Category Archives: Chronic Illness

Go Big or Go Home

June was definitely busy, but it didn’t really prepare me for the double whammy that hit as it was heading out the door and ushered July in in unbelievable style. Many of those who know me personally will have already seen this news and have stated the same thought in a multitude of ways, but I think my sister-in-law said it best what she commented “…M can’t go small, can he?..“!

It all started a few weeks ago when M came back into the house with 4 or 5 insect bites on either side of his waist. This is not an uncommon occurrence in our household as we are fortunate to live at the far end of a small village, right on the edge of farmland and during the summer months, M spends a lot of his free time running around our paddock, jumping on the trampoline and climbing trees. It sounds idyllic, doesn’t it? And, to be fair, it mostly is and the less perfect elements of insect bites and his reaction to cut grass are really small and insignificant in comparison. The bites were itchy and red, but nothing looked especially untoward or unusual, although 1 in particular on his right side appeared to have grown into a reasonably large welt thanks to his incessant scratching of it. I shrugged my shoulders, rubbed some cream on to it to relieve the irritation and promptly forgot all about it.

Fast forward 2 weeks or so and M was now complaining of a small lump on his ribs – the right-hand side once again – which was causing him pain and disturbing his sleep every time he rolled over onto it. After putting up with his incessant moaning, I finally capitulated and booked an appointment for him to see our GP to have it checked. I had spotted that that 1 bite was still in situ and now sporting a rather angry-looking red rash around it, so determined it worth getting that checked out whilst we were there too. Add in the fact that one of M’s classmates had been diagnosed with shingles the week before and I had yet one more thing swirling around the back of my head as something else to be mentioned as well.

As soon as M pulled up his shirt in the GP’s surgery, there was no doubt in my mind that we were going to be in for the long haul. As well as the suspect bite and small lump visible on his ribs, there was now a further red rash over his right ribs, which the GP didn’t hesitate to confirm as shingles with really nothing more than a cursory glance in its direction. He didn’t want to start M on anti-viral drugs straight away, but warned that if the rash spread, I’d need to get him back in as quickly as possible for a prescription – and 2 days later that’s exactly what I did. The small lump proved to be nothing more than an overactive and swollen lymph node likely to be the result of his body desperately fighting off the shingles infection and it was quickly dismissed.

However, it was the bite that really raised our Dr’s eyebrows and after a few probing questions from both him and me, I had a sneaking suspicion that I knew where we were headed with this rash. One week on, a 5-day course of anti-virals to treat his spreading shingles rashes and the third doctor’s appointment of the week, there was no question what was going on with M. The red rash circling his bite had become the most perfect bulls’eye rash and Lyme Disease was diagnosed instantly. Fortunately, we appear to have caught this condition early and we all have our fingers (and toes) tightly crossed hoping that the 3 weeks of strong antibiotics will stop the disease in its tracks and reduce the risk of ongoing problems from it.

We’ve been lucky. M is feeling more tired and achy than normal and has been heard grumbling that this double diagnosis hasn’t secured him any time of school. However, his indomitable spirit in the face of unquestionable challenges has shone through and he has determined that he was going to carry on as much as possible despite feeling truly under the weather. The shingles rashes are mostly gone and the impressive target rash of Lyme Disease is also fading as the antibiotics do their thing. There is no question that it all could have been an awful lot worse, but I do wish that M would start to listen when I say that there really is no need to take a “Go big or go home” attitude to life!

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Eating Out with Allergies in Berlin

With breakfast, lunches and snacks sorted out, all that was left to do was to find a few places for dinner whilst we were in Berlin. Mike had done a lot of research on the museums and sights to see during our trip, so I had taken on the challenge to see what options for safe dining there might be. We had great success with the 3 restaurants we ended up eating at, even if none of them could be described as being “traditionally” German, and the allergy information was readily available and easy to read.

Pizzeria Simela: In my extensive internet research this restaurant consistently appeared with excellent recommendations for its brilliant gluten-free offerings of both pizza and pasta and I was delighted to read a more recent review that revealed they could also offer vegan – and therefore dairy-free – cheese. Based just around the corner from the fantastic Denns Biomarkt, this tiny restaurant has just a handful of tables, but is definitely worth a visit and booking in advance! We settled on some fresh tomato bruschetta on GF bread as well as a charcuterie platter for the four of us to share as a starter before selecting pizzas for our main course. Mike, G and M all opted for the GF buckwheat pizza bases, whilst I chose their regular base. It was also great to see a GF beer on offer and Mike willingly gave it a go, giving it a thumbs up. The food was absolutely delicious, there was a huge number of safe options G and M could choose from and there was very little left once my fellow diners had eaten their full. Definitely a winner in our books and one I would highly recommend.

Corroboree: This was a surprise find after a busy day involving 3 museums, a tour bus, lots of walking and even a lunchtime boat trip down the River Spree. We found ourselves at the Sony Centre at Potsdamer Platz, which seemed like a good place to search for a restaurant that might be able to cater reasonably well for even the most difficult of dietary requirements. Corroboree serves Australian-Asian fusion food and provided M with the chance to try some more unusual meats, something he’s been wanting to do for a very long time. The allergy menu I was given was fantastic and really easy to navigate and work out what was safe for both M and G. We were having a relatively early dinner, so G decided she would have a chicken Caesar salad supplemented with a bowl of chips, whilst Mike and I shared a Caesar salad with kangaroo steak as well as a platter for 2 which included Asian chicken, calamari and bruschetta. M, however, was the most adventurous of us all and decided to try the Corroboree platter with dairy-free tandoori chicken, crocodile tournedo and kangaroo filet. He enjoyed almost every mouthful and would happily eat crocodile again, though he’s less sure about the kangaroo as it tasted too much like beef for his liking. Something a little different to what we’d normally eat, but a big hit and a definite thumbs up for the freefrom offerings.

Hard Rock Cafe: It should come as no surprise that our first, and in fact, final meals were at our family favourite, the Hard Rock Cafe. Once again the allergy advice available was comprehensive and the restaurant manager came to discuss our dietary needs with us before the children placed their orders. We were reassured to hear that their GF fries are cooked in a separate fryer and there was no problem with tweaking the children’s choices to make sure they were as safe as they could possibly be. G once again chose the pulled pork sandwich which she first tried in Glasgow and now absolutely loves, whilst M changed his choices up a bit by choosing the pulled pork sandwich on the first night and a chicken and bacon “burger” for our final dinner. Both children were extremely happy with their meals and M was delighted to be able to try a selection of their smoothies too, having quizzed our poor waiter to make sure there was no milk added to them at all! Mike also decided to try their Local Legendary burger, which changes in each restaurant location and in Berlin was a burger topped with a serving of currywurst – the local delicacy of a bratwurst sausage topped with a curry sauce. I’m not sure its a burger I would have chosen, but Mike enjoyed it – and the generous glasses of beer that accompanied it. One of my favourite things about the Hard Rock Cafe is seeing what memorabilia they have on display and here they had a guitar made from a piece of the Berlin Wall with barbed wire as its guitar strings. Once again a restaurant we’d recommend to those eating out with allergies in the beautiful city of Berlin.

Sweet Treats in Berlin

The benefit of picking an apartment or apart-hotel to stay in is that there’s enough of a kitchen to allow us to cook safely for the children and we always travel with our extra suitcase of safe foods to make sure that we have enough of the essentials to see us through our time away from home. We never know what we’ll be able to find food-wise and it’s good to have a plan in our back pockets “just in case”. However, let’s be realistic, who really wants to cook when they’re on holiday? Certainly not me and so we had settled on a good compromise for a short break in Berlin, one that we’ve found has worked well for us in the past and which keeps the children happy too.

Even when we travel in the UK, I always make sure that I have breakfast cereals and cartons of rice milk packed as we’re never quite sure what dairy-free milks we will find and we start our days with breakfast in the room. Thanks to the great location of our Citadines Kurfürstendamm Berlin hotel, there was a Starbucks coffee shop and local bakery within easy walking distance, so Mike trekked out each morning to pick up a coffee for me and some freshly baked pastries and bread rolls for us to enjoy. We had also agreed with G and M that we would take packed lunches out with us daily and so had taken some Bfree wraps for M to enjoy, whilst we had picked up some great gluten-free bread rolls for G in a local supermarket. Both kids love cooked meats, so finding some safe lunch meat in the same supermarket was a great bonus and absolutely delighted them. Sadly, this same supermarket didn’t stock any rice milk, although there was an impressive array of other alternative milks and we ended up getting some soya milk for G and just used our supply from home for M’s daily breakfast.

However, as we found our way to dinner one evening at the fantastic Pizzeria Simela – don’t worry, there’ll be more about this in my next blog post – we stumbled across Denns Biomarkt and as we had a few minutes to spare, I suggested we popped in to have a quick look around. This has to be one of the best spur-of-the-moment decisions I’ve made in quite a while as, not only did their bakery have gluten-free fresh bread available, but there was a great selection of other allergy-friendly options available too, including numerous cartons of rice cream, which somehow made their way into the spare suitcase for our homeward journey! M also took a fancy to the black rice milk that he discovered, though sadly the final product proved not to be as tasty as he was hoping it might be. Here are a few of the freefrom finds that were the biggest hits with G and M:

Friederike from Jute Backerei: Well, who could refuse these amazing looking cookies from this gluten-free bakery? The clear labelling meant I could see from a quick glance that these were gluten-, dairy- and egg-free, so potentially a safe treat for M to enjoy alongside his sister. With the help of Google translate, I scanned through the list of ingredients and was happy to see that whilst they were baked in an environment containing soya, the cookies themselves were soya-free and didn’t contain anything that made me particularly worried about M eating one. They were absolutely huge and, I am reliably informed by both children, also extremely delicious!

Das Eis Triple Choc Ice-cream: Since getting home from Berlin, I’ve discovered that Das Eis is a huge vegan brand of ice creams and sorbets. Made from almond and rice milk, this ice-cream was also soya-free and so another treat that I was happy to let M try – once he had taken an extra dose of his array of anti-histamines and other medicines. There were a couple of flavours available in Denns Biomarkt as well as some other brands of dairy-free ice-cream, but the Das Eis Triple Choc was the only one that was also vegan and soya-free and therefore the best option for M. The children somewhat reluctantly shared the small tub with Mike, but they all agreed it was worth it.

Ben & Jerry’s Non-Dairy Chunky Monkey Ice-cream: After our trip to the DDR museum, M asked if we could go on river cruise to enjoy our lunch and given the glorious day, Mike and I were both more than happy to agree. I had spotted some ice-creams for sale in the museum shop and had somewhat mindlessly looked to see what was available as I waited for Mike and the children to complete their purchases. G is notoriously difficult to buy an ice-cream for when we’re out and about as she won’t eat ice lollies and it’s rare to find a dairy-free ice-cream available for her. So, I was delighted to spot this vegan ice-cream, not least because we also felt we could allow M to try it as well whilst we were on holiday. The small pot was enough to satisfy them both before they tucked into their packed lunches and kept the smiles on their faces for the rest of the afternoon.

Bringing History Lessons to Life in Berlin

I’m not sure if I’ve mentioned it before, but I’m a big fan of holidays. Not just the trips themselves, but I absolutely love the process from the moment we start thinking about the perfect destination to pick and, much to Mike’s frustration, can frequently be found thinking about where we should travel next, even before we’ve left home on the next one booked. We haven’t done too much travelling since our trip back to Canada last summer, but no sooner had G and I got home from our fantastic day out at the Strictly tour, than it was time to finish the packing and zip up the suitcase for our 5 day half-term break.

Our holiday was perhaps not what people expected, in that we weren’t chasing the sun with a few days at the beach, even though both G and M are desperate to go back to Greece and mention it every time they can possibly shoehorn it into any conversation. Instead, we had taken inspiration from G’s GCSE history syllabus and her learning about Superpower relations, the Cold War and Nazi Germany during the inter-War years, subjects which also happen to tie in quite nicely with M’s focus on World War 1 in his history lessons this year; and so headed to Berlin. As the children have got older, we try to involve them more and more with planning our activities whilst we’re aware from home and this trip was no different. G spoke to her history teacher just after Christmas as the school had taken a group of their A-level students to Berlin a few weeks earlier and came home with some recommendations of the best places to visit to help solidify her learning and understanding of these eras.

Armed with that information as well as the additional research Mike had carried out in the preceding weeks, we had plenty to do to fill our time and couldn’t wait to get started. I had found what looked like a great place to stay: the Citadines Kurfürstendamm Berlin apart-hotel, meaning that we had access to a full kitchen which always makes life a little easier when travelling with food allergies. We were ideally located not too far from the main retail street and within easy walking distance to not only shops and restaurants, but also the Berlin U-Bahn, or Underground rapid transit system.

Our first day started, as it so often does when we travel to a new city, with a “Hop-on, hop-off” bus tour, although we weren’t as impressed with the City Circle Tour offering as we have been with other tour companies we’ve chosen in the past. However, it gave us a great introduction to the city of Berlin itself and helped us work out how to get to the various sights on our list as well as ticking a few of them off without too much hassle. Both G and M were fascinated by their first view of the few remaining remnants of the Berlin Wall, the Brandenburg Gate and the bombed remains of the Kaiser Wilhelm Memorial Church, all of which really brought their history lessons to life.

Mental Health Awareness Week 2019: Body Image

This week is Mental Health Awareness Week (#MHAW19) in the UK and the focus this year is on body image – how we think and feel about our bodies. I’ve talked about mental health in relation to our family before as there is no question that the ongoing challenges of M’s ill health and the restricted diets of both children have impacted not only them, but Mike and me too. Just because I’ve not written about body image issues before doesn’t mean we haven’t faced them and I thought it was finally time to try and put my pen to paper and talk about our experiences honestly.

It’s taken me a long time to become comfortable with the way I look. I am not a size 10 having, as I have often said, passed through it on my way to bigger and better things. I struggled as a teen being taller and bigger than some of my friends and again as a new Mum, when some of my antenatal group bounced back to their size 8 jeans within a ridiculously quick space of time, something I was never going to achieve. The depression that has haunted me since my early teen years didn’t help with my sense of self worth and it has taken me 40 years to finally accept that I am the way I am and that that is enough. That doesn’t mean that I don’t occasionally have a crisis of confidence even now, but I have learned to wear clothes that flatter my shape and can truly step out with confidence when everything comes together to help me feel good about the way I’m presenting myself to the outside world.

There is no question that G is the spitting image of Mike and his side of the family, which gives her beautiful tanned skin and dark hair, although her build is very similar to mine. She has struggled at times with not being as slender as some of her friends and these days complains that she appears to have stopped growing whilst her friends are still inching past her. She is a beautiful young lady on the inside as well as out and we encourage her to find her worth in the way she behaves and reacts to the people who are around her and not her physical looks. We have all heard the criticisms of both print and social media and the airbrushed images that all too often create unrealistic expectations in our children and young people. The increasing popularity of taking selfies and then using social media filters to manipulate the image presented to the world can add to our unrealistic perceptions about the way we should look. I still remember a discussion we had with one of the paediatricians when she was little, who told us that the danger these days is that our perceptions and expectations of body shape and size are such that we fail to recognise when people are a healthy weight for their height and instead view them as overweight. G is learning to eat healthily, keep active, believe in herself and, most importantly, to not constantly compare who she is to her friends.

It is easy to believe therefore that if you’re slim you have no reason to have body image issues, but I can tell you that’s not true either. M is the complete opposite to the rest of us and has always been on the slender side. He is chatty, witty and can ooze absolute self-belief at times, and yet he has struggled with feeling too thin, too short and lacking muscles when compared to some of his friends. He refused to wear shorts during his Junior school years, even when the weather was gloriously sunny and we asked for permission for him to wear jogging trousers rather than shorts for PE – all because he hated the way his legs looked. These days he’s a little more prepared to reveal his legs, particularly when it’s too hot to be comfortable in jeans, but he frequently comments on just how much taller than him many of his classmates are.

Boys can be just as much affected by body image issues as girls can and we’re lucky that our secondary school is very aware of that fact and looks to support all of the pupils in its teaching about these matters. We are all aware that puberty is a tricky time and one that needs to be carefully navigated by all involved. At home, we look to help both G and M grow up with a positive self image and belief as well as teaching them the importance of balanced meals and regular exercise. We also encourage them to talk openly and honestly with us about how they’re feeling about various issues, not just about the way they look, and will help them find answers or solutions if they want. Our youngsters grow up sadly believing all too often that they need to be thin and conventionally beautiful to succeed in this world and I find it devastating that they do not truly understand and believe that there is so much more to achieving success than the way they look.

A pudding for every day

M’s restricted diet has come with a number of challenges over the years, not least of which is finding some delicious desserts for him to enjoy at the end of a meal. I have worked hard to adapt recipes or create new ones for him, but sometimes all this busy working Mum wants is to be able to pull a pudding out of the fridge and not have to do anything more than remove the lid and provide a spoon. One of the staples of my childhood for weekday desserts was fruit yoghurts and when M was small, he absolutely loved eating a yoghurt whenever he fancied it. G has always been less keen, although she definitely enjoys the odd soya pudding – especially the chocolate ones – on occasion.

So, I’m constantly on the look-out for an M-friendly alternative and you can imagine my delight when my hours of internet trawling uncovered the wonder that are Bio Organic Rice Desserts. Now sadly these puddings are incredibly difficult to source and I have spent a small fortune in shipping boxes of them to our house. However, the chocolate desserts have been a huge hit with Master M and those boxes definitely don’t last long unless a few are hidden away from his immediate view.

18 months ago I came across  La Crèmerie’ and their rice yoghurts at the Foodmatters Live Conference in London and last summer I eventually managed to convince M to give the yoghurts a try. We placed an order for both the plain and the vanilla flavours, but unfortunately  La Crèmerie was low on stock and we had to wait a little while for just the plain yoghurts to be delivered to our door. The rice yoghurt is delicious, although M wasn’t too keen on the plain flavour – I just wish that he’d had the opportunity to taste the vanilla ones as well. However, whilst they weren’t the biggest success we’ve ever seen, they did make a great addition to his smoothies and I was also able to use it to create a stewed apple and yoghurt pudding for him. Sadly, these are another more expensive option and perhaps not one for everyday, but they are a good dairy-free alternative and one I’d happily recommend.

Rocky Road

Over the last few months, I have been encouraging G and M to become more engaged with the treats they like to eat, in particular asking them to find, choose and make the goodies they want to eat themselves. Part of my reasoning was to make sure M has some safe desserts to include with his lunch at school as it’s so difficult to buy safe options for him, and part was to help them both develop the skills they need to cook safe food in the future. It has been a mixed success and as soon as their initial enthusiasm wore off, the number of biscuits and snacks they had similarly reduced to almost nothing. However, after a couple of busy weeks at work, I decided to seek solace in the baking process myself and chose to experiment with adapting a new recipe for them both to enjoy.

My starting point was a favourite treat of mine, which I thought I could adapt, but actually needed me to perfect another biscuit first before I could even attempt the final product. I love shortbread, especially at Christmas time and I thought that an M-friendly shortbread might be a great starting point and something G and M would both like on its own. Some quick online research and I found a great and simple shortbread recipe, which thanks to our recent successful introduction of Vitalite dairy-free margarine to M’s diet, only needed me to swap the flour to make it perfect for him. It didn’t take long to whip up the first batch and G and M were delighted to taste-test them for me.

With the success of the shortbread in my back pocket, it was time to turn my attention to my final goal – M-friendly Rocky road. This time I recruited G as my kitchen help and she enjoyed the tasks of chopping the Freedom mallows as well as smashing some of the shortbread into bitesize pieces too. Whilst the standard recipe calls for the inclusion of raisins or cherries in it, we haven’t yet introduced them into M’s diet and so instead used dried banana chips, which again had some attention from G and her trusty rolling-pin. Moo-free chocolate has proven to be another safe option for M and was the final ingredient needed for the recipe.

An hour or 2 in the fridge and the Rocky road was ready. It was another resounding success with G and M and they certainly enjoyed the week or so that followed as either shortbread or rocky road was included in their packed lunches every day. Even better, M was so taken with both recipes that it reignited his interest in doing some safe baking himself and he spent a Saturday afternoon making the shortbread and prepping everything for the rocky road before he had to head to bed. He even told me off for not having put my recipes onto my blog quick enough for him to find and follow – so here they are, ready for the next time my youngest ventures into the kitchen!

Pizza and Ballet

One of the Christmas presents we were treated to this year was family tickets to go and see Matthew Bourne’s “Swan Lake” at the Bristol Hippodrome. We have only been to a couple of ballets with the children over the years despite our love of the theatre and my Mum was keen for us to experience this unconventional retelling of this classic ballet. Of course, no family evening out can start without dinner out too and this time round, partly as we were later arriving in Bristol than we’d originally planned and partly because, well, why not, we decided to veer away from our known safe restaurants and look for somewhere new to try.

It’s always a challenge when eating out with G and M because of their dietary needs, but our decision over the last 18 months or so to relax M’s restrictions on high days and holidays in order to find a better quality of life and balance for him means that on occasions like this, we’re able to eat in places where we’re confident he can choose safe ingredients to make a tasty meal. We know that there are a number of restaurants near to Bristol Hippodrome from Pizza Express to Wagamama, so I made the suggestion that we wandered up Park Street to see what else might be available, with our end target being Pizza Express if nothing else seemed to suit.

About halfway up the hill, we stumbled across the marvellous Molto Buono restaurant and, spotting gluten-free pizza bases on the menu, decided to stop there and see how their food measured up to the children’s somewhat exacting standards. It didn’t take too long for G and M to decide what they wanted to eat and were delighted to discover that as well as gluten-free pizza bases, the restaurant also had vegan mozzarella available as a topping. Much to my surprise, G opted for the GF Marinara pizza – tomato sauce, olive oil and oregano – and M chose the GF Diavola – tomato, salami and vegan mozzarella. Mike joined them in trying one of handmade pizzas, whilst I settled on a pesto pasta. The dishes that arrived looked amazing and tasted even better with portion sizes that satisfied even the voracious appetite of the youngest member of our family. I wouldn’t hesitate recommending this restaurant – excellent food, prepared simply, served quickly and all at a great price.

Fully satisfied by our meal and with more than enough time to meander our way back towards the theatre, our evening had started in fine fashion. We all then sat enthralled for the next couple of hours as the story of Swan Lake unfolded before us. Matthew Bourne’s interpretation brings a more modern-day twist to the tale and replaces the well-known Dance of the Cygnets with an incredible male troupe of swans instead. The dancing was incredible and brought real inspiration to both G and M as they watched it in absolute awe, something that should never be under-estimated as M had expressed his concerns about watching a ballet – “…there are no words to explain what’s going on, so how do you know the story-line..?” before it even began.

I think we would all heartily recommend seeing this production, though it turns out that I’m something of a traditionalist when it comes to the setting, much preferring the classic portrayal of the Swan Lake tragic love story. It was fascinating to talk to G and M about their thoughts on the production, with M uncertain as to whether the second half was a dream or not and both expressing the view that the role of the Swan/Stranger represented the 2 sides oft he Prince’s psyche. This was a performance that really challenged everything we knew and expected of a ballet and was a truly amazing experience. Despite my hesitations about some parts of this version, I am fascinated to see how Matthew Bourne has adapted and updated other ballets and hope to be able to see another of his productions soon.

Birthday blessings

This weekend has been one of “those” weekends. You know, one of the ones where there’s so much to do and just not quite enough time to manage to do it all. A combination of birthday celebrations, performing arts classes, auditions and hospital appointments has left us feeling somewhat exhausted; but tonight, after a fun few hours with M, G and a group of their friends, I’m also counting our blessings.

It’s been no secret that M found last year, his first at secondary school, tough. The move into a school environment where his year group was considerably bigger than his entire junior school combined with family deaths and the inevitable challenge of his continued restricted diet left not only M, but all of us, struggling to find a positive way forward. Circumstances last year meant that we didn’t really do much to celebrate his 12th birthday, so I was determined to kick off his teen years in whatever fashion he wanted.

The celebrations started with an M-friendly pear and ginger cake with caramel buttercream icing on Friday evening to accompany his presents, which included the bass guitar and amp that he’s been yearning after for a few months. He had been slightly frustrated with Mike’s refusal to take him to look at guitars last weekend and was only marginally mollified by the promise to get up early this Saturday morning to visit our local guitar shop and examine exactly what was on offer. As you can imagine, his excitement in finding the guitar and its own mini amp waiting for him when he got home from Stagecoach was wonderful to see and we’ve been serenaded with renditions of both “Bohemian Rhapsody” and “Seven Nation Army” since late Friday night! I’m just glad the bass guitar lessons he’s been having at school appear to be paying off already and delighted to see him so wiling to practise in every spare moment.

However, the culmination of M’s birthday weekend came yesterday afternoon as we spent the late afternoon and early evening with a group of his and G’s friends. M had chosen a group of old friends and new, some from school, others that he’s grown up with and the best bit was seeing just how well these different strands of his life hit it off and enjoyed the few hours together. After lots of chat, M had decided he wanted to try his hand at an escape room and we booked 2 rooms at one of our local escape rooms sites. We amicably split into 2 teams, each with an adult and a mix of the older and younger children and determined to compete against the clock, rather than each other to escape our locked rooms.

I was impressed with how well they all worked together and certainly those on my team managed the frustration of solving some of the clues well, with only one of M’s friends needing some redirection and reminders to focus from time to time. We were lucky to escape with just 2 minutes to spare and although Mike and M’s team were not quite so successful – they had found all 4 keys, but failed to open the door in time – everyone enjoyed themselves and were ready to move on for a dinner to suit all dietary needs that were present.

The chatter, camaraderie and chuckles around the table were wonderful to experience and all the children were a delight to spend time with as they enjoyed their food and just spending time together. It was a wonderful way to celebrate M’s 13th birthday and I really have counted my blessings tonight that M has finally found his way out from the darkness of last year with the help of some amazing friends, who accept him for who he is and don’t see his health challenges as a barrier to their friendship with him. A perfect celebration with both new friends and old; and a combination of friendships that I hope will keep going for many years to come.

Be my Valentine…and #SpareARose

How did your day start today? With a card, chocolates or maybe a bunch of flowers? A promise for dinner tonight? Or maybe tonight will just be a quiet night in front of the TV.

You can’t have missed that it’s Valentine’s Day today and you may, or may not, be celebrating it.

Whatever your plans, could you please do just one more thing?

By gifting the price of one single rose (£4) to Life for a Child, you will be helping the Diabetes community to “take care of one another around the world” and giving one month’s supply of life-saving insulin to child living with T1D in an under-resourced country.

It really is that easy and what a wonderful gift to share with your loved one this year.

Happy Valentine’s Day!