Tag Archives: New Year

Old-fashioned manners

My kids aren’t perfect – believe me I know – and all too often there are those moments when I wish they’d remember the manners we’ve strived to instill in them over the years. They’re not always brilliant at doing the littlest of things that would make a big difference and I know that’s something that can frustrate my Mum (Hint: it does frustrate her and she might have mentioned it just once or twice to me in the last couple of weeks) Both G and M are a quirky mix of grown-up attitudes – due to their life experiences with chronic health problems – and a lack of rational thought because they’re both still very much children at heart. They’re tentatively challenging the boundaries set them by family members in particular; and sometimes not so tentatively at all; whilst very much toeing the line outside of the home, which inevitably leads to tears and meltdowns, and not necessarily just from them. Insecurity, uncertainty and lack of self-confidence is overcome with bold talk and bravado, which can be misinterpreted as arrogance and rudeness, when the truth is that the child beneath it all is struggling with anxiety and striving to find a different face to present to the outside world.

However, the one thing that I insist happens every year without fail is something that almost certainly falls into the category of “old-fashioned” manners in this day and age. Just a few days into the New Year, I shared this photo of G and M sitting at our kitchen table working hard to write the thank you notes for the Christmas presents and, in G’s case, birthday presents, they had recently received. It may not be their favourite task in the world and it may take a little persuasion to get them started, but they both know that this is a non-negotiable part of the celebrations for both Christmas and birthdays and always buckle down to write them, often treating the job as a competition to see who can finish writing all their notes first. These are no great literary pieces, just a simple acknowledgement of those family members and friends who have remembered them at this time of year and taken the time to buy and send presents that are always gratefully received.

M views me as being a particularly evil Mum because I won’t let him type out his letters, but rather insist that we take advantage of the opportunity to draw faint pencil lines and practise his best handwriting. Why? Well, I suppose I just think there’s something a little more personal and thoughtful about receiving a handwritten note of thanks, though frankly I would be happy to receive even an email rather than absolutely nothing at all. No acknowledgement leaves me wondering if the gift has arrived at its final destination and I have been known to threaten to not send presents again when weeks have passed by and I’m still uncertain whether they’ve been received or not. Does this make me old-fashioned? Maybe, but good manners don’t cost anything and it’s important to me that my children develop an attitude of thankfulness for all that they are lucky to have.


Celebrating Christmas 2016

It may only be the second week of January, but Christmas already feels like a lifetime ago and the memories are already fading fast. December was yet again an interesting month for our family and whilst we had irrefutable success at keeping M out of hospital, we had enough other medical crises to more than meet our quota for the year. As I have already shared, December started with a huge scare about my remaining sight when I was incorrectly told that I needed urgent laser surgery to sort out the developing diabetic retinopathy in my right eye. The hugely positive outcome that in fact the diagnosis was wrong and no treatment was required was a massive relief, but those first 2 weeks of Christmas planning were overshadowed by the frightening threat of surgery that loomed over the household.

img_3185Our medical dramas didn’t stop there. Mike took a tumble from his bike back in October when he was cycling to our local train station on his way to work and has been complaining of severe pain in his left shoulder ever since. The initial thoughts were that he may have torn his rotator cuff and so was referred onto a physiotherapist who, as well as recommending a heady combination of co-codamol and naproxen to ease the inflammation and pain, made his own referral for an MRI to be done as soon as possible. Mike had that MRI at the start of December and by the middle of the month had received a letter stating that it looked like he had a possible “avulsion fracture of the greater tuberosity of the humerus“, but that it would need to be reviewed by a consultant to confirm diagnosis. That diagnosis has now been confirmed and further complicated by the onset of frozen shoulder, a common occurrence following this type of injury. Last week Mike was treated with a cortisone injection and is already beginning to feel some of the symptoms beginning to ease a little, though we have been told it could take a number of months for his shoulder to recover completely. He struggled with taking the co-codamol and a switch to Tramadol has helped massively there. Unfortunately, despite skipping a dose of the Tramadol so that he could enjoy a glass of something with Christmas lunch, the alcohol and painkiller combination didn’t really work and he spent a lot of Christmas Day asleep, which didn’t go down well with most of my family!

img_13241As for M, well he was looking forward to celebrating his big sister’s birthday at home with her for the first time in 3 years as well as taking part in all of the end-of-term Christmas activities being held at school. Unfortunately, once again his health took a nosedive as he came down with both ‘flu and tonsillitis during that last week and was really quite poorly for a few days. We knew he wasn’t well when he decided not to go to our local pantomime with us and instead stayed at home and in bed with my Mum for the evening. The necessary course of antibiotics took their toll on his system and we found ourselves taking a few steps back from our hard-won gains from the last few months. M has gone back to school recovered to generally good health and eager for the term ahead.

img_13361Despite these small hiccups to keep us on our toes, we celebrated the festive period in style. Christmas was spent with my family down in South Wales, where we were able to enjoy a refreshing walk around the nearby reservoir in fine Boxing Day tradition. Both children were thrilled with the presents they received and have been engrossed in listening to their new CDs – Olly Murs for G and Pentatonix for M – or reading their new books, as well as the inevitable time spent playing on the Wii U that was M’s main present. This last has proved to be a real opportunity for the children to work together and pool their resources as they were keen to buy a Disney Infinity starter pack with additional characters and spent a lot of time researching and budgeting before asking me to help them buy their final choices with their pocket-money. We’ve been ice-skating, saw New Year in with friends, managed a return visit to the pantomime so M could see it too, gone on walks and spent time together as a family. All in all, the perfect end to 2016.

Enjoying a little Olly Murs!

Enjoying a little Olly Murs!

Another year over

And just like that, it’s another year over: 12 months of big medical decisions, longer-than-expected hospital admissions and a huge amount of growing up in the 7Y2D household. There’s still lots to share about our December, but that will have to wait for 2016’s posts to start, especially as I need to gather my thoughts and reflect with a clear head and heart about all that happened.

For now, let me simply wish you all a new year filled with peace, happiness and love

from my family to yours, Rxxx

Here’s to 2015

That’s another year done, more adventures experienced and new lessons learned.  We’re starting 2015 with a positive outlook – the switch to NG-tube and elemental feeding has already started to see some health improvements for M and we finally have a plan for moving forward that will be looking for the root cause for some of his health problems.  Both children are happy and settled at school and G is looking ahead to moving into secondary school in September. We’ve met and made friends with several of the lovely FABED families and have been able to help raise funds and awareness for this charity and the condition it supports.  I’m not sure what 2015 holds for us all, but, if nothing else, I’ve learned to hold tightly to my hat as it’s certain to be a bumpy ride!

Wishing you all a happy, ssuccessful and peaceful 2015.  May your wishes and dreams be fulfilled. 



Merry Christmas!

May your Christmas be filled with love and laughter; times of happiness and of reflection; family and friends…


…and may 2015 be a year that brings new hope, understanding and peace.


Ringing in the New Year!

As we count down to the New Year, I have to confess to being glad to saying goodbye to 2013.  The last 2 years have been tough for our family and I’m looking forward to a more positive 2014.  We’re still not at our ideal place with M, but we now have a diagnosis and every day sees us taking a step – be it forwards, backwards or just to tread water to stay where we are – and we’re hoping to make some real progress in the 12 months ahead.  All that being said, there have been many highlights of 2013, not least of which has been the adventure of starting this blog and below are a few of my favourite:

Wishing you all a happy and peaceful 2014. May your new year wishes be fulfilled.