may be *only* 4 weeks into our COVID-19 lockdown, but there is already a small number of shows that have been missed: “A Christmas Carol” and “Macbeth” to help with G’s GCSE English Literature revision as well as the Christmas present we’d all been very much looking forward to, “Pentatonix” at the Apollo Eventim Hammersmith at the start of April.

The entertainment industry as a whole is making a huge effort to continue doing what they do best and are giving the general public the unprecedented opportunity to access a huge number of plays, musicals and even mini concerts through various social media platforms and I thought I’d share some of my favourite ones with you:

Gary Barlow’s #thecroonersessions: I have absolutely loved these sessions on Facebook, which see him performing some big hits with some big name stars and I would, without a doubt, recommend them to anyone looking for some great music to listen to. I’d be hard-pressed to pick a favourite, but his sessions with Ronan Keating, Alfie Boe and Matthew Morrison are definitely in my top ten.

The Shows Must Go On!: Thanks to Andrew Lloyd Webber’s new YouTube channel, we’ve been able to spend Saturday nights at the theatre to enjoy a musical. It kicked off with “Joseph and His Amazing Technicolor Dreamcoat”, which had us all singing along without worry about what the people in neighbouring seats might think. M dressed up for the occasion in his best suit jacket with pyjama trousers and we even squeezed in an interval ice-cream halfway through the show. Unfortunately we just missed out on seeing the arena tour recording of “Jesus Christ Superstar” last weekend, but are definitely looking forward to “The Phantom of the Opera” this Saturday night. These shows are available on YouTube from 7pm on Friday evening for 48 hours and are announced weekly.

Disney+ Channel: Like thousands of others across the UK, and probably the world, we have signed up for a year’s subscription to the Disney+ channel, which has given us access to all things Disney as well as some unexpected extras such as the National Geographic channel. We have designated a “Disney” day each weekend, where a selection of Disney films are chosen to be watched, or in many cases, re-watched. So far we’ve enjoyed all 3 “High School Musical” films, the “Pirates of the Caribbean” saga and some more traditional animated films including “Moana”, “Hercules” and “The Little Mermaid”. It has also allowed both children to revisit some of their favourite Marvel movies over lunch after a morning of school work is completed.

Virtual Quiz Nights: this is not something we normally do, but what started as a fun way for G and I to spend some time with our heads together on a Friday evening has now morphed into a riotous event for the whole family. We kicked off with the “Friends” quiz a couple of weeks ago, were infinitely more successful at the Disney quiz in the second week and are now reading up in preparation for tomorrow’s “Harry Potter” quiz, a topic that I’m hoping my daughter will excel in as it’s definitely not part of my wheelhouse. It’s been fascinating to see who knows the most about the different quiz rounds – who could have imagined that M would have a seemingly faultless knowledge about what years Disney films were released as he managed an almost perfect score.

What have been your alternatives to nights out whilst in quarantine? Have you become an avid watcher of the wonderful productions of the National Theatre, or have you found something else to do? Please share!

“It’s school kids, but not as you know it” – 7Y2D COVID-19 Diaries Week 2

Two weeks into the UK-wide COVID-19 lockdown and we are all slowly adjusting to life as we currently know it. Everything was turned on its head a bit this week, when Mike was furloughed from his job in line with the government’s job retention scheme. This didn’t come as a particular surprise to us as so many businesses are having to consider carefully how they can best weather this storm, but it does mean that the dynamics in the house have changed as Mike adjusts to both life as a house-husband and the nuances of how I like my day to unfold when at work.

G and M are currently doing okay with the sudden and continued disruption to their daily routines, though the end of the week saw tempers fraying a little as they spend almost every waking moment in much closer proximity to each other than they’re used to and with no real end in sight. Our dining room has become their school room every morning until lunchtime, when they can then close the door on their virtual lessons for another day. Their school work is more challenging not just for both of them, but also for me as I try to juggle numerous conference calls, zoom meetings and my own workload with their needs of support and guidance with the work being set for them online.

G is capable of being reasonably independent with her learning and has faithfully put in 2-3 hours every morning on continuing her GCSE revision timetable. By the end of the week, school had added work plans to prepare the Year 11 students for their A-levels due to start in September, so, having asked me to buy the pyschology textbook for her, G will be beginning the introductory tasks set to prepare her for those courses.

M similarly is working really hard at the lessons and homework being set for him, but is inevitably finding the quantity of different notifications he receives overwhelming to cope with on a daily basis. We have talked about the best way for him to work through everything that has been set and agreed that a balance between those tasks with the earliest due date and those he’s most interested in is the best way to go. He is completing the online tests and either uploading or emailing his completed work for his teachers to check and review. I have been impressed with his attitude to approaching his school work and he is keen to not miss out on his learning by not completing what he needs to do.

Their afternoons are spent with a mix of outside exercise and some much-needed fresh air, alongside spending time on their electronic devices. There’s no question that they are spending more time in front of a screen than we would normally allow, but their phones, and even M’s PS4, have become invaluable tools for staying in touch with their friends. Whilst G is happy spending time on her own and exchanging occasional text messages with her closest friends, M very much misses the daily interaction with his school mates. A much-needed gaming session on Friday evening allowed

him time to catch up with a few of them and he was unquestionably happier for it.

I’m not really sure what week 3 will bring for us all. It’s technically the first week of the Easter holidays, but we’ve agreed to keep going with a few hours of schoolwork whilst we’re in the midst of this weird hybrid of school-holiday-home-life. I’ll still be “going to work”, though probably in Mike’s home office now that he’s on furlough and Mike will hopefully complete a few of those jobs that have been lingering on what my wonderful Canadian sister-in-law calls his “honey-do” list.