There is no question that the last 9 months have had a huge impact on the mental wellbeing of all in the UK and worldwide. The rapid change to our usual routines left many feeling extremely discombobulated and the uncertainty of knowing when we can get back to anything that even vaguely resembles our old “normal” can lead to a sense of a loss of control, which itself can drive anxiety levels sky-high.
As we’ve all adapted to a life that is a great deal more home- and family-based than many of us are used to, so have many organisations similarly changed how they work in order to continue providing their services in whatever way they can. The benefits from doing 4 weeks of Stagecoach on Zoom were absolutely tangible for G and M, and it was encouraging to hear them giggling their way through the 3 hours of classes on a Friday evening. They’re delighted to be able to be back to “real life” classes this week and seeing some old familiar faces, both teachers and friends.
One organisation that has definitely gone the extra mile is Over The Wall. I’ve written numerous times about the amazing impact their camps have had on G and M over the last few years and this year was no different. It would have been so easy for them to simply shrug their shoulders when it became clear that camps couldn’t be held as normal, but instead they rolled up their sleeves and worked hard to produce the fantastic online “Camp in the Cloud” sessions for all who had applied for camp places. The week-long activities broke up the mundane experience of life in lockdown and challenged both children in a different way that they very much needed. That opportunity to connect with other young people who really understood how they might be feeling once again proved invaluable. Some might think that this charity’s determination to still deliver their regular offering as best they could despite the circumstances is going the extra mile, and I wouldn’t disagree, but I’m actually speaking about that something more they’ve now gone on to do.

Following the resounding success of their online camps, OTW has gone that one step further and continued to hold cabin chat sessions via Zoom on a monthly basis. G and M were both keen to participate and that hour or so at the start of each month has been a real lifeline for them. Cabin chat was open to anyone who had attended the virtual camps no matter where they are based and so both children have found themselves in groups with others from across the UK. It has been an hour to chat, laugh, accept and set challenges and just generally share how the last few months have and are affecting them. They’ve both made new friends and once again the boost to their mental wellbeing has been
evident immediately. The planned chats have now finished, but we’ve all got our fingers tightly crossed that they will start again in the New Year.
Of course, none of these things could happen without the dedicated team of staff and volunteers at Over The Wall and we can’t thank them enough for going that extra mile and once again supporting G and M as best they can. Over The Wall have announced today that they are planning to continue with the virtual camps next year and beyond, even once the residential camps are able to start up again, which is quite simply the best news ever.

With the start of the new school term being just a week or so away now, the last few days have been a great end to the extended break from school for G as she has eagerly followed in M’s
G, however, has tackled the crafts with relish and with perseverance; and, having discovered that watching the online videos was key, created a beautiful origami crane mobile, a working robotic hand and whizzed her way through the clues for the “locked box” challenge. She has loved joining in the nightly cabin chats and has come more out of her shell as the week has gone on. Her blue team has connected via Instagram, and if the amount of notifications buzzing through to her phone is any indication, they’re a chatty and engaged lot!
alternative and to keep an eye out for future updates to be sent. It didn’t take long for the final details to reach me and both children eagerly signed up to the first ever Camp in the Cloud.
and participating in all his favourite camp activities in one way or another. The highlight of each day was most definitely the camp chat via Zoom, which gave him around 45 minutes to meet his team mates, accept, or set, team challenges and just chat in a face-to-face context, something he hasn’t really been able to do since lockdown began.
Sunday was dedicated to the
see G’s reaction to the photos and displays about this more recent crisis and she was keen to express her thoughts about the responses of politicians and their excuses for not doing what they knew was needed.
Our decision to go to Manchester were twofold, the first being the IWM North, but our second was perhaps the more exciting, especially for G and M. This was the day for their indoor skydive in aid of Over The Wall and despite a somewhat grumpy start from our youngest, we arrived at
In the years since our wedding in December 1999, our family has doubled in size and we’ve moved schools, houses and jobs at a rate that has to be seen to be believed. We’ve survived illness and loss within both our families and our friends, and continue to do so on a daily basis thanks to some long-term diagnoses that have oft-times caught us when we were least expecting them. Chronic illness has become a much bigger part of our lives that we could ever have imagined, but with that has also come some amazing friendships, connections and opportunities that we never even dreamed would happen and that, in many ways, I wouldn’t change for the world.
we’ve turned our hands to a few other things – some old, some new – to see just how much we can raise. We followed the “sparking joy” fashion and adopted a Marie Kondo approach to clearing out our wardrobes, committed to giving a regular amount each month and even stood in the entrance of our local Tesco superstore a couple of weeks ago to collect what we could and spread the word about the camps too.
If you’re not able to donate, but live near a Tesco store in one of the following areas*, OTW is one of their Bags of Help Centenary Grants recipients until the end of August and by adding your blue token to their box, and encouraging friends, family and fellow shoppers to do the same, you will help them receive a significant grant that will be genuinely life-changing. Remember “Every Little Helps”, even if that’s by a blue token!
adventures squeezed in to the final 10 days of the summer holidays before school started back.
We were both back at work the following day, whilst G and M went to my Mum’s for the last 2 days of the week. We rushed through the washing and then found ourselves packing once again for a weekend in
They also insisted we explored every other part of the museum we could and given the rather miserable weather, it was a great way to entertain them whilst away from home.
look at them, but also used them to help cook treats for M whilst he was at camp. Just as with his stay at the South HC camp 2 years ago, M was exhausted after a week of unbelievable fun and challenge and just about managed to survive the very final bit of our seemingly endless summer adventures.

I hate to say no to people and always end up feeling very disingenuous as well as guilty when I come up with a reason why I don’t want to set up a regular donation on the spot.
that effort is priceless. At the moment, we seem to be a state of status quo with M’s health which is fantastic, but there is also a sense of overwhelming ennui when it comes to our ongoing relationship with our local hospital and M’s gastro consultant. Taking the time to talk to me about life apart from M’s EGID makes a big difference and should never be seen as inconsequential. We teach M constantly that there is so much more to life than his illness and it’s important that we hold on to that truth and don’t get bogged down in the mundane.
difference to those living with a variety of food allergies. As well as those I’ve already identified as particular highlights for me on the day, I was excited to see
What has been even better for me this year than list after list of amazing foods, is the final named category: the FreeFrom Hero Award. Back in December I was asked if there was anyone I would like to nominate for this special category and it’s been really encouraging to us as a family to see our 2 nominees appear on the final shortlist. You can only imagine my delight this week as I received copies of the emails that have been sent to tell our very own heroes of their success. When you look at the list I’ve no doubt that you’ll immediately be able to identify one of the nominations I made, that of Steve Whitaker and Jason Conners, the cooks at
which was truly amazing and that M loved the sound of. We touched base the week before camp to just check whether there were any changes and when we arrived at camp, the staff took time to meet with me to discuss all of his needs.
and just felt like a child as his health problems firmly took a back seat to the more important job of him just having fun. As Mum, I felt confident that they knew what they needed to do to support him and have subsequently seen just how amazing their care can be when they called whilst G was away on sibling camp because they were concerned that she wasn’t eating the GF/DF food they were preparing for her.
Whenever I write my blog, I am always conscious of not wanting to focus on any one emotion more than another, particularly when life seems pretty bleak to us. Yes, sometimes things feel overwhelming, but I know that in the grand scale of things life could be so much worse and I’m truly grateful that it isn’t. However, this is one occasion when I’m not going to apologise for shouting from the rooftops about just how fantastic both my children are in my eyes. They’ve both had brilliant end of year school reports and Stagecoach reports, which is a real testament to how hard they’ve worked this year, but this post is about something so much more than that and something of which Mike and I are incredibly proud.
charity by doing so.