Tag Archives: retinopathy

Celebrating Christmas 2016

It may only be the second week of January, but Christmas already feels like a lifetime ago and the memories are already fading fast. December was yet again an interesting month for our family and whilst we had irrefutable success at keeping M out of hospital, we had enough other medical crises to more than meet our quota for the year. As I have already shared, December started with a huge scare about my remaining sight when I was incorrectly told that I needed urgent laser surgery to sort out the developing diabetic retinopathy in my right eye. The hugely positive outcome that in fact the diagnosis was wrong and no treatment was required was a massive relief, but those first 2 weeks of Christmas planning were overshadowed by the frightening threat of surgery that loomed over the household.

img_3185Our medical dramas didn’t stop there. Mike took a tumble from his bike back in October when he was cycling to our local train station on his way to work and has been complaining of severe pain in his left shoulder ever since. The initial thoughts were that he may have torn his rotator cuff and so was referred onto a physiotherapist who, as well as recommending a heady combination of co-codamol and naproxen to ease the inflammation and pain, made his own referral for an MRI to be done as soon as possible. Mike had that MRI at the start of December and by the middle of the month had received a letter stating that it looked like he had a possible “avulsion fracture of the greater tuberosity of the humerus“, but that it would need to be reviewed by a consultant to confirm diagnosis. That diagnosis has now been confirmed and further complicated by the onset of frozen shoulder, a common occurrence following this type of injury. Last week Mike was treated with a cortisone injection and is already beginning to feel some of the symptoms beginning to ease a little, though we have been told it could take a number of months for his shoulder to recover completely. He struggled with taking the co-codamol and a switch to Tramadol has helped massively there. Unfortunately, despite skipping a dose of the Tramadol so that he could enjoy a glass of something with Christmas lunch, the alcohol and painkiller combination didn’t really work and he spent a lot of Christmas Day asleep, which didn’t go down well with most of my family!

img_13241As for M, well he was looking forward to celebrating his big sister’s birthday at home with her for the first time in 3 years as well as taking part in all of the end-of-term Christmas activities being held at school. Unfortunately, once again his health took a nosedive as he came down with both ‘flu and tonsillitis during that last week and was really quite poorly for a few days. We knew he wasn’t well when he decided not to go to our local pantomime with us and instead stayed at home and in bed with my Mum for the evening. The necessary course of antibiotics took their toll on his system and we found ourselves taking a few steps back from our hard-won gains from the last few months. M has gone back to school recovered to generally good health and eager for the term ahead.

img_13361Despite these small hiccups to keep us on our toes, we celebrated the festive period in style. Christmas was spent with my family down in South Wales, where we were able to enjoy a refreshing walk around the nearby reservoir in fine Boxing Day tradition. Both children were thrilled with the presents they received and have been engrossed in listening to their new CDs – Olly Murs for G and Pentatonix for M – or reading their new books, as well as the inevitable time spent playing on the Wii U that was M’s main present. This last has proved to be a real opportunity for the children to work together and pool their resources as they were keen to buy a Disney Infinity starter pack with additional characters and spent a lot of time researching and budgeting before asking me to help them buy their final choices with their pocket-money. We’ve been ice-skating, saw New Year in with friends, managed a return visit to the pantomime so M could see it too, gone on walks and spent time together as a family. All in all, the perfect end to 2016.

Enjoying a little Olly Murs!

Enjoying a little Olly Murs!

Eyes on Diabetes

jdrf-t1dfootprint2016 has marked 2 significant milestones in my life, both of them linked by 1 common factor: Type 1 Diabetes. Back in February I celebrated my 39th birthday and my 30th diaversary, something I can never ignore as they fall on the same date, but this year has also marked 18 years of living with a complication of that disease, diabetic retinopathy. As a rebellious and angry teen, I never anticipated that the years of refusing to accept and manage the illness that set me apart from my peers would ultimately result in near complete loss of sight in my left eye. Of course I knew that the risks were there, but I didn’t fully understand that the problems could, and in my case would arise when I finally stepped up and took control once again, determined to make T1D only a bit player in the story of my life. I now have to live with a permanent reminder of just how damaging this illness can be.

For those who don’t know, diabetic retinopathy is caused when the fluctuations in blood glucose levels cause changes in the blood vessels in the retina. New blood vessels may grow on the retina to improve the blood supply there and in turn, these weaker vessels can swell and burst leading to a detached retina or, in some cases, complete loss of sight. If the symptoms of this complication are identified early enough, careful monitoring of the eye can help reduce the need for further treatment and the risks of the problem spreading further. stages-of-diabetic-retinopathyFor those with already well-developed retinopathy, laser eye treatment can be given to prevent those new vessels growing further and reduce the chance of new vessels growing too.

Regular diabetic eye screening should be done on an annual basis and can be carried out at your local optician as long as they have the facilities and expertise to do so.The screening tests are not invasive as they simply require photographs to be taken of the retina and a thorough examination of your eye. In my case, a regular eye examination at my opticians  picked up the signs of retinopathy in my left eye and I was immediately referred on to our local eye hospital for further assessment. What happened over the next few days is still shrouded in something of a blur as consultants were summoned, examinations carried out and advice sought from Diabetes UK as to what my next step should be. The laser treatment I needed to stop the progress of the rogue vessels was done and that really should be where my story ends with lessons learned and an altogether wiser individual moving forward into the exciting new challenges of career choices, married life and parenthood.

Unfortunately, I was not so lucky.

I had the misfortune of being treated by an over-zealous medic, who wanted to ensure that the retinopathy was stopped well and truly in its tracks and that no further intervention was required. Instead of treating the eye with the recommended number of burns, a huge amount more was administered leading to the partial detachment of my left retina and leaving me with less than 5% vision in my left eye. blurred-eyechartThe 18 years since that fateful day have been filled with twice yearly eye examinations at our local eye hospital, regular eye checks, cataract surgery, prism lenses to reduce double vision and the resulting headaches, and the ever-present nagging fear that despite the continuing ability of my right eye to confound the experts by being startlingly healthy in comparison, things could change without warning at any moment. I am still able to drive, though my licence now has to be renewed every 3 years following a specific eye test to ensure that the loss of vision in my left eye won’t impact my ability to drive safely and I can still be independent in the things that I do. I have travelled, got married, had children and continue to build my career as an accountant and my eyesight hasn’t stopped me doing any of those things. My night vision is poor, my depth perception almost non-existent and my colour perception drives the rest of the family mad, but I am fortunate that I can still see.

I am one of the lucky ones in so many ways.

Back in 1991, the International Diabetes Federation (IDF) and World Health Organisation (WHO) created World Diabetes Day as a global opportunity to raise awareness of both types of Diabetes, the reality of living with this disease and the escalating health risks resulting from these conditions. That’s why I’m pleased that this year’s World Diabetes Day (#WDD2016), celebrated today on Sir Frederick Banting’s birthday, has taken “Eyes on Diabetes” as its theme, focusing on two key areas:

  • The importance of screening for early diagnosis of Type 2 diabetes; and
  • The treatment needed to reduce the risk of serious complications.

Statistics suggest that at least 25% of those diagnosed with both types of diabetes will suffer from diabetic retinopathy in their life, with some sources quoting figures as high as 90% of those who have been living with it for 20 years or more. These are statistics that can be reduced and I truly believe that education is key in making that difference. What I hadn’t understood was that a rapid improvement in blood glucose levels can lead to a worsening of retinopathy and my approach to improving my control should have been to do so gradually to ensure that my body had time to adapt. There are always lessons to be learned from the experiences of others and I just hope that my story can add to that education process.

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