Category Archives: Parenting

Cornish treasure

Of course, despite rumours suggesting otherwise, our week in Cornwall did not purely revolve around places to eat and we had an amazing time exploring many of the beautiful nooks and crannies the county has to offer. This wasn’t a week for sitting on a beach relaxing as instead we crammed as many day trips in as we possibly could and spent a lot of time making some marvellous, magical memories. Just as I gave you a quick taster of the many restaurants we were lucky enough to enjoy, here is my overview of some of the best places we visited and the adventures we had during our stay:

Fowey River Trips – having arrived in Fowey in time for lunch and enjoying a great meal at the Galleon Inn overlooking the river, 20150822_144741M begged for us to take a boat trip from Fowey harbour, which sailed us past such treasures as Daphne DuMaurier’s house before heading back towards the mouth of the estuary. It was a wonderful way to see a little of the area we were visiting before our week really started and we were able to enjoy the last races of the Fowey Royal Regatta from the water too. Both M and G enjoyed the trip, which was an amazing first as M usually needs coaxing onto anything smaller than a transatlantic cruise liner! They were quick and eager to ask questions of the skipper and we were lucky enough to share the boat with some locals, who were happy and keen to explain more about what we were seeing as well as pointing out many of the birds to be spotted along the river’s edge.

Eden Project – this was M’s choice for a day out and despite our disappointment at the food offerings available and the inevitable rainy start, all in all we had a wonderful day. This wasn’t our first trip to the Project and it was fascinating to see how the environment had developed since the last time 5 years ago. The children loved spotting the different plants they knew in the biomes and M took particular pleasure in b20150824_171621eing photographed next to the rice. This summer, the Eden Project was also home to the Dinosaur Uproar, which meant there was lots for G and M to do whilst we were there. They enjoyed the puppetry displays, though both were a little nervous of the giant dragonflies when they first took flight nearby! Sadly, the wait to climb up to the Nest platform for a bird’s-eye view of the Rainforest biome was just too long for us to endure, but we did enjoy the Rainforest canopy walkway, which gave us a taste of what you could see from the very top and at least it leaves us with a good reason to go back and visit another time.

St Ives – G’s pick for the holiday was to visit an art gallery and what better place to go than the Tate St Ives? Thanks to a top tip from my ever-trusty hairdresser, I was also keen to take a peek at the fascinating sculptures at the Barbara Hepworth Museum and thought it might provoke some interest in both G and M too. We parked at the fantastic Lelant Saltings park and ride to travel into St Ives via train and not bus as we’re more used to doing in our home town. The Tate St Ives had organised a children’s art trail between the Barbara Hepworth house and the Tate itself, which asked them to identify 12 pieces of art from the partial images given and note down the artist, the name of the artwork and where they had spotted it. Two pieces were taken from the route between the two sites and provided a great opportunity to explore the art on display at each. Having found 11 of the 12 works, we stopped for G and M to take part in the creative workshop, which asked them to create sea-themed art of their own in clay.

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We must have spent a good hour there as their creative juices flowed and they created stories behind what they had made to share with the volunteers running the workshop. G recreated her pinch-pot “werefish” she had first made during the first week of the summer holidays and M gave his interpretation of a sea serpent – “…but it’s not Nessie Mummy…” I’m still not convinced I’m a fan of modern art – give me the National Gallery any day – but it was a great way for the kids to access it and start to develop their own opinions.

St Michael’s Mount – in what now feels like a lifetime ago, I sang with my cathedral choir at the awe-inspiring St Michael’s Mount and have fond, though somewhat vague memories of that whole trip. It is a place that none of the rest of the family had been to and so was the perfect place to go back and visit whilst in the area, so to speak. 20150828_113744M was fascinated by the nature of the local tides, which means that the Mount is accessible by foot for part of the day and by boat for the rest of it and was desperate to experience both – a wish that was easy to fulfil. We arrived at the Marazion car-park fairly early and were thrilled to be able to walk across the sands and then the causeway to the Mount. The children were curious about how the tides would cause the walkway to disappear later in the day and keen to see it happen.

We started our visit at the Castle, having spotted the Giant’s heart stone on our way up the steep and rocky path. The views from the top were amazing and we discussed how difficult it would have been for anyone to successfully scale the rocks to attack. Inside the castle itself, G and M decided to attempt the quiz and were interested in talking to the numerous guides dotted around the rooms to find out more about what we could see on display. M was particularly taken by the story of the 7-foot man banished from the mainland, who took refuge with the monks and is now convinced that 20150828_131826he is the “truth” behind the story of the giant, which we later heard told by the storyteller in the grounds. Before we headed back down to the beautiful gardens, we watched from the top as the waters began to cover the walkway and commented on those brave few who were still venturing across by foot. G and M could easily have spent hours exploring the gardens surrounding the castle as they clambered up and down the winding, narrow pathways and stairs that led to nowhere. The WWII pill boxes that surrounded the coastline also captured their attention and our day there turned into an unexpectedly educational trip! We returned back to the mainland by boat at the end of the day, tired out, but delighted by our decision to visit.

The Lost Gardens of Heligan – our final day in Cornwall was spent exploring the Lost Gardens of Heligan, uncharted territory for us all and Mike’s fine choice for our adventures. I found the history and story behind the Heligan gardens really interesting and you can read more about it here. Yet again, we were thrilled to find a whole host of children’s activities available and started with the sculpture trail that led us past the stunning20150829_124054 Giant’s Head, the sleeping Mud Maiden and the ghostly Grey Lady. Pausing briefly for lunch, G and M then enjoyed time in the hammocks that had been strung between the trees before coaxing Mike and I into helping them build a den in the woods from the vast supplies available to use. They were understandably proud of the den they designed and worked on together and were disappointed to have to take it apart before we headed on to the next section.

Having dismantled and returned the building equipment, and having even enjoyed a toasted marshmallow or two courtesy of M, we wound our way through the “jungle” towards the Burma rope bridge. I wasn’t quite brave enough to stop halfway across to take photos of my intrepid duo who were following close in my footsteps as I was too worried about dropping my faithful tablet into the depths below, but was impressed that neither child was phased about crossing the jungle floor which was a 100 feet beneath them! We finished our day by the Steward’s house, enjoying the rope swing and traditional garden games that were on offer.

As you can tell, we had the most amazing week away from home, experiencing just some of the Cornish treasures that are on offer. In M’s words, “…it was almost as good as Portugal…” and he’s already clamouring for a return visit next year.

Not quite Mickey-shaped…!

20140818_143459Around about the same time that I started fondly reminiscing about last year’s holiday to Florida, my FB timeline decided to prompt my recollections with this photo of what turned out to be just the tip of the iceberg when it came to the vast array of fantastic M- and G-friendly food in Disney. These Mickey waffles were a huge part of what made our trip so successful and are one of M’s favourite memories about his first visit to “the most magical place on earth“. In fact, they were so popular that they have gained the unenviable status of one of the top 10 foods M is desperate to enjoy once he has a few more foods back in his diet. With so many of the key ingredients for your traditional waffle firmly in the “unsafe” camp, I turned my mind to what the basic ingredients of a successful waffle were and whether I could replace them and produce a waffle that might satisfy M’s longing.

I found a great recipe for egg-free waffles and, confident that I could make a replacement that would at very least look good, even if the taste wasn’t quite all it should be, I insisted on a detour during a family day out to buy my very first waffle-maker. I had previously done some research on the various options out there and once we were in-store, 20150809_184330M helped me pick which one he thought would do the best job – a combined waffle-maker, sandwich-toaster and grill! Shopping done and the day’s activities completed, we headed home and I claimed the kitchen as a child-free zone until my experimenting was done.

The first recipe I adapted produced some amazing waffles and I just wish I had a photo that captured the pure delight on M’s face when he first caught sight of his plate full of M-friendly waffles. Needless to say, he was rendered speechless – something that rarely happens as those of you who know us well will know – and he flung his arms around me, squeezing tight as he whispered “Thank you Mummy, you’re the very best Mummy in the world“. Both children declared them an instant hit and the speed at which those first 4 waffles disappeared from their plates would confirm that to be the case. Mike and I shared a fifth one between us and agreed that as delicious as they were, the rice flour had created a granular taste to the waffles, a problem that I have experienced before when baking with this tricky ingredient. 20150809_185211I have found that making a wetter mix has been key in producing a less granular cake, but couldn’t quite see how to make this work with the thicker waffle batter and the limiting factor of only a handful of safe ingredients.

Not quite 100% satisfied with my first attempt and responding to the following day’s request for “..more waffles please!.” from M and G, this time I searched for a recipe for apple waffles and adapted it to suit our allergy needs. I used some apple purée to not only flavour the waffles, but also to replace the egg and add more liquid to the batter without diluting it too much. This batch cooked as well as the first and proved to be an equal success with my discerning duo. Mike also acted as a taste-tester and reported that the granular texture was considerably reduced with the addition of the apple, though it hasn’t disappeared completely. Whilst I will continue to strive for even better rice flour waffles, for now I’m more than happy to have found a way to replicate those Mickey waffles, even if they’re not quite Mickey-shaped!

Countdown to Cornwall

This time last year I had holiday-planned to within an inch of my life and had experienced amazing support from the folks at Virgin Atlantic. We had arrived at Disneyworld Florida, were impressed by the positive approach to M’s restricted diet shown by all and were loving our days in the sun. It really was a trip of a lifetime and we’ve all been reminiscing a lot about where we were and what we were doing this time last year.

Our plans this year have been much less grandiose and much closer to home. When we first started thinking about our summer holiday plans back in November, all we knew was that M was going to be going elemental sometime soon and would have a NG-tube in place. We didn’t know if it would still be there by the time this summer rolled around and had no idea what he’d be able to eat or how we’d all be coping with the change. We toyed with the idea of a holiday in Portugal, a favourite destination of us all, but just weren’t sure how confident we would be if we needed to travel abroad with a tube in place.  20150812_172857Of course, with the benefit of hindsight and nearly 9 months experience, I am sure we would have coped just fine, but the uncertainty of all we’d be dealing with meant that instead we opted for staying in the UK and so we are now on our countdown to Cornwall.

Our front hallway currently resembles a storage facility as I pull out ready for packing, not just clothes and beach essentials, but safe food supplies for both G and M and, of course, everything we’ll need for M’s tube feeds. We have each chosen a day-trip we’d like to do whilst we’re there as well as researching the beaches surrounding Fowey, our base for the week. Mike has spent time looking at various “wet-weather” options as there’s no guarantee of sun in the UK, even in August, and we have been able to pencil in a day with G’s godmother, Godmama C and her lovely family as they will be holidaying there too. We might be staying in a self-catering apartment, but we’re also hoping to venture out to eat and my time has been spent trawling the internet looking for allergy-friendly restaurants and emailing to find out whether they will be able to accommodate M’s current food needs. cornwall-mapThe great news is that a couple have already replied to tell me that they are up for the challenge and I can’t wait to try them out and share our reviews of just how well they did for both M and G with you all. Even better, thanks to timely posts from fellow bloggers such as The Intolerant Gourmand and dedicated websites like Can I eat there?, I’ve been given some great top tips for making this a holiday to remember.

 

Yet another chicken recipe!

We might be nearly 9 months into life with a NG-tube and in theory should have long since said goodbye to its presence in our world, but the reality is very different. M hasn’t been able to progress beyond our 4 staple foods and it is becoming increasingly challenging to make rice, chicken, cucumber and apple into a tasty and interesting combination for 3 meals a day. 20150710_203444M’s steady consumption of new favourites tempura batter chicken nuggets and arancini di riso has resulted in the purchase of our first-ever deep fat fryer – a piece of kitchen equipment I never envisioned gracing my kitchen’s counter-tops – and I have been concerned about the amount of fried foods he’s now eating on a regular basis. Thanks to a recent post on The Recipe Resource’s Facebook forum, I converted the cornflake-covered chicken balls to a M-friendly version and found a healthier twist to chicken nuggets for him to enjoy.

They were really simple to prepare and it would be easy enough to adapt the recipe to suit your tastes and dietary needs. I’ve added both sage and thyme to the mix and both proved popular with M and G alike and I’m sure you could spice them up with chilli flakes for a more “grown-up” flavour.20150723_190656 The quantities would be easy to adapt too, so that you only make what you need for a meal-time, although M has enjoyed them cold for his packed lunches recently too. I also took the basic recipe and made some crispy fish balls for M’s white fish challenge, which I’m sure, with a little bit more time and effort, could be moulded into all sorts of interesting shapes. It ultimately turned out to be yet another food fail, but M definitely enjoyed the bite-size fish nuggets whilst he could.

The Dr Who Experience

20150725_094348The same weekend we dipped our toes into the Wagamama dining experience, we also visited the Dr Who Experience in Cardiff. This was a trip that has been a long time in the planning and which was the result of M winning the Grand Prize at the Big Bang Science Fair that we attended at the NEC earlier this year. There has been a fair amount of to-ing and fro-ing to settle on a date that suited all involved, but finally the day arrived and the whole family, plus one extra excited 9 year-old, started on our way. We arrived at Cardiff Bay bright and early and meandered our way in the glorious Welsh sunshine towards the purpose-built centre, following an eager M, his friend N and a slightly less certain G.

 

Our visit started with the interactive tour, which led us on an intergalactic adventure to help 12th Doctor, Peter Capaldi, save the universe. It starts in the Gallifrey Museum and weaves it way through various unmistakeable Dr Who locations before reaching its thrilling conclusion. DWS8LondonCapaldiPix2.jpgDespite the initial reluctance of both M and G, neither of whom are fond of loud noises, darkened rooms or unexpected surprises, we made our way through unscathed and N, a much more avid Dr Who fan than M will likely ever be, eagerly took up the challenges we faced. The experience asks that no photos or filming is done during the interactive tour to ensure there are no spoilers out there for future visitors and we were more than happy to oblige.

Adventure completed, we headed into the exhibition hall, which is a veritable feast for any die-hard Whovian who is lucky enough to visit. I could quite happily have spent a couple of hours perusing the costumes, props and other pieces of memorabilia from the past 50 years of this cult TV classic. I was thrilled to see an original Dalek and various incarnations of the Cybermen, the best-loved classic enemies of the Doctor, placed sympathetically amongst their more modern counterparts. There was a fantastic array of costumes featuring not just those of each of the 13 Doctors seen on our screens, but also a selection from some of their ever-faithful companions. Awaiting discovery around every corner were unimaginable treasures including K9, multiple sonic screwdrivers and the iconic Time And Relative Dimension In Space (better known as the TARDIS to you and me) – both inside and out. We spent a happy hour or so exploring all that was on offer, everyone enjoyed the visit and I think I possibly proved myself to be the biggest Dr Who geek of the family!

A taste of Asia

Belonging to an on-line support community such as FABED is fantastic, but also really something of a mixed blessing. The joy of being able to build friendships, ask questions and sometimes simply celebrate a milestone with others through a deft few keyboard strokes is always tempered by the isolating knowledge that these families, walking a similar path to ours, might live hours away from us and chatting in person is not always easy to do. We have been lucky enough to meet up with some families over the last 4 years and have some amazing new friends who really understand the stresses and strains of living with a chronic illness. By far and away, one of the best benefits has been sharing recipes and restaurant recommendations and it was following such advice from a fellow FABED Mum that we recently ventured into a completely new dining experience for us all.

To say we were impressed from the moment we stepped through the door of our local Wagamama restaurant is no overstatement and not one part of the experience that followed let them, or us, down. I’ve learned to broach the subject of M’s complex dietary requirements at the restaurant door to save heartache all round and their greeter not only made a sensible suggestion based on the short list of safe foods I gave him – Mini grilled chicken noodles minus a few ingredients – but also headed off to talk to both the chef and the restaurant manager to confirm they could prepare a tasty meal for M that would be as free from cross-contamination risks as they could make it. Reassured that they could accommodate his food needs, we took our seats before perusing meal options that would also suit the rest of the family. 20150725_174814Whilst M was hugely excited about having rice noodles for his dinner, G was less keen, but with 3 different types of rice available, even my pickier eater was happy.

The restaurant manager acted as our waitress and was invaluable in helping us make sensible choices for all the family and our differing allergy requirements. The greeter had done a great job of passing the information on to her and she started by addressing how they would prepare M’s meal to ensure it was as M-friendly as possible. As M is only able to tolerate rapeseed and coconut oils at the moment, the chef suggested they steamed him a fresh piece of chicken, which had not been marinated, and which would not have the risk of picking up any food or oil traces from their other pans. They also cooked a fresh batch of rice noodles, again in a clean pot to avoid obvious cross-contamination and served them with a healthy portion of cucumber “noodles” – a meal fit to tantalise our young foodie’s taste buds. The plate that appeared was impressive and M gave the meal a well-deserved 9/10 (he wasn’t so keen on the cucumber noodles and docked them a mark for that presentation!).

G chose a stir-fried rice and chicken dish (Mini chicken cha han) from the children’s menu and we saw, once again, the impressive and extensive knowledge the restaurant staff had about their food when I asked if the dish was both gluten- and dairy-free. 20150725_175253The manager knew without checking that the sauce contained gluten and advised that most of the other sauces they use in their dishes do too. However, she was able to recommend Tamari sauce, which is gluten-free and would add great flavour to G’s meal. G was as delighted as M when her bowl arrived at our table and she awarded them a well-deserved 9.5/10.

Mike and I were not only thrilled to have found a restaurant that was hugely capable of meeting our exacting requirements, but also had great meals ourselves. The service was fantastic and when a small error resulted in the wrong side dish arriving at our table, they prepared the one we’d originally asked for and gave us the wrong one for free. Back in March of this year, there was a furore when newly introduced EU legislations required restaurants to provide information about the top 14 allergens contained in their menus and over 100 top chefs and restaurants condemned the requirements as an unnecessary and inconvenient constraint on the spontaneity and creativeness of their profession. From the faultless service to the extensive menu knowledge, every single thing about our meal at Wagamama screams out that no chef worth his salt need be worried about such demands and I wouldn’t hesitate to recommend this restaurant chain to anyone looking for an allergy-friendly place to eat.

And so the holidays begin

We’re nearing the end of the first week of the summer holidays and what a busy week it has been:

G has been taking part in the Explore week arranged by her new secondary school, which allows the current Year 6s and 7s to meet each other, build some new friendships and orientate themselves around the school. 20140523_000817She has had lots of fun learning more about CSI techniques, photography and archery, with pottery, media and innovation and a Mini-Olympics still to come. I suspect G would be hard pressed to name her favourite, but the cookery session got a huge thumbs up from me. I had warned her in advance that, as I had no idea what they would be cooking, it would most probably be a case of preparing the food, but not being able to taste it herself. However, the amazing staff had made note of her allergies and provided gluten-free flour and a dairy-free alternative to the margarine for the cupcakes as well as gluten-free pasta for the pasta sauce they made. I needn’t have worried and couldn’t have asked for anything more.

cache_2460432896Whilst G has been engrossed in the numerous activities at school, M has been equally busy at the week-long holiday club organised by our church. Every year for the last 20+ years. around 250 children from our community have attended this holiday club, which is supported and run by our church. They take part in a whole range of activities from puppet-making to electronics, go out on a day trip and are entertained daily with songs and skits based cleverly on a set of themed Bible stories. M and G have been attending the club for a few years and M couldn’t wait to go along again this year. It’s been a different year for him with G choosing to do something else, but he’s loved every moment so far and can’t wait for the rest of the week.

Mike has had the week off work to support M and be one of the very many volunteers helping lead the groups and look after the children at the holiday club. Having survived the day’s activities, it has been a case of coming home for a quick tea before heading off with G to be a leader at the church’s youth club equivalent of the daytime holiday club, which runs every evening of this week. So far, he has splashed in the open air pool, had a cake built from raw ingredients on his head and indulged in a lengthy water fight. As for me, well, it’s been business as usual and after doing the “school-run” with G each morning, I’ve headed into my office to do a full day’s work. My evenings have been a little quieter than normal as once dinner is out of the way for us all it’s been just M and me to enjoy some time together before bed. All in all, a great start to the rest of our summer.

“Wherever you fly, you’ll be the best of the best!”

This is it.  After 7 years, and more schools than I care to think about, my beloved firstborn, the beautiful G, is finishing Year 6 and heading off into the next adventure of her school career. We’ve cheered at her last Sports Day, been entranced by the Year 6 production of The Lion King and enjoyed all aspects of the Year 6 camp. We survived the stresses and tears of SATs week (just) and this week celebrated an amazing set of results that we’re so very proud she achieved. Tomorrow is her Leavers service and I’ve no doubt emotions will be high, amongst the parents, even if not with the children themselves.  It’s hard to believe that this little munchkin is old enough to go to “big school” in September, but she is and I can’t wait to see what the next steps on her journey will bring:

 

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The quote in the title is from “Oh the places you’ll go!” by Dr Seuss.

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It takes a village

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Do you know that quote?  There’s a chance you might associate it with American presidential hopeful, Hillary Clinton and her 1996 book of the same title, but in fact it comes from an Igbo and Yoruba (Nigeria) proverb and has a sentiment that is echoed by numerous other African sayings.  It recognises the great value of having community involvement in a child’s upbringing, not just for the child and immediate family, but for the extended family and local community too.  As I have mentioned so many times before, we are incredibly fortunate to have an amazing community surrounding us, who are unbelievably supportive, and none more so than our fantastic village school.

Since day one, when G first headed in through their gates, we knew that this was a place that would offer our children not just a great education, but also a safe and secure place to grow and develop, all within walking distance of our home.  The children have had the opportunity to build strong friendships with others living nearby that will hopefully continue into their teenage years and beyond.  In the 2 years that M has been there, we’ve seen time and time again just how invaluable the school community is, not just to M, but to G and to Mike and me too. The impact of M’s ever-changing health has been particularly profound in the last couple of years and there is no doubt in my mind that the unfailing support of their school has been a steadying force for us all.

Without the readiness of the Head and other key members of staff to accommodate M and all his needs, we would have struggled to keep his education a priority this year and I doubt I would have been able to continue working.  Their willingness to have M in school as normal and to learn the intricacies of his NG-tube and feeding regime has allowed me to stay in my job, confident in the fact that this is a group of people dedicated to including M in every planned activity and who have taken on that intense in loco parentis responsibility without a second thought. This year in particular has tested their mettle with the demands of not just feeding tubes and complex allergy requirements, but of occupational therapy, dyspraxia and dyslexia added to the mix too.  His teacher, Mrs M, has been amazing and she approaches every new challenge with great positivity and an unparalleled sense of humour. www.amazon.comEven the minor hiccups encountered along the way – non-stop beeping, blocked tubes, leaking pumps and soaking wet clothes to name but a few – haven’t derailed her and that attitude has helped M cope remarkably well with all the changes this year has thrown at him.  I cannot thank her enough for being the rock that M has needed during school hours.

Equally, Miss K, G’s lovely Year 6 teacher has been a real blessing to us as a family and to G in particular.  She has encouraged G every step of the way and helped build her confidence throughout the year.  M’s hospital stay in December was difficult for G as he and I disappeared off to London for 2 weeks and couldn’t be around to help celebrate her 11th birthday or enjoy the end of term build-up to Christmas.  What made a big difference was Miss K, who was fully aware of all that was going on, made herself available to G whenever necessary, understood that emotions were high and made allowances when needed, and stayed in regular e-mail contact with me during our stay and also during the Christmas holidays, so she was as prepared for where things stood with M as the rest of us.  She is moving on from the school at the end of this term and I, for one, will miss her, especially as I was hoping she would be M’s teacher for his Year 6 year.

It’s not just the teaching staff who have done their utmost to give us the support we depend on, but the parents and children too and this past week I was left speechless by the thoughtfulness and compassion of M’s class.  Following his presentation during EGID awareness week, this group of enthusiastic 9 year-olds discussed different ways they could support him and focused their attention on the fact that he has to wear a backpack all morning, which contains his pump and his “food”. This is what happened next:

“We decided, as a class, that we would all wear a backpack for a morning so that we are able to understand a little of what M has to go through each day. Therefore, on Friday 10th July, it would be great if all of 4M could wear their backpack to school and keep it on for the whole morning!  If you can make it weigh about 2 and a half kilograms that will be amazing as that is the weight that M carries around each day.”

20150710_111650On Friday I had the privilege of going into school to see this amazing group plus teacher and teaching assistants with their backpacks on and to express my thanks, not just to the children, but to Mrs M and the school for encouraging and allowing them to show their support in this tangible way. His classmates have adapted well to M’s tube and accept it as an essential part of him.  They’ve asked questions and been interested in the whys and wherefores about it and then just forgotten all about it and carried on with day-to-day life, which is exactly what M has needed.

There have also been shows of support from parents, including one from a Mum I’d never met before and doubt I’d recognise again.  We were travelling back home late from our last GOSH appointment after a long, hot day in London and arrived back at our local train station.  As we reached the stairs of the railway bridge, I became aware of a fellow passenger catching up with us and smiled with her as she chuckled at the inane chatterings of my night-owl.  I paused to let her go past, but she slowed her pace to match mine and started an unexpected conversation:

“I just wanted to tell you that my children are at the same school as your son and came home and told us all about his presentation. They both raved about how amazing it was and how much they had learned from watching it and asking him questions.  I just wanted to tell you how impressed they both were, especially as they now understand a little more of what he’s having to cope with and we all think he’s incredibly brave.”

The conversation carried on until we reached our cars and said a quiet good-night. This for me is the advantage of having not just a child who stands out from the crowd because of his tube,Colorful solidarity design tree but also a community who is brave enough to have the confidence to speak out words of encouragement to a near-stranger because of a shared experience and the desire to add their voice to offer support.

From helping take G to school early in the morning to having my tubie home for tea; and from working hard with M to improve his handwriting to encouraging G to reach her potential and aim for the stars, our school, its outstanding teachers and the families who go there have helped us out along the way. This academic year has been a tough one, but we’ve survived all the bumps in the road with the loving support of the truly exceptional community that we live in.

Perfect pancakes

During our recent GOSH appointment, the conversation naturally turned to the food I’m cooking for M these days and how we could continue to vary the options available to him with such limited ingredients. The subject had turned to our plans to introduce white fish and whether there were any M-friendly free-from fishfingers on the market, which there aren’t. I was just saying that I had perfected a rice-flour tempura batter, which would be ideal for making fish bites, when M, without looking up from the handheld computer device he was engrossed by, piped up to inform them that “…Mummy cooks me chicken nuggets and deep-fried rice-balls and flatbreads and pancakes…” before carrying on with his game. The conversation paused briefly as the dietician took note and then carried on from there, but it made me realise that I had never shared my rice-flour pancake recipe and I vowed to change that as soon as I could.

20141007_173343Pancakes are one of those recipes that I attempted very early on in our free-from journey and are still a family favourite 4 years on. I make the big, fluffy ones most associated with North America and use the batter as a basis for other savoury treats such as corn or courgette fritters. The basic recipe contains very few ingredients and proved easy to convert to the updated M-friendly version that you can find here. I flavour them with a variety of green herbs and they form a tasty accompaniment to any meal, enjoyed by the whole family, not just M and I even cooked them recently when he had a friend round for tea, where they proved to be a hit.

One of the best things about these pancakes, other than how quickly you can whip up a batch, is just how versatile they can be. With a few careful choices about flavours, they can be either savoury or sweet and both have proved popular with M. They will also form the perfect platform for our mini-challenges on spices and flavourings over the coming weeks, which I know M can’t wait to try.