It’s been a long time coming, but finally, 20 months after our last trip to New York, we managed to get away and enjoyed a week in the Lake District for our summer hols. I have been looking forward and counting down to our break, not least because I was excited to have a chance to look at a different set of 4 walls for a few hours – 20 months of lockdown and shielding will do that to a girl! We had planned the trip months ago, and with the huge increase in the number of UK holidays being booked as well as climbing prices, I’m really glad we did so as it was break away from home that we all needed.
As we have done so many times in the past, we decided to stop off on our way there to not just break the tedium of the lengthy car journey up, but also to take G and M somewhere they hadn’t been before. In this instance, Blackpool seemed an obvious choice, not least because neither Mike or I had been there either. After an early start, we reached Blackpool in time for a late lunch and it seemed the perfect opportunity to find gluten-free fish and chips for us all to enjoy. As always I did as much research as possible before we arrived and found what looked to be a good contender with consistently positive reviews and talk of a dedicated gluten-free fryer.
The weather was glorious as we strolled along the prom towards Bentley’s Fish and Chip shop and by the time we reached the shop we were all more than ready for our lunch. Tucked away from the main stretch of Blackpool, we decided to sit at one of the picnic tables outside the shop and enjoy the August sun alongside our fish and chips. The portions were plentiful and received rave reviews from us all. Lunch finished, we headed to the Adventure Golf course near Blackpool Pleasure Beach to play a quick round of mini golf before resuming our journey to the Lakes.
The weather was brilliant and it was a super start to our family holiday and I even managed an elusive hole-in-one nearing the end of the course!
It was then back to the car and onwards to our final destination, which was a lodge at the beautiful Brockwood Hall near Millom. I had found it thanks to a recommendation from a friend and it was a wonderful base for our week away, albeit perhaps a little more remote than we had originally thought. We particularly enjoyed the peacocks roaming the site, even though they were extremely noisy in the evenings, and G was delighted to count 9 of them one morning just a stone’s throw from our lodge.

National Eosinophil Awareness Week: We have been very active in raising awareness about eosinophilic diseases for a number of years, but decided to start taking a step back from that last year. Eosinophilic Colitis (EC) was the initial diagnosis that we received for M all those years ago from his consultant at GOSH, but in recent times, the diagnosis criteria for this condition have faltered and existing diagnoses have been actively
Mental Health Awareness Week: Mental health well-being has been a buzz word in our household for a number of years and never has that been more important than now as we see the impact of 9 weeks in lockdown on us all. I’m a happy introvert, who enjoys spending time in my own company and so, in many ways, lockdown life is suiting me quite well. Regular contact with my work colleagues through Zoom and conference calls, webinars and online catch-ups with other friends is keeping me in touch with the outside world, which is especially important at a time when my T1D is keeping me at home.
The buzzword for MHAW has been Kindness and considering what random acts of kindness you can do for others has been much encouraged. However, I think it’s key to remember that, whilst showing kindness to others in all situations is important, so is showing kindness to ourselves. We truly are living through extraordinary times and we shouldn’t feel guilty if we are not coping as well as we perhaps believe we should. Be that by taking some time to do something we love to do as an individual – bubble bath anyone? – or spending time relaxing with our family or even reaching out to a friend because we just need to talk, being kind to ourselves will improve our own well-being, which is something we all need right now.
Nothing brightens up a gloomy day like a beautiful sunflower. Tall, majestic and reaching for the sun, its bright yellow colour is sure to cheer up even the darkest of moments. There really is just something intrinsically cheery about this flower to my mind; but did you know just how powerful sunflowers can be?
hassle. They formed a part of the big reveal on 
In the years since our wedding in December 1999, our family has doubled in size and we’ve moved schools, houses and jobs at a rate that has to be seen to be believed. We’ve survived illness and loss within both our families and our friends, and continue to do so on a daily basis thanks to some long-term diagnoses that have oft-times caught us when we were least expecting them. Chronic illness has become a much bigger part of our lives that we could ever have imagined, but with that has also come some amazing friendships, connections and opportunities that we never even dreamed would happen and that, in many ways, I wouldn’t change for the world.
we’ve turned our hands to a few other things – some old, some new – to see just how much we can raise. We followed the “sparking joy” fashion and adopted a Marie Kondo approach to clearing out our wardrobes, committed to giving a regular amount each month and even stood in the entrance of our local Tesco superstore a couple of weeks ago to collect what we could and spread the word about the camps too.
If you’re not able to donate, but live near a Tesco store in one of the following areas*, OTW is one of their Bags of Help Centenary Grants recipients until the end of August and by adding your blue token to their box, and encouraging friends, family and fellow shoppers to do the same, you will help them receive a significant grant that will be genuinely life-changing. Remember “Every Little Helps”, even if that’s by a blue token!
I had spotted that that 1 bite was still in situ and now sporting a rather angry-looking red rash around it, so determined it worth getting that checked out whilst we were there too. Add in the fact that one of M’s classmates had been diagnosed with shingles the week before and I had yet one more thing swirling around the back of my head as something else to be mentioned as well.
However, it was the bite that really raised our Dr’s eyebrows and after a few probing questions from both him and me, I had a sneaking suspicion that I knew where we were headed with this rash. One week on, a 5-day course of anti-virals to treat his spreading shingles rashes and the third doctor’s appointment of the week, there was no question what was going on with M. The red rash circling his bite had become the most perfect bulls’eye rash and
odd soya pudding – especially the chocolate ones – on occasion.
18 months ago I came across
which thanks to our recent successful introduction of Vitalite dairy-free margarine to M’s diet, only needed me to swap the flour to make it perfect for him. It didn’t take long to whip up the first batch and G and M were delighted to taste-test them for me.
An hour or 2 in the fridge and the
One of the Christmas presents we were treated to this year was family tickets to go and see Matthew Bourne’s “
About halfway up the hill, we stumbled across the marvellous
appetite of the youngest member of our family. I wouldn’t hesitate recommending this restaurant – excellent food, prepared simply, served quickly and all at a great price.
I think we would all heartily recommend seeing this production, though it turns out that I’m something of a traditionalist when it comes to the setting, much preferring the classic portrayal of the Swan Lake tragic love story. It was fascinating to talk to G and M about their thoughts on the production, with M uncertain as to whether the second half was a dream or not and both expressing the view that the role of the Swan/Stranger represented the 2 sides oft he Prince’s psyche. This was a performance that really challenged everything we knew and expected of a ballet and was a truly amazing experience. Despite my hesitations about some parts of this version, I am fascinated to see how Matthew Bourne has adapted and updated other ballets and hope to be able to see another of his productions soon.
Circumstances last year meant that we didn’t really do much to celebrate his 12th birthday, so I was determined to kick off his teen years in whatever fashion he wanted.
was wonderful to see and we’ve been serenaded with renditions of both “Bohemian Rhapsody” and “Seven Nation Army” since late Friday night! I’m just glad the bass guitar lessons he’s been having at school appear to be paying off already and delighted to see him so wiling to practise in every spare moment.
We were lucky to escape with just 2 minutes to spare and although Mike and M’s team were not quite so successful – they had found all 4 keys, but failed to open the door in time – everyone enjoyed themselves and were ready to move on for a dinner to suit all dietary needs that were present.