Author Archives: bluesingingdragon

About bluesingingdragon

Mum to an EGID son and a food allergy daughter. Full-time accountant and newsletter editor for charity

Rediscovering Mozzarisella

Three years ago, as this post reveals, I discovered Mozzarisella at the Allergy and FreeFrom Show, which was received with mixed success by my discerning youngest foodie. M enjoyed the flavour when it was added as a topping to his pizza, but he was less certain by its slimy texture and whilst that first block bought was eaten, we didn’t bother buying it again. However, as we head into the third year of M’s heavily restricted diet, he’s become more keen to explore any food that can be considered safe for him to enjoy and has been asking for a retry of this rice-based cheese.

I honestly can’t remember if the range of cheeses was as extensive then as it is now, but I was impressed to discover 6 varieties of Mozzarisella and whilst they can’t all be considered safe for M, there was enough choice for me to pick 3 I thought might make a difference to mealtimes – the original mozzarella-style, the cheddar-style slices and cheese slices with basil. I didn’t tell him I’d ordered the cheeses until the day they arrived in the post and it seemed a sign of success when the parcel reached us on his birthday. He was so excited to unpack the box, treating it very much as an additional and unexpected birthday present, and struggled to decide which type to try first. At the end of the day, it really didn’t matter as all 3 of those choices were a big hit and the sliminess appeared to no longer be an issue.

M’s mealtimes have really been revolutionised, from being able to have “cheese sandwiches” (rice-cakes and mozzarisella cheese slices) in his school lunchbox to cheesy pasta for dinner and we have made a huge stride forwards to him feeling that his meals are a lot more like those of his friends. I’ve just placed another order for more cheese at the great Veggiestuff website and have decided to put their cream cheese alternative to the test too. It might seem like only a small thing to many, but rediscovering Mozzarisella at this point in time has proved a much-needed boost to his flagging spirits, now I just need to revisit and reinvent pizza for him too!

Every Cloud…

Easter weekend, and a piece of bad luck combined with a chance encounter led to the discovery of an absolute hidden gem that we wouldn’t have discovered under any other set of circumstances. G, M and I were enjoying a Saturday out and about, when an unexpected puncture disrupted our day and found us searching for the help of a Kwik Fit centre in the small North Somerset seaside town of Clevedon. The staff warned that it would take a couple of hours to replace my tyre as I was at the back of a somewhat lengthy queue and so the children and I headed in the direction of the town centre to see what we could discover whilst we were there.

Shrugging off the unwelcome stress of the situation, we enjoyed the sun as we chatted and walked together, with G and M laughing and sharing their thoughts on just about any subject that crossed their minds as we wandered the streets. However, the lack of a prompt lunch soon began to catch up on us all and following the advice of the cashier at a nearby shop, we found our way to a local café to see what, if anything, we could have for lunch. My expectations were low and I had managed to pick up a pack of rice cakes that M could eat, whilst I kept my fingers crossed that I might be able to buy something that was not only safe for G, but that she’d eat as well. I could never have imagined the ultimate success story that was about to unfold before us.

Café Fusion is an unprepossessing cafe in this lovely seaside town, tucked away on Old Church Road, nestled between a hairdressers and a charity shop. I took a quick glance at the menu in the front window and didn’t hesitate to enter the minute I spotted the large number of gluten-free sandwiches so clearly on offer to customers. It didn’t take long for G and me to decide what we were going to eat – an egg mayonnaise sandwich on toasted gluten-free bread for G and a cranberry, bacon and brie one for me. M took a fancy to the Apple Tango in the fridge and a quick perusal of the can suggested that this would be a great option for him to enjoy alongside his plain rice cakes. Not an exciting lunch by any stretch, but I hoped that it would fill a gap as a temporary measure at very least.

The waitress was understandably confused that I only ordered 2 sandwiches for the 3 of us and I soon found myself explaining the situation and that M is only able to eat a handful of foods on a regular basis. The chef had obviously been listening from the kitchen and popped his head around the door to ask what M’s safe foods were. Within minutes of me listing the 6, he offered to whip up a serving of plain steamed rice, plain chicken and fresh cucumber for M’s lunch. I couldn’t believe my ears that this tiny cafe was able to offer a completely safe meal without any fuss, something that has never happened without the careful planning and implementation of strategic military-esque manoeuvres beforehand. M was thrilled to hear that he could eat a proper lunch alongside G and me and couldn’t wait for his plate to appear. The food when it came was absolutely delicious and the sight of 3 empty dishes was all the indication needed to show just how good that unplanned lunch was.

It absolutely wasn’t the Easter Saturday the kids and I had in mind when we set out that morning, but it only goes to show that every cloud has a silver lining, even when it comes to complex dietary requirements.

 

A touch of Disney magic

Three months since Christmas and nearly all of those festive treats have disappeared from the kitchen cupboards to be replaced with Easter ones instead, but last weekend G finally got to enjoy her Christmas present, just in time for the Easter break. Having waited so long for the day to arrive, we decided to make it into a mini family celebration,  starting with a car journey to Cardiff with G and M wiling away the time singing along to the Cats soundtrack. Once we arrived, we started with a brief stroll into the City centre, looking for the perfect place to stop for an early tea.

I had done a little research before we left home as I was keen to find somewhere new to eat and was hopeful that Mexican chain restaurant, Wahaca, might be able to provide us all a dinnertime treat. Before we were led to our table, I spoke briefly to our hostess about the somewhat complex dietary requirements we have at the moment and was assured that she was confident that they could put together a safe meal for us. I took my seat, clutching their comprehensive gluten-free menu and accompanying allergens listing to study whilst we tried to choose our dishes. Wahaca is a new dining experience for us all and we were hard pressed to know where to begin with our choices, especially as we had no real idea about portion size.

Mike and I opted for their Mexican Feast to share, which is made up of a number of smaller portions from the menu, including tacos, quesadillas, tostadas and empanadas, and was more than enough to fill us before we reached our final destination for the day. I was impressed with their gluten-free menu, which explains that there are a mix of dishes available, some that are completely gluten-free, whilst others are suitable for those with a gluten intolerance. G pondered the menu for a long time and struggled to reach a decision, not least because so many of the dishes include dairy as well as a spiciness that she would prefer to avoid. In the end, she actually ordered from the Kids menu, where she could have grilled chicken in soft corn tortillas. There were a few too many vegetables adorning her plate for her liking, but she did eat the rest in fairly quick fashion.

Our new approach to food challenges means that M can occasionally add an extra into his dish and I had my fingers crossed that we might be able to combine a little onion to his meal to add some flavour, but unfortunately their green rice included vegetable stock and garlic as well,
which would definitely be a step too far at the moment. After a lengthy discussion with the restaurant manager, M opted for a double portion of grilled chicken, cucumber and apple, all washed down with a Virgin Mojito, although the last didn’t quite hit the mark. Our meal was nicely finished with a dairy-free hot chocolate for G and a coffee for me. We were once again disappointed by the lack of choice when it came to dessert and instead decided to give it a miss and head on to our final destination.

Dinner done, it was off to the Cardiff Motorpoint Arena for 100 years of Magic marked by Disney On Ice with one very excited young lady and a slightly less certain younger brother. G has been desperate to go to see Disney on Ice for a long time and the evening really was fantastic as she loved every moment of it. Despite his initial reservations, M was equally spellbound, even during the lengthy part dedicated to the story of Frozen. From everybody’s favourites, Mickey and Minnie Mouse, to Tiana and Prince Naveen from modern classic, The Princess and the Frog, there was more than enough to keep everyone entertained. The skating was superb, the spectacle fantastic and the songs had many in the audience clapping and singing along. G didn’t stop smiling the whole evening and it really was a Christmas present worth waiting for without a doubt.

 

OTW Siblings #Take Two

This time last year, this happened:

and since the start of February, when the email finally arrived in my inbox confirming that G would once again be heading off to the depths of Dorset for the fabulous Over The Wall South Siblings Camp, the clock has been counting down. I’m surrounded by reminders of this amazing organisation wherever I look, from the screen saver on my phone to the calendar on my desk at work and it’s reflected every time I hear G or M, or sometimes both, bursting into a song from their time away at camp.

The next 5 days are going to be busy ones as I wash, iron, sort and pack G’s clothes for next week. We need to make sure she has enough for every eventuality – sunny days, wet weather, swimming, archery, arts and crafts, the talent show and the all important disco. Unlike last year, when she refused to even consider being part of the talent evening until she got there and then taught her team, the totally epic Purple Girls, a dance routine to Omi’s “Cheerleader” track; this year G is torn about which talent in particular she wants to perform. It could be a clarinet solo, which M would love her to do, or it might be a new dance routine, this time with costume. I’ve told her she really needs to have made her decision by the weekend, so I can ensure she’s got everything she wants with her when we set out on Monday. We’re so thrilled that G has the opportunity to benefit once again from the fantastic work done to support siblings of children with health challenges and I can’t wait to hear all about this year’s week away from home with OTW.

You may remember that since G’s adventures with Over The Wall last year, we have been raising awareness and funds for this incredible cause and I created this video to show our reasons for supporting them:

Birthdays, exams and an awards ceremony too

The last 10 days have been busy ones and I for one am glad to be heading into the last week of term, though the dawning of the school holidays definitely does not equate to any time off work for me this year. Looking back at my blog posts from previous years, it does appear that March and April are consistently a hectic time for us and this year was no different. World Book Day passed surprisingly easy, with M heading to school in his own clothes for his school’s Roald Dahl-themed day as he chose to represent “…a material witness at the trial of Goldilocks, Mummy…” in Dahl’s version of that well-loved Fairy tale.

We seamlessly segued from my 40th celebrations to M’s 11th birthday and onto my 4th blogaversary before celebrating Mother’s Day in fine style too. School presented its own challenges to both G and M, with homework tasks, concert rehearsals and posters revising the finer details of grammar and punctuation – fronted adverbials anyone? – filling our evenings and weekends. Next came 2 sets of exams: Performing Arts exams for both children with their Stagecoach school, followed just a few days later by M’s Grade 1 Cello exam, which I’m delighted to say he passed despite a persistent reluctance to give much more than a cursory nod to his daily practice. Continuing with the music theme, G performed with the school clarinet group at her school’s Spring music concert last week, whilst M is singing with his school choir at a regional music concert involving children from Junior schools across our county this week.

On top of all of that, we also managed to squeeze in a trip to London for 4 and an evening spent celebrating the success stories from this year’s FreeFrom Food Awards. Once again held at the Royal College of Physicians near Regent’s Park, the evening was a glittering event designed to recognise some of the fantastic freefrom products nominated this year and was a great opportunity to not only catch-up with friends from the allergy blogging world, but also try those tasty treats that had pipped their competitors to the winning post. Hosted by the fabulous Michelle Berriedale-Johnson, director of the FreeFrom Food Awards, with a helping hand from restaurateur, celebrity chef and awards patron, Antony Worrall-Thompson, the Awards were a real testament to the changes brought about in the Freefrom world over the last few years.

The complete list of winners from #FFFA17 can be found here, but the big winners of the night were Irish bakers, Bfree, whose Sweet Potato Wraps are impressively top 14 allergen free and won high praise from many of the judges for being “…enormously versatile, beautifully soft and pliable, a lovely warm colour and tasting delicious…” This year was the 10th anniversary of the FFFA and to acknowledge this remarkable achievement, nominations had been invited to recognise a Freefrom Super Hero from within the industry itself. There were 5 very worthy nominees, all of whom are, without a doubt, heroes within the Freefrom world, but there could only be one winner and the inspirational Clare Marriage of Doves Farm was chosen for her unquestionable dedication to the production of numerous flour blends that have transformed the lives of those having to bake freefrom.

It was a fantastic night and it was wonderful to be able to mingle with the crowds of fellow freefrom foodies, rather than negotiate them with a small child in a wheelchair as we did last year! G not only enjoyed helping herself to a number of the goodies on offer on the Winners’ Buffet, finding a new gluten-free favourite with Kelkin’s chocolate-flavoured teacakes, but also found the courage to strike up a brief conversation with her very own Super Hero, Lucinda Bruce-Gardyne, the creator of G’s gluten-free bread of choice, Genius. I can’t wait to see what the year ahead brings for the Freefrom industry and am definitely looking forward to #FFFA18!

A fine Fish supper

With an unbeatable combination of good health all round, a new approach to food challenges and an accommodating restaurant, this year we had one of the best Mother’s Day lunches that we’ve enjoyed in a long time. Last year’s celebration fell flat, when my Mum was relegated to her sick-bed and left Mike, the children and me to savour yet another fantastic family meal at what has become one of our all-time favourites for allergy-friendly meals, Wagamama. However, a recent visit to our local Wagamama for M’s birthday tea meant we didn’t fancy a return visit quite so soon, after all it is possible to have too much of a good thing and as much as I fancied treating Mum to a late lunch at the amazing Cafe Nouveau, it was just too far to trek this weekend. Fortunately, the opportune coincidence of trialling prawns and our Sunday lunch plans meant we could visit an old haunt that received recent recognition as a gold award-winning venue at the 2016 FreeFrom Eating Out Awards.

Of course, we couldn’t just turn up on the day assuming that we’d be able to safely feed both children, so a preliminary phone call to not only book a table, but also run through all of our allergy requirements for the meal was an absolute necessity. We have been incredibly lucky in the past as we don’t always call ahead and have still found ourselves able to eat out as a family, but a special meal such as this one required a little forward planning. Our restaurant of choice was the marvellous Fishers Restaurant in Bristol and we had our fingers crossed that the inclusion of prawns for the day would make it possible for us all to enjoy a lunch at this great seafood restaurant. The staff were fantastic when Mike called and reassured him that not only could a safe prawn starter be prepared for M, but, as they were including chicken as a main course for Mothering Sunday, prepping chicken, rice and cucumber would be an absolute breeze too.

We had high hopes for our first 3-course meal in a long time, but the generous portion sizes left us all feeling full and satisfied before the dessert menu could even be properly considered. Fishers were able to adapt most of their menu options to be both gluten- and dairy-free to suit G and she was thrilled to be able to order calamari with a sweet chilli sauce, something that is an unexpected favourite with my oft-time picky oldest. She was also delighted by the gluten-free bread basket that she was able to enjoy whilst waiting for her starter to arrive and there was barely a crumb left by the time the calamari appeared. Mum settled on mussels, Mike picked smoked salmon and M and I enjoyed a similar starter of tempura tiger prawns, though mine came with a soy dipping sauce. I would love to be able to share with you the plate of prawns that M was presented with, but my joy at being able to watch my foodie savour every single mouthful meant that I forgot to pull out my phone until that plate was cleared.

G and M’s choices for their main course were a little more mainstream, with M being greeted with a fantastic-looking plate of plain rice, grilled chicken and cucumber batons, whilst G’s huge plate of gluten-free haddock and chips was enough to feed a small army. I was pleased to learn that they have a dedicated fryer to cook all of their gluten-free offerings and seemed to be very much attuned to the risks of cross-contamination for their freefrom guests. We had already confirmed that M could eat the lemon sorbet for pudding and were keen to see what was on offer for G. Sadly, this is when disappointment really hit as despite their brilliance in providing lots of gluten- and dairy-free alternatives for the savoury courses, dessert was a real let-down. The only choice readily available for G was sorbet, which she absolutely hates and when pushed, all the kitchen could offer was the apple crumble – without the crumble. We had heard that in the past, they had been able to go off-menu and cook a gluten- and dairy-free banana fritter, but we were told that they were no longer able to prepare that as an alternative. It was perhaps lucky that G and M were both full to the brim from the rest of the meal and didn’t really want to stick around any longer for pudding and so the rest of us willingly abandoned the sweet finale to our meal and instead travelled back to my Mum’s for a refreshing cup of tea.

Fishers was a great choice for lunch and we were impressed at their willingness to accommodate some tricky dietary requirements. However, the lack of an imaginative dessert menu for those with allergies was extremely disappointing and an area that could definitely do with some improvement to make it a truly excellent Freefrom restaurant.

Sports Mad in New York

With the demands of work, home and children meaning that Mike and I are barely managing to lift our heads above the parapet for more than 5 minutes at a time right now, it’s hard to believe that 6 weeks ago we were relaxing and enjoying my #40thcelebrations in New York. One of the unquestionable highlights of our trip was the opportunity to attend what has to be one of Mike’s favourite sporting events, a NHL (National Hockey League) ice hockey game and even better could watch Mike’s home team, the Toronto Maple Leafs up against local heroes, the New York Islanders. This was undoubtedly more of a treat for Mike than for me, but I’m not ashamed to confess that I much prefer watching ice hockey live to on TV and this game was an absolute humdinger of a match to see.

What I love about ice hockey is the friendly rivalry between the opposing teams and that, no matter where you sit and what team you support, the love of the game is the most important thing. We sat in what were fantastic seats at Brooklyn’s Barclays Center, Mike proudly wearing his Maple Leafs jersey and with a true mix of Toronto and New York fans surrounding us. There were good-hearted jibes, enthusiastic cheers and an atmosphere that reflected just how much every single person there was enjoying the skills they were seeing on the ice. In front of us sat 2 families, one supporting New York, the other Toronto and the kids gleefully switched seats and gave high-fives to all surrounding them whenever their team of choice scored. I had forgotten just how much fun an ice hockey game is and can’t wait until we have opportunity to take G and M to see their first NHL game, no matter who’s playing.

This was an outing that had been carefully planned in advance, but we also took advantage of a free night combined with a yearning to visit Madison Square Gardens, and managed to secure tickets to watch my very first NBA (National Basketball Association) game. To say I was somewhat underwhelmed by the antics of the New York Knicks vs. the Los Angeles Clippers is, well, an understatement, but I was completely dazzled by the stellar performance of their cheerleading squad both before and during the game. Basketball is a game that I really haven’t found an affinity for, much preferring the hard-fought matches of the netball of my youth. I’m glad we went to the game and would love to take the children along for the experience at some point in the future, but I don’t think I’m ever going to be converted to a hard and fast basketball fan. In fact, I was far more excited by the number of celebrities who were there watching the game too and loved waiting to see which film or TV show clip would be played to reveal the next well-known star on-site. I’d be hard-pressed to select my favourite star, but whilst Chris Rock and John McEnroe are both are up there with the best of them, it was Mr TeenWolf himself, Michael J Fox, who took the top spot in my heart.

Our night out at the Gardens was our last night in New York, but it was definitely not the end of our Big Apple adventures. We always knew that travelling to NYC in February meant that we might be subject to winter weather, but we never expected the extremes we experienced over the length of our stay. It had started with below freezing temperatures with glorious sunshine, passed through grey, wet and miserable and gave us a penultimate day of beautiful spring weather that saw us shedding the thermals and thick winter coats that had been our faithful companions throughout the holiday. And then, just as last week’s Winter Storm Stella buried the city in around 18cms of snow, her predecessor Winter Storm Niko arrived to give us a final day of bitter cold and the snow that Mike had been longing for the whole time we were there. We spent our last morning trudging through the snow in Central Park, capturing the landscape in photos to show the unbelievable difference that a mere 24 hours can make. Our flight was delayed by a couple of hours, but we spent some great time people-watching at JFK airport before boarding the flight and grabbing what sleep we could on our homeward journey. It was an absolutely amazing holiday and I can’t wait to visit again, perhaps with G and M in tow.

    

On this Day

One of the things I enjoy about Facebook is the “On this Day” look back at the previous statuses you’ve posted on that day in years past, which is how I realised that today marks 4 years since the start of this blog. I’ve come,..we’ve come a long way since that very first post and have had more experiences, opportunities and adventures that I ever imagined possible. I’ve made some wonderful new friends and have been privileged to be able to lend support to those at the very start of their journey. We’ve met some amazing people and I can’t wait to discover what the year ahead brings.

Thank you for being a big part of my blog and continuing to support us every step of the way.

Happy 11th!

Somehow it doesn’t seem real that another year has passed and we’re marking a certain young gentleman’s 11th birthday. When my challenging pregnancy resulted in a premature birth, I had no idea that this Japanese proverb would become the very mantra of our lives as a family of 4. Today we’re celebrating 11 years filled with love, laughter and the continued determination by our youngest to get back up each and every time life knocks him down.

Happy 11th birthday M, may your day be filled with everything you want and so much more!