Category Archives: Type 1 diabetes

When 37 is the new 46

There’s something special about being able to celebrate* two milestones in my life on the same day. February 24 not only marks 46 years since I came into this world, but also 37 years of conquering an illness that could easily have seen it end if not for an awe-inspiring medical discovery in 1922.

The last year has seen a lot of changes for me in all aspects of my life. I was appointed as the Finance Director for the charity I’ve worked for over the last 3 and a half years or so, which has stretched me in ways I couldn’t have imagined, but has also been more fulfilling than I could have hoped. Working within the social care sector during a time of financial crisis following 2+ years of pandemic has been challenging, but the things I’ve learned and the friendships I’ve built at work have bolstered me during what could easily have been some mentally exhausting moments.

Both children  – well, I say children, but really now one adult and one in their late teens – have started to explore and venture out onto the next steps in their lives and I’ve had to learn to balance wanting to solve all of their problems myself with allowing them to make their own mistakes and find their way through those challenges as best they can with our support as needed.

And my 37th year with T1D has seen another new technological development for me. Seven years ago I spoke about my introduction to the Freestyle Libre, the flash glucose monitoring system which turned me into the bionic woman and transformed the way I tested my blood glucose levels. Seven years on, my whole T1D life has been revolutionised once again as I’m now the proud owner of a “hybrid closed-loop system” or artificial pancreas, to use the vernacular, which allows my insulin pump to speak to the CGM (continuous glucose monitoring) I wear and adjust the steady administration of insulin to adapt to my changing blood sugars, activities and food intakes.

When that diagnosis happened on my 9th birthday, I’m not sure any of my family could have imagined the changes and developments that would happen to mean that I could spend a little less time focused on getting through each day with T1D in one piece and a little more on enjoying all that life has to offer.

Today will be a quiet day with family, enjoying time with my most favourite people in the world and loving the life I’m able to live with a new constant companion, my insulin pump, to help manage the one that’s been there for almost as long as I can remember. It is time to celebrate both of today’s occasions and I will certainly be raising a glass and a cupcake to do so.

*I thought long and hard about whether celebrate was the right word here or not. Should I have said that I “mark” these landmark points in my life rather than “celebrate” them, but I decided not. I do celebrate 37 years of living with T1D, of surviving all that it has thrown at me over the years and that is something to be proud of and that’s worth celebrating in style.

January 2022: 100 years of insulin

11th January 1922 – 11th January 2022

100 years to the day that the very first dose of insulin was administered at Toronto General Hospital to a 14 year old boy called Leonard Thompson, who was on the brink of what would have been a fatal diabetic coma.

That moment was revolutionary and from then on, life was never the same again for millions of people across the world.

Having discovered an effective treatment for diabetes, Frederick Banting, Charles Best and Dr James Collip were awarded the American patents for insulin in 1923, which they then sold to the University of Toronto for just $1 each. This life-saving treatment they gave away with no desire to sell it on for a profit, understanding how important their discovery was to all who live with diabetes and that it would no longer be the death sentence it always had been. Unbelievably today thousands worldwide, in both developed and developing countries, are unable to afford even a fraction of the insulin they need to not only keep them healthy, but keep them alive. 

I’m forever grateful for this discovery and the generosity of those who developed it as without it I wouldn’t be here today, nearly 36 years since my T1D diagnosis.

2021: A Milestone Anniversary – 7Y2D COVID-19 Diaries Week 49

This week I’ve managed to book a couple of those annual leave days off work and am celebrating a milestone anniversary from the comfort of my sofa, rather than at my desk. It doesn’t seem possible that today marks 35 years of living with what I previously described as my one constant companion in life, my Type 1 diabetes.

The last 35 years have unquestionably had their ups and downs as far my T1D is concerned. Amongst the ups was my move to using diabetes technology just before I marked 30 years with T1D, when I first tried out the Freestyle Libre and these days I can still be found with this small device attached to my arm. When I started with it, I made the financial decision to have 2 weeks on and 2 weeks off, but soon realised that I appreciated the ease of it more than expected and quickly determined that it was worth the investment of wearing it permanently. Five years on and I’ve finally had my sensors approved by the NHS and am able to get them through my monthly prescriptions, alongside my blood glucose testing strips, needles and insulin.

As for the downs, well, I’ve talked before about the loss of sight in my left eye following botched treatment for diabetic retinopathy many moons ago as well as the fear I faced when told that I urgently needed treatment in my right eye too in more recent times. Following a second opinion at that time I managed to avoid the treatment, but five years and many phone appointments with my consultant later, it was agreed that I needed some pre-emptive laser surgery to hopefully head off any further complications at the pass and so had it just before Christmas. It wasn’t the ideal time given the risks of heading into hospital during a pandemic, but the precautions taken were excellent and all went well. It did leave me with very blurred vision and sore eyes over the Christmas and New Year period, but I think I rocked the “sunglasses in December” look in style.

I don’t know what the next 1, 5 or even 35 years will bring in relation to my T1D, but I know it will no doubt continue the roller-coaster ride that I’ve been surfing since I was 9. The one thing I do know is that today there will be cake and bubbles and presents and a special dinner to celebrate – although that might be more to do with the fact that I’m also celebrating my birthday today and not just my diaversary!

Be my Valentine…and #SpareARose

How did your day start today? With a card, chocolates or maybe a bunch of flowers? A promise for dinner tonight? Or maybe tonight will just be a quiet night in front of the TV.

You can’t have missed that it’s Valentine’s Day today and you may, or may not, be celebrating it.

Whatever your plans, could you please do just one more thing?

By gifting the price of one single rose (£4) to Life for a Child, you will be helping the Diabetes community to “take care of one another around the world” and giving one month’s supply of life-saving insulin to child living with T1D in an under-resourced country.

It really is that easy and what a wonderful gift to share with your loved one this year.

Happy Valentine’s Day!

OTW Siblings #Take Two

This time last year, this happened:

and since the start of February, when the email finally arrived in my inbox confirming that G would once again be heading off to the depths of Dorset for the fabulous Over The Wall South Siblings Camp, the clock has been counting down. I’m surrounded by reminders of this amazing organisation wherever I look, from the screen saver on my phone to the calendar on my desk at work and it’s reflected every time I hear G or M, or sometimes both, bursting into a song from their time away at camp.

The next 5 days are going to be busy ones as I wash, iron, sort and pack G’s clothes for next week. We need to make sure she has enough for every eventuality – sunny days, wet weather, swimming, archery, arts and crafts, the talent show and the all important disco. Unlike last year, when she refused to even consider being part of the talent evening until she got there and then taught her team, the totally epic Purple Girls, a dance routine to Omi’s “Cheerleader” track; this year G is torn about which talent in particular she wants to perform. It could be a clarinet solo, which M would love her to do, or it might be a new dance routine, this time with costume. I’ve told her she really needs to have made her decision by the weekend, so I can ensure she’s got everything she wants with her when we set out on Monday. We’re so thrilled that G has the opportunity to benefit once again from the fantastic work done to support siblings of children with health challenges and I can’t wait to hear all about this year’s week away from home with OTW.

You may remember that since G’s adventures with Over The Wall last year, we have been raising awareness and funds for this incredible cause and I created this video to show our reasons for supporting them:

#40thcelebrations

It will come as no great surprise to many of you when I say that February 2017 has been all about the #40thcelebrations in our household. Last year, I marked the occasion of 30 years living side by side with T1D, so this year it only seemed fitting that I celebrated with equal clamour that next big milestone in my life: hitting the big 4-0. c5ao3diwmaatk4uI am a huge fan of celebrating birthdays in style and you will often find the birthday cards in our house hanging around for a good 2 or 3 weeks past the notable date itself. Unlike my husband, and possibly much to his disappointment, I don’t likeabsolutely hate…’m not so keen on surprises and would much prefer being involved in the planning, to a greater or lesser extent, of any significant occasion. The plans for celebrating my 40th this year were no different.

When I turned 30, there were 2 destinations I wanted to visit, Las Vegas and New York. We discussed at length where we would go and settled on Las Vegas, with the clear understanding that only New York would do when it came to turning 40. The last 12 months or so have been filled with booking, researching and planning the finer details of our perfect trip to this iconic city and since just before Christmas, the excitement has gradually been building. Thanks to my Mum, we were able to spend an entire week in the USA and even managed to tag on a couple of extra days at the beginning to be part of the judging panels for this year’s Free From Food Awards. Her generosity meant we could take full advantage of travelling without children and fitted the trip in before we hit the price hikes of February half-term.

c3p22qjweaihqonWe decided to travel with Virgin Atlantic, from whom we have had great customer service in the past and again were not disappointed, especially when they marked my birthday with a couple of complimentary glasses of bubbles and bars of chocolate on the flights. We also chose to book our hotel and city passes as part of a Virgin holidays package and settled on the Hotel Beacon for our stay. Located on the Upper West Side of NYC and within 5 minutes walking distance of Central Park, the Hotel Beacon was a fantastic choice and we loved everything about it. As well as being able to walk to Central Park, we were also able to walk the couple of blocks to the 72nd subway station and were surrounded by a great selection of cafes and restaurants to try. What we particularly liked was the fact that the rooms have fully equipped kitchenettes, which may have only had a limited use for our stay this time, but would be perfect for when travelling with anyone with food allergies who might want to prepare safe food themselves.

img_34951Our trip was understandably dominated by our sightseeing plans and we did pretty much everything we wanted with a few added extras thrown in for good measure along the way. I’d be hard-pushed to narrow down my favourite part as everything we did was gloriously marvellous in their own unique ways. Mike loved seeing the architecture of the city, from the splendour of the Empire State Building and the Chrysler Building, to the stunning beauty of the interior of Grand Central Station and the sheer engineering magnitude of the Statue of Liberty. One of Mike’s favourite parts was, without doubt, our Sunday spent on Ellis Island, where he was able to track down the immigration paperwork for when his mother and her family moved from Jamaica to Canada by way of NYC in the late 1940s.
img_35731I loved our wander through Central Park, both in the blazing sunshine and then again in the snow as we made our way to the Frick Collection, a fabulous small museum containing some leading Old Master paintings and sculptures. Around every corner we stumbled across yet another masterpiece and I am so grateful to my colleague who recommended this as an ideal way to spend a couple of hours seeing these well-known pieces of art. Thanks to our open bus city tour, we also discovered, to my absolute delight, where we could see the original Winnie-the-Pooh and friends given to Christopher Robin Milne before they became the inspiration for that much-loved children’s classic, a visit that took up hardly any of our time and yet was a worthwhile stop for this literature fan. In stark contrast, we spent a long afternoon at the 9/11 Memorial, a hauntingly heart-breaking and harrowing museum to visit, which did an amazing job in walking the visitor through both the timeline as it unfurled on the day and the stories of great heroism and unbelievable tragedy.

Our week-long stay was a truly fantastic way to celebrate my 40th year and there is so much more that I’ll be sharing over the next few blog posts.

Indescribable fear

b6e83c2b62a1e0ec0cd3fbc189efbc94When I wrote this blog last week, it was one of the hardest things I’ve ever sat down to write. Life has a way of throwing a curveball when you least expect it and these last 2 weeks have been no exception. My words captured my emotions at their most raw, at their most honest, when the fear of what could be had me tightly in its grip.

In November I wrote a blog all about World Diabetes Day 2016 that contained these words:

The 18 years since that fateful day have been filled with… the ever-present nagging fear that despite the continuing ability of my right eye to confound the experts by being startlingly healthy in comparison, things could change without warning at any moment…”

not realising that that moment would come so much quicker than any of us expected. Before Diabetes awareness month had finished, I went for my annual retinal screening at the local eye hospital and was given the devastating news that my right eye is showing the early signs of diabetic retinopathy. I was told that there is no choice. That I have to have laser surgery as soon as possible. Before Christmas. The last few days have been full of unending tears and constant fears about what this could mean for my sight and not just my future, but the future of our family’s life together.

The good news is that the retinopathy has been caught early, far earlier than that in my left eye 18 years ago and the consultant is confident that the amount of laser burns I will need should leave me with enough vision to still be able to safely drive my car. He listened to my concerns that the same complications could occur again and told me that technology and the equipment used has come on a long way and that the treatment is a lot more gentle than it was then.

The truth is that I’ve a lot to be grateful for this time round, but that doesn’t stop the fears that have haunted every night’s sleep since that appointment.

The fear that I might never be able to read or write without aids.

The fear that adventures to new places will be restricted to the things I can hear and smell and that I will no longer be able to fully appreciate the beauty of the world surrounding me.

The fear that I will lose so much of the independence that we all take for granted and will become dependent on those who surround me.

The fear that there will ultimately be an unfair role reversal and my children will feel a responsibility to look after me that they should never have to feel, ever.

The fear that I might not be able to clearly see my beautiful children’s faces ever again.

Nearly 2 weeks on and the fears have been joined by their eager and willing bedfellows, confusion and doubt.

treatment-questions-quote

Unable to trust fully the opinion of our local eye hospital who did, after all, make such a dreadful mistake 18 years ago and left me dependent on the ongoing health of my right eye, Mike and I took the decision to go to Moorfields Eye Hospital, London for a second opinion. I needed to be sure; to be certain that this time the advice I’d been given was right and to have the confidence in the doctor who would treat my eye. That’s what we expected to get, but instead I’ve been left confounded by the outcome of that appointment, almost as much as I was stunned by the appointment at our local the previous week. Last Wednesday, this consultant said that he could see no signs of diabetic retinopathy in my right eye. None. At. All. He could not identify anything that would cause him to support the suggestion of my local hospital that I had urgent laser surgery and would, in fact, suggest that, given my past experience and subsequent loss of sight in my left eye, no treatment be given at the moment. He could not justify even considering it as an option.

Which left me feeling absolutely bewildered. Two top eye hospitals; two specialist doctors; and two very different opinions. I wanted to be pleased by the new diagnosis, but those fears had taken a hold and weren’t willing to let me go without a fight.

So yesterday I was back at our local eye hospital, seeing my named consultant, who is considered to be one of the top ophthalmologists in the field of diabetic retinopathy. This is a specialist who knows me, saw me safely through 2 pregnancies and carried out my cataract operation 8 years ago. I can’t lie. My confidence in our local hospital is at an all-time low and I dread to think what the outcome might have been if we hadn’t decided to seek a second opinion before the surgery took place. The outcome was the very best that I could hope for. She completely concurred with her Moorfields colleague and said that laser surgery is the very last thing I need right now. She acknowledged that our trust in our local hospital will be at rock-bottom and knows she has to do a lot to rebuild our faith in them. From this point on, she has insisted that I will only see her for my future appointments and has given me free access to her via her secretary whenever I need it.

The last 2 weeks have been a terrifying rollercoaster ride that we were unable to escape until we reached the end. We have been supported by our fantastic families and an amazing group of friends who have offered love, prayers and help every step of the way. That help has enabled us to protect the children from the turmoil and kept our fears from impacting on them.

I am hoping beyond hope that those fears will never be realised, but only time will tell.

Breaking the curse

Reaching today feels like something of a landmark moment. We’ve had our fingers crossed that we’d get to yesterday’s date without so much as a hiccup to stand in our way and we’ve not only reached it unscathed, but have surpassed it with no sign of looking back. Saturday was December 3rd and we were all feeling more than a little nervous about it. The date might not ring any bells with you, but in our household, hitting midnight on the 3rd at home felt like a huge achievement. For the last two years, that date has signalled the start of a hospital admission for M and we were desperate that history wouldn’t repeat itself for the 3rd year in a row. Of course, in both 2014 and 2015 we knew that the admissions were planned and it was just a case of waiting for a bed to be available for him, but nothing prepared us for the unlikely scene of déjà vu when the phone-call came summoning us to London once again, exactly one year to the day of the previous one.

There was no reason to think it would happen again, not least because there are no further admissions planned at GOSH and we had already told our local hospital that we wouldn’t even consider a December admission this year, but the fears of our “December 3rd curse” were there anyway. I’d like to say that the weekend passed without event, which is really what we would have preferred, but as ever in the 7Y2D household that isn’t quite the case. There have been unplanned hospital visits and unexpected procedures discussed for family members other than M over the last week, and the implications of those are still being mulled over as decisions have to be made and soon. However, most importantly, today is December 5th; M and G are at school, Mike and I are at work and that’s just the way it should be.

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Now we can start to enjoy Christmas!

Eyes on Diabetes

jdrf-t1dfootprint2016 has marked 2 significant milestones in my life, both of them linked by 1 common factor: Type 1 Diabetes. Back in February I celebrated my 39th birthday and my 30th diaversary, something I can never ignore as they fall on the same date, but this year has also marked 18 years of living with a complication of that disease, diabetic retinopathy. As a rebellious and angry teen, I never anticipated that the years of refusing to accept and manage the illness that set me apart from my peers would ultimately result in near complete loss of sight in my left eye. Of course I knew that the risks were there, but I didn’t fully understand that the problems could, and in my case would arise when I finally stepped up and took control once again, determined to make T1D only a bit player in the story of my life. I now have to live with a permanent reminder of just how damaging this illness can be.

For those who don’t know, diabetic retinopathy is caused when the fluctuations in blood glucose levels cause changes in the blood vessels in the retina. New blood vessels may grow on the retina to improve the blood supply there and in turn, these weaker vessels can swell and burst leading to a detached retina or, in some cases, complete loss of sight. If the symptoms of this complication are identified early enough, careful monitoring of the eye can help reduce the need for further treatment and the risks of the problem spreading further. stages-of-diabetic-retinopathyFor those with already well-developed retinopathy, laser eye treatment can be given to prevent those new vessels growing further and reduce the chance of new vessels growing too.

Regular diabetic eye screening should be done on an annual basis and can be carried out at your local optician as long as they have the facilities and expertise to do so.The screening tests are not invasive as they simply require photographs to be taken of the retina and a thorough examination of your eye. In my case, a regular eye examination at my opticians  picked up the signs of retinopathy in my left eye and I was immediately referred on to our local eye hospital for further assessment. What happened over the next few days is still shrouded in something of a blur as consultants were summoned, examinations carried out and advice sought from Diabetes UK as to what my next step should be. The laser treatment I needed to stop the progress of the rogue vessels was done and that really should be where my story ends with lessons learned and an altogether wiser individual moving forward into the exciting new challenges of career choices, married life and parenthood.

Unfortunately, I was not so lucky.

I had the misfortune of being treated by an over-zealous medic, who wanted to ensure that the retinopathy was stopped well and truly in its tracks and that no further intervention was required. Instead of treating the eye with the recommended number of burns, a huge amount more was administered leading to the partial detachment of my left retina and leaving me with less than 5% vision in my left eye. blurred-eyechartThe 18 years since that fateful day have been filled with twice yearly eye examinations at our local eye hospital, regular eye checks, cataract surgery, prism lenses to reduce double vision and the resulting headaches, and the ever-present nagging fear that despite the continuing ability of my right eye to confound the experts by being startlingly healthy in comparison, things could change without warning at any moment. I am still able to drive, though my licence now has to be renewed every 3 years following a specific eye test to ensure that the loss of vision in my left eye won’t impact my ability to drive safely and I can still be independent in the things that I do. I have travelled, got married, had children and continue to build my career as an accountant and my eyesight hasn’t stopped me doing any of those things. My night vision is poor, my depth perception almost non-existent and my colour perception drives the rest of the family mad, but I am fortunate that I can still see.

I am one of the lucky ones in so many ways.

Back in 1991, the International Diabetes Federation (IDF) and World Health Organisation (WHO) created World Diabetes Day as a global opportunity to raise awareness of both types of Diabetes, the reality of living with this disease and the escalating health risks resulting from these conditions. That’s why I’m pleased that this year’s World Diabetes Day (#WDD2016), celebrated today on Sir Frederick Banting’s birthday, has taken “Eyes on Diabetes” as its theme, focusing on two key areas:

  • The importance of screening for early diagnosis of Type 2 diabetes; and
  • The treatment needed to reduce the risk of serious complications.

Statistics suggest that at least 25% of those diagnosed with both types of diabetes will suffer from diabetic retinopathy in their life, with some sources quoting figures as high as 90% of those who have been living with it for 20 years or more. These are statistics that can be reduced and I truly believe that education is key in making that difference. What I hadn’t understood was that a rapid improvement in blood glucose levels can lead to a worsening of retinopathy and my approach to improving my control should have been to do so gradually to ensure that my body had time to adapt. There are always lessons to be learned from the experiences of others and I just hope that my story can add to that education process.

jdrf-ndam

The impact of mental health

In a world that is frighteningly open as people regularly share their location, activities and even the contents of their lunch box via social media, there is still a huge reluctance to linger on anything that hints at emotional instability or mental distress; but the sad truth is that matters of mental health are a huge part of living with a chronic illness and not just for the individual concerned. Today is World Mental Health Day, a day that is seeking to raise awareness of mental health conditions in an open and honest way, to encourage individuals to understand more about how these problems can affect just about anyone at one time or another in their lives and how others can support them. There is a tendency to make light of the language used when referring to mental health issues, after all, how many times have we heard someone say that they’re feeling depressed about having to go back to work after a holiday or the break-up of a particular pop group1-in-6-wmhd, when what they really mean is that such events have saddened or upset them rather than the total immobilisation that comes when you struggle with depression on a daily basis. I am not devaluing the emotions they may be experiencing when those things happen, but are they really akin to the overwhelming nature of depression? I think not.

I don’t speak lightly as I have been dealing with the constant presence of recurring depression since my teenage years. I know what that “black dog” is like and just how much it can impact on your ability to function on a day-to-day basis in the real world. As a teenager living with T1D, I struggled with accepting that this was a reality that was never going to change for me, that the need for regular injections, sensible eating and facing the risk of serious complications was never going to disappear. I didn’t handle it well. Though few of my peers may have realised it at the time, I refused to do what I needed to do to maintain my health, not because I wanted to cause myself problems, but because I couldn’t see a way to live like my friends and not feel isolated by my T1D diagnosis. I know that I was not alone in my reaction to my chronic illness and my family and I owe a great deal to my fantastic consultant who worked hard to help minimise what often felt like insurmountable differences as I went through those troubled years. With time and support, untitledI did eventually come to terms with my diagnosis, though sadly my determination to get my T1D control back on an even keel brought with it an unexpected complication with my eyes, which in turn has led to even more serious implications than I could ever have imagined when I was 13 and feeling very much on my own in a battle against the rest of the outside world.

Move forward a few years and I found myself back in the mental health fight when I was diagnosed with post-natal depression following the difficult pregnancy and early arrival of M. This time I was more open to receiving help and my diagnosis, when it came, proved a huge relief as I didn’t have to actively speak out and ask for that support. Having struggled with counselling as a sole answer to my depression as a teenager, I readily accepted the suggestion from my GP that I be prescribed with low-level anti-depressants for the first few months and am not ashamed to say that those helped me through some very dark times indeed. Anti-depressants are not for everyone, just as much as counselling hasn’t always proved to be a success for me. There should be no stigma attached to needing that medicine to survive the battering of a mental health problem. It is a necessity for some, just as insulin keeps me alive or a feeding tube and elemental feed proved to be what M needed to help him regain better health.

I have learned over the years to identify when I start to feel a little low and my ability to cope with the everyday becomes more of a strain. Mike and my Mum have developed their own sixth sense to pick up when I am beginning to struggle and offer me their unfailing support as I try to find my way back out of the pit. Our 7 year journey to get an initial diagnosis for M and the ongoing challenges in keeping him fit and well have taken their toll and there have been times when tempers are frayed and relationships fractured because of it. 1-in-3-traumatic-event-wmhdThat strong support network of family and friends who are constantly surrounding me is invaluable and the knowledge of what is really important – M and G – keeps me getting out from under the duvet every morning and making my way through each day.

Even more importantly, my own experiences with chronic illness mean that I am well-tuned to the impact that his own diagnosis will have on M. It is a frightening reality to face that your own child might end up fighting the same demons that you did at that age, but it also gives me an insight that lends a level of trust and understanding between M and me that is unlike the relationship he has with anyone else. I can fully empathise when life seems unfair and unjust and he can allow his emotions to pour out because he believes that I get it. We have long been arguing for psychological support for M and finally, thanks to a developing shared care relationship with our local hospital, that seems to be being put in place. Our new gastro consultant has fully acknowledged that the EGID diagnosis will have not only shaped the person M has become, but also had an effect on G and on our family dynamics. He wants to adopt a holistic approach to treating M and the next few weeks will tell if that is a solution that will make a significant difference going forward. I know that recognising the signs of mental stress now are really important when it comes to M’s ongoing mental health, especially as there can be no denying that he already struggles with mood swings, anxiety and feelings of isolation, not just due to his EGID, but also because of his dyslexia and dyspraxia. Early recognition of those symptoms will help us and the medical professionals find a way to put into place coping mechanisms that will serve him, not just now, but into his adulthood too. He already has a good cohort of friends surrounding and looking for him, but they are young, only 10 years old. Just as with any other child as they grow up, he will learn to distinguish those who will stand by him through thick and thin and those who are just there for the fun times. Most importantly to me, 70300is that he doesn’t feel ashamed or embarrassed by the times when he’s not able to cope emotionally, or mentally, or even physically with the pressures that his diagnoses will have on his life, and that he learns to openly acknowledge them; and that he realises that he’s not on his own in that regard.

Likewise, we can’t ignore the reality that having a chronically ill sibling has a massive impact on G and her mental health too. The Young Carers meetings that she has attended over the last few months have covered the areas of anxiety, facing fears and anger management, which are all inextricably tied up with the role of being a young person caring for another. Those sessions have taught her strategies for dealing with her yo-yoing emotions and provide an outlet for them in a safe and understanding environment. She has made stress balls and relaxation jars to bring home and use as she needs. I hope that the proposed psychology appointments at our local will not only look to support M, but also to help G in her own right as well as us as a family. These are all things you don’t want to even consider that your children might ever need to deal with, but there is no escaping the reality of chronic illness and mental health, and we need to accept our responsibility to help them both. That is the key message of today’s World Mental Health Day – that we all have a role to play in supporting those around us as best we possibly can.black-dog-step-on-you