Category Archives: Chronic Illness

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Back at the end of March, G was lucky enough to attend the amazing Over The Wall sibling camp and had the experience of a lifetime. I knew just how much of a success that week away from home had been almost the minute she stepped off the bus as she asked with fervour if we could apply for her to go again next year. The last few weeks have been filled with a mix of emotions as M was thrilled to learn that he had been offered a place on the OTW Health Challenges camp this August, but the ongoing drama with his broken leg left us questioning whether he’d actually be able to go (of course he would, it’s a camp for kids with health challenges after all), and take part (well as best as his leg and determination would allow), and get from it as much as his sister had (we could only hope). Fortunately, the final fracture clinic appointment that saw M being given the all-clear and discharged from the care of the orthopaedic team fell on the Friday before IMG_0791[1] he was due to head off to camp on the Monday and the assurance of the consultant that his leg was at long last fully healed gave M the confidence he needed that he could fully participate in all the activities on offer during the week.

It was a major event in our household. It’s the first time that M has been able to go away from home without being with family; he’s never even had a sleepover because of his bowel problems and sleep issues and so it was unsurprising that our car journey to Dorset was eerily quiet as he struggled to get his anxieties under some semblance of control. It was a very pensive boy who clung to my hand as we found our way to the welcome desk to sign him in, although by the time I left around 2 hours later, with medicines handed over to the Beach Hut medical team and clothes unpacked and safely put away, he was starting to warm a little to his surroundings and had already enjoyed a hysterical couple of games of Guess Who? with 2 of the volunteers. Seeing the other children chatting and laughing as they arrived on-site, it was easy, even for me, to forget that these are children living with serious illnesses. Illnesses which are sometimes life-limiting and are always life-impacting. My child was one of them. IMG_0792[1] And when M commented on how comfortable his bed was compared to the ones in hospital I could see the volunteers in the room with us, both of whom were new this year, take a deep breath, unexpectedly shaken just a little by this vivid reminder that every child there is facing a chronic illness that is not always obvious at first glance. I was not immune to the pathos of that situation and my heart broke a little that this was his first thought, his opening response to this new experience.

Knowing he was settled and in safe hands meant that I could leave the site almost without a backwards glance. I could see he was torn between wanting to give me a hug and kiss goodbye and not wanting to show affection in front of his new room-mates, so I offered a quick hug and a kiss on the head before heading back to my car, not giving him opportunity to wobble. Despite concerns to the contrary from other people, this Mummy was fine with leaving her boy there because I had absolute confidence that they would take care of him and support him and make sure he had a week where the medical implications of his everyday world were not at the forefront of his mind. The lack of communication during the week could easily have worried me senseless, but instead I knew that it really was a case of “no news is good news” as camp would only get in touch if things were going wrong. I was also confident that they were more than able to meet his dietary requirements and would make the effort to give him meals that were more than just simple rice and chicken. Not long after the end of G’s sibling camp, I had been sent a draft menu for M that one of the camp chefs had devised based on his safe foods at the time and we were all drooling at the sound of some of the dishes. In the 2 weeks leading up to camp, OTW contacted me again to check whether there had been any changes to his diet and to reassure me that they were prepared for the challenge of feeding him whilst he was there.

I can’t even begin to describe how I felt when I picked him up the following Saturday. G joined me for the drive to Dorset and was able to share so many precious memories of her own as we went through the gates and along the drive towards the house. We pulled up to the grassed area which was ablaze with colour as the various groups gathered to wave goodbye to all the campers as they started their journey home. M was the last Orange Boy standing and the farewell given to him by the team volunteers saw more than one of us with tears in our eyes. Seeing this group of wonderful adults, who had become his family for the week, surround him and sing “M, we love you, deep down in our hearts…deep down….” to him with genuine affection brought a definite lump to my throat, not least because M was equally overcome by his emotions and obviously struggling not to give into them in public.

IMG_0812[1] As they lined up outside the car and waved us off, the atmosphere inside was in stark contrast to when we arrived as M sat smiling bravely, with tears rolling down his cheeks because he wasn’t ready to leave camp and go back home. He was emotionally and physically exhausted, but refused to let sleep overcome him, instead spending the entirety of our homeward journey sharing every tiny aspect of the week he’d just enjoyed. As M told us about camp, he was worried that he would hurt my feelings when he said that the chef cooked some delicious meals that were, in the most part, “..even better than yours Mummy!”, but I didn’t mind a bit. His close new friendship with one of the other boys in his team, who also had food allergies, meant that neither of them felt isolated as they sat next to each other as their food was served at each meal. And my heart swelled when he said he hadn’t really missed us or thought of us that much because he had been having such a good time as I understand that that was so much more than I could ever have wanted for his first experience away from home.

It’s hard to encapsulate just why this week was such a significant one for M, but it really has been an incredible and life-changing experience. For once he felt normal and not the exception in the group, and that alone is priceless to me. M’s confidence has soared as he pushed himself, and his body, to the limit and tried new activities that would have scared him before and his honesty impressed me as he relayed just how terrifying some of those new experiences had been until he had a go and conquered those fears. He has developed more independence and an even greater awareness of other people that reflects more maturity than he had before. Yesterday he took responsibility for making his own breakfast and even asked G and me what we wanted to eat so he could make our breakfasts too. That may seem like nothing much, but for a child where the world really has revolved around his needs over the last decade, it was a huge shift in attitude.

My words cannot do justice to the time he had at OTW camp, but I know how fantastic it was as he is already asking if he can go back again – not just next year, but every year until he’s too old to be a camper any more. What’s more, his aim is to become a volunteer at camp eventually if he can. M expressed it best when he told me it had been the Best. Week. Ever.

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Snack-time specials

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In addition to the great new breakfast and dinnertime finds from our trip to this year’s Allergy Show in London, we also managed to stock up on an impressive number of allergy-friendly snacks, some suitable for G, some just gluten-free and even one for M. Snack-time is always the hardest time of day to cater for in my experience. You want something that will satisfy your child long enough to stop the complaints that they’re “starving” and “have to eat now!“, without spoiling the next meal which is probably only 15 minutes away, but far too long for them to actually wait without moaning that their stomachs have been cut off and are feeling unloved and abandoned. I find it particularly hard to find something suitably satisfying for M and much as he loves my many bakes, I’m not so keen on giving him too many sweet treats on too regular a basis.

Emily Fruit Crisps were an incredible find and an instant big hit with M. We were all intrigued by not just their apple crisps, which were reassuringly safe for M, but also their surprisingly tasty vegetable crisps: green bean crisps anyone? They are a great alternative to normal potato crisps with none of the slight after-taste that M has complained about with other apple crisp brands. I took advantage of a great show offer and stocked up on a dozen packs, although only 10 made their way home with us as M munched on the odd bag or 2 as we wheeled him around for the rest of the day. Whilst not widely available in many of the mainstream supermarkets, you can buy them through Ocado and, weirdly enough, will apparently find them in your local Topshop too!

M’s marks: 12/10

IMG_0739[1] One of my biggest disappointments had to be discovering this amazing product and realising that it was very nearly safe for M, but not quite. Le Pain des Fleurs Cocoa Crispbread is made from rice flour, sugar and cocoa powder and it’s that last ingredient that means that they’re not suitable for M at the moment. They are not easy to source, but a good search on the internet will uncover a few independent stockists of this lovely snack.

IMG_0840[1] This next product has to be one of my favourite finds of the whole show and I know G is equally delighted that we were pointed in the direction of this sweet treat. The Foods of Athenry Cookie Shots are bite-size G-friendly chocolate brownies and are absolutely delicious. I had never come across this family run Irish bakery before, but I will be eternally grateful to the lovely Julia of Alimentary Bites, who not only welcomed us with open arms to the Allergy Adventures stall, but then whispered this fabulous find to me and told me where I could go to buy our own pack. They are satisfyingly chocolatey and taste sufficiently indulgent without being big enough to spoil your appetite, especially when you’re a chocolate-loving tween. NB – whilst the cookie shots are MEWS-free, they are not made in a nut-free environment

G’s marks: 9.5/10

These next two offerings are both gluten-free, chocolate-laden snacks, but sadly not dairy-free. I have chosen to mention them because they are great alternatives for those living on a gluten-free diet and I think they would be a perfect addition to the store cupboard for anyone who can safely eat them. The first is a Twix-esque chocolate bar, with a biscuit base, caramel filling and chocolate outer layer. I’ll be honest that they don’t quite hit the mark for me, but I am reliably informed by gluten-free friends that they are really delicious. Made by Dr Schar, Chocolix bars are individually wrapped, making them ideal for lunch-boxes or to carry in your handbag for whenever you might need one, and can supposedly be bought at more than one of the supermarket chains, though I have to confess that I haven’t spotted them gracing the shelves of our local Sainsburys since I discovered them. The other is a fantastic snack that has become a personal favourite and another product from company, Le Pain des Fleurs, this time called Crousty rolls. These interestingly named treats are light chocolate biscuits which are rolled and then filled with a deliciously decadent hazelnut and cocoa cream. Just as with the Chocolix, the rolls are wrapped in pairs, which allows you to enjoy the treat whilst keeping the rest fresh for another day. These biscuits are quite sweet, but I can imagine that they would be a wonderful addition to a bowl of ice-cream for a truly indulgent dessert.

Lost in Translation

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As Mum to a child with additional health needs, you have to be prepared the minute you venture outside your front door. You don’t just carry with you the medicines, equipment and food items you need to get you through the next few hours relatively unscathed, but also the necessary mental strength to explain your child’s needs to everyone you encounter and ensure that your trip outside of the safe bubble at home goes as smoothly as it possibly can. There are, of course, times when an essential gets left on the kitchen counter and you have to think on your feet and find a solution that will work until you get back home, and, for us, there have been times when, despite the clear explanations given and the seeming comprehension of the waiting staff, mistakes have been made and the children have suffered the consequences of those misunderstandings.

When you add travelling abroad to the mix, those unavoidable stresses become even more intense and, as an allergy Mum, I can tell you that worries about safe food are right at the top of the list. As you may remember, last year we decided to stay in the UK during that first holiday season with a tube in place and had the most amazing week in Cornwall, where we discovered hidden treasures of restaurants and sight-seeing spots that we are still talking about nearly 12 months on. However, we decided that this year we would venture back to a favourite haunt and visit the Algarve in Portugal, with a few extra days in Lisbon tacked on to the start of our trip. We know the resort of Alvor extremely well, but this will be the first time of visiting with such a restricted diet and I have to confess that nerves have been a little greater as we plan our 10-day stay away from home.

One thing I learned early on in our holiday planning with M was to talk to our airline about taking an extra case filled with whatever medicines or foods we will need whilst we’re away and have had superb experiences with both Easyjet to Portugal and Virgin Atlantic to Florida. These conversations paved the way for our long-haul flight to the USA and we found that both the airport lounge and the airline were able to provide safe meals for M when we gave them a little advance warning, but what happens once we’ve landed abroad, especially in a country where we don’t speak a word of the native language? Our back-up plan is our self-catering apartment, which means that there is always somewhere to prepare a simple meal of M’s safe foods without too much trouble, but I do, perhaps selfishly, want a holiday from that daily grind of cooking and be able to enjoy a family meal as we used to do when the children were small. Our previous holidays to Portugal were challenging, but not impossible as M loves fish and seafood which are always readily available, but I worried that the current restrictions might be a demand too far.

Fortunately, there are answers to the anxiety about communicating food allergy requirements in a foreign language and whilst it took a little more effort than originally planned, I got our perfect solution in the end. I started by calling Allergy UK, who offer a fantastic service of providing translation cards which “…feature an allergy alert message, an emergency message and a message for use in restaurants to ensure that your food order is free from the particular allergen that causes your reaction…” and can be ordered in any one of 36 languages to cover 70 different allergens. However, I really wanted a bespoke message detailing M’s current safe foods and unfortunately Allergy UK was not able to tailor their cards accordingly, but they did point me in the direction of the amazing Yellow Cross, a company I had never even heard about until recently.

Thanks to a detailed e-mail conversation with Yellow Cross Director, Jane Harrison, she agreed that it would make far more sense to detail what M can eat, rather than a lengthy list of his many allergens and suggested she spoke to their translator to cost out these personalised cards. We settled on appropriate wording, it was passed to their Portuguese translator and I was quoted a very reasonable £20 for a set of 4 eating out translation cards. I confirmed that we wanted the cards, made payment and in less than a week, the finished credit card-sized cards dropped through our letter box. The cards are printed on card and then carefully laminated to extend their life, and I couldn’t be happier with the finished product. They clearly state the wording I had discussed and agreed with Jane and their service was absolutely faultless. I found Yellow Cross willing to help us with our request and I’m certain that the inclusion of these cards in our travel survival pack will ensure that our Portuguese holiday goes with a swing.

M’s happy ending

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M had been anxiously counting down, fretting that the day might never come, but finally it arrived with just over a week to go until the end of term and I had left him at school that morning absolutely buzzing with excitement about everything planned for the day. It had been marked as an important day ever since his last fracture clinic appointment 3 weeks before, which you may remember showed that the break was not mending as quickly as the orthopaedic consultants would have liked and left M sporting his rather snazzy sarmiento cast for a few more weeks. IMG_0506[1] During that unexpected extra time, M had really made the effort to use his leg even more and became scarily fast and adept at using his crutches in every situation. The last week saw even more development as he more or less abandoned his crutches at home and finally started putting his full weight on his left leg. All this to ensure that that cast would well and truly be removed that afternoon and be needed no more.

Our afternoon started with a DEXA scan at the rheumatology department of our local hospital to assess M’s bone density. The severity of both this break and his previous broken arm alongside the longer than anticipated recovery time had rung a few alarm bells for his gastro team and they wanted to check that his restricted diet and years of malabsorption issues hadn’t had a detrimental effect on his bones. Although the blood tests done during his December admission at GOSH had suggested his calcium levels were fine, this additional test would give us a clear picture of his bones and hopefully put our minds at rest. I had been warned that M would need to lie still for up to 45 minutes, something I doubted would be do-able without a lot of persuasion, by which, of course, I mean bribery, but he promised to try his hardest as he realised how important it was to get these results. Fortunately, the scan itself actually took less than 10 minutes to complete and whilst M did have to lie very still, he closed his eyes and tried to relax as the bed and scanner arm twisted and turned around him to take images from all the necessary angles.

DEXA scan over, we had just enough time to walk across to the outpatients department for his fracture clinic appointment. With our timing near on perfect, it was almost straight into the x-ray suite, where M chatted away with the radiographer as if he was an old friend and went through all the motions to get the perfect set of pictures of the fracture site. From there, it was straight into clinic and minutes later into the plaster room to have his sarmiento cast removed. Ear defenders were quickly put into place before the saw was started and M’s expressive face reflected his nerves and the mild discomfort as the plaster technician cut through the cast and the vibrations disturbed his sensitive leg. The front half was removed and trimmed as M wanted to bring it home as a memento of the last 6 weeks and I flat-out refused to bring home the back half, covered as it was with layers of dirt, sweat and oodles of dead skin.

IMG_0777[1] M and I sat waiting for the orthopaedic consultant to look at his x-rays before giving us his opinion, so I tentatively peeled back the tubigrip stocking that had been the only barrier between his leg and the plaster for the last 3 months. His left leg was a little skinnier than his right, though not as much as we had feared it might be, but was also incredibly hairy, something we hadn’t anticipated at all. A little research told us that when a cast is in place for an extended period, it causes constant irritation of the skin and so the hair grows to form a protective layer between the skin and the plaster cast. It was a completely unexpected insight into what M might look like when he eventually hits those dreaded teen years and puberty – and he really wasn’t impressed! In stark contrast to his skinny, white and very hairy leg, M’s foot was almost orange in colour and as scaly as his bearded dragon thanks to 13 weeks of no washing and hot weather. I snapped a quick photo to show it to M and the entire fracture clinic must have wondered what was going on as he and I dissolved into fits of giggles as we tried to decide the best way to remove layer after layer of the dead, scaly skin. For the first time ever, M couldn’t wait to get home and jump into the bath and he stayed in it for a long time that evening in an attempt to remove both dry skin and hair.

IMG_0783[1] We were sent home with a walking boot and crutches to help ease him back into the routine of walking and exercising without his leg in a cast and within 3 weeks both had been abandoned to one side. We’ve been back for our final fracture clinic, where M was discharged with a clean bill of health and permission from the consultant to participate in as many of the activities as he wants at next week’s activity camp. Unbelievably there is no physiotherapy available for M through the NHS, but we have an excellent private physio in a nearby town and M will have a couple of sessions there to get him well on the road to recovery. He is having to learn to pace himself, something my hyperactive 10 year-old is not very good at doing, but the aching leg that results from a couple of hours running around our garden with G is a harsh reminder that his leg won’t just bounce back to where it was at the start of the year. It will take a few months to recover the strength, muscle tone and mobility that M is used to, but some hard work and focus will get him there in the end.

Most importantly, M got the happy ending he’d been hoping for since that miserable day in April. He was able to spend his last week of Year 5 back in school without crutches and even had some time back outside in the playground with his peers. And nothing will beat the absolute joy I felt as I watched him disappear from the classroom surrounded by his supportive friends on the last day of term.

A Tale of Two Restaurants

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“It was the best of times, it was the worst of times…we had everything before us…”

– Charles Dickens “A Tale of Two Cities”

Recently we spent a busy weekend in the town of Portishead, just outside of Bristol and naturally found ourselves needing to eat out in a couple of the restaurants dotted around the Marina there. The two restaurants we chose were a stone’s throw away from each other and yet our experiences of their allergy-friendly services were worlds apart.

The first was Bottelinos, an independent small Italian chain in the South West, who were confident that they could cater for M’s food needs and had gluten-free options clearly marked on their menus. The first hiccup came when G asked for the “Pasta Maximus”, a bolognese sauce with a meatball, and was disappointed to be told that she couldn’t have it as the sauce wasn’t gluten-free. We had already had to discount a large proportion of the other pasta dishes because they weren’t dairy-free, so my disgruntled girl moodily requested steak and chips instead – and that’s when the fun and games really began.

Our waitress nipped back to the serving counter and spoke to the chef, before coming back to tell us that the chips weren’t gluten-free either and G’s choices were rapidly disappearing. Feeling somewhat concerned about what we could order for our increasingly hungry pair, I asked for the allergens listing so that I could see exactly what was on offer for G and started flicking through the pages with my fingers tightly crossed that I would find something she would enjoy. The first problem quickly became evident when every pasta dish on the menu was marked as containing gluten, which I assumed was because of the pasta itself rather than the base ingredients in the sauces and there was no easy way to distinguish which sauces actually contained gluten and which were really gluten-free. This type of wholescale approach to allergens may seem sensible, but makes it extremely difficult for an allergy-sufferer to work out what they can or can’t choose without extensive help and detailed knowledge from waiting, kitchen and managerial staff.

Then came the next whammy. As I ran my experienced eye over the rest of the allergen menu, I spotted that the chips were marked as being gluten-free, despite the advice we’d already been given to the contrary. It was far too late for us to up-sticks and search out somewhere else to eat dinner, so I asked to speak to the manager, a request that was met without delay. My first question was about the Maximus sauce, the only one that G was prepared to even consider for her supper, and we were told that whilst the bolognese sauce was gluten-free, the meatball wasn’t and so, having dismissed pasta as an option, we quickly moved on to the matter of the chips. The explanation given here left me stunned and unlikely to rush back for another meal with the children in tow. The manager explained that they had a dedicated gluten-free fryer, so the chips usually would be safe; however (and this is the important bit), on a Friday night they use that fryer to cook everything because of how busy they get and the need to keep up with orders. Not only was I extremely disappointed that they didn’t consider being able to cook gluten-free foods a priority on a busy evening, but I have serious concerns as to whether they are really able to thoroughly clean the fryer and change the oil before Saturday’s service begins; or indeed if they even do.

Eventually we were able to compromise with the manager and the chef cooked G’s chips in a separate pan to ensure the cross-contamination risk was reduced, something we were able to watch from our table. M was given a plate of grilled chicken and sliced cucumber, though he did find a small piece of lettuce when he was half-way through, which again suggested that their approach to allergy-friendly catering wasn’t good enough. In fact, both children did suffer some delayed symptoms in the 24 hours following our meal, which supported our concerns that the cross-contamination risks hadn’t been as well-managed as we’ve experienced elsewhere.

In stark contrast, the second restaurant and our location for Sunday lunch with old friends, impressed us from the very start. Mike had popped in to Aqua beforehand to ensure that a repeat of Friday’s disaster was avoided and their response couldn’t have been more different. Not only was he given a copy of their allergy menu to show G, but both the chef and the manager came to talk to him about everything we needed. The chef painstakingly went through every item on the menu, explaining which could be made both gluten- and dairy-free for G and made some suggestions of other tweaks that could be made to suit her tastes. As for M, the only cucumber to be found in the restaurant is behind the bar, so the chef made a note to ensure that one would be available for M’s Sunday lunch and again reassured Mike that they could make a tasty dish to meet his complex diet. It was already sounding like a much more promising meal and we couldn’t wait to actually try it out on the day itself.

When we arrived on the Sunday, our booking had been well-annotated to indicate M’s dietary needs and the waitress was aware of what he could eat and how the food was going to be prepared. G chose steak and chips again with the added extra of some goats cheese to replace their standard sauces and M was served a beautifully presented dish of grilled chicken on an apple, pear and cucumber salad. What made the meal even better for M was the lemon sorbet he was able to enjoy for pudding. I had seen it on the dessert menu and asked the waitress if I could see the tub itself to check the list of ingredients. She brought the container to the table and we were thrilled to see that it was indeed safe. The options for G were not so good given she doesn’t like sorbet, but she was able to enjoy a plate of apple, walnuts and sheep’s cheese, which kept her, and me, happy.

Our Sunday lunch was a truly fantastic affair and so different to the problematic experience we endured on the Friday night. It shows what turns a good restaurant into a great restaurant and somewhere that people will visit time and time again. I wouldn’t hesitate to recommend Aqua to anyone looking for allergy-friendly restaurants and have passed their details on to the FreeFrom Eating Out Awards as somewhere worth knowing about and deserving of recognition. Bottelinos, it would appear, could learn a lot from their nearest neighbour in Portishead and the weekend really was a tale of two restaurants.

Breakfast Bonanza!

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As I mentioned the other week, we came home from the Allergy & FreeFrom Show with bags full of new allergy-friendly goodies for G and M to taste test and review, and they have already made a great start in trying them all out. I originally planned a single blog post to cover our favourites, but soon realised that there were just too many to cover in a single piece of writing and that I would need to split my categories up instead. What better way to do this than by looking at these products in terms of the meals where we’ll be using them, and where better to start than with breakfast?

Breakfast has long been the bane of our household, with M following steadily in my footsteps as a reluctant eater of a meal first thing in the morning. Whilst I can, and do, have a later start to my day by munching on something in the office, M needs to eat before he goes to school and all too frequently this is where we’ve hit stalemate. I’ve turned my hand to make breakfast muffins in the past, but even those had a limited shelf-life of success and it was quickly back to the drawing board once his diet became more restricted. Every day has been a battle, mostly one I’m more than happy to fight, but on other days, well, not so much and we compromise on a glass of rice milk if nothing else. However, these past 2 weeks have been like no other and M has been up, dressed and downstairs asking for breakfast before I’ve even had time to take a breath every day. Every. single. day. Vive la révolution!

IMG_0689[1] The reason for this change of heart? The discovery of Rice Flakes Porridge courtesy of the amazing Delicious Alchemy, not something new to the market, but most definitely new to us. I’ll be honest, it is a brand I’d heard about in passing more than once, but I hadn’t really spent much time investigating it as I believed it to be big on the gluten-free front and not much else. Oh, was I wrong. As you will discover from their website, Delicious Alchemy was launched in 2006 by Emma Killilea, a coeliac who was frustrated and disappointed by the gluten-free options out there and decided to do something about it. The company has gone from strength to strength in the past 10 years and now works with a number of mainstream supermarkets and stockists to get their products on shop shelves. G was drawn to their stand by the delicious gluten- and dairy-free brownies that were wafted under her nose and I soon got chatting to their finance chap, where we swiftly found common ground on both the accountancy and allergy-friendly fronts. Despite G’s sighs of utter joy about the brownies, I wasn’t drawn to buying the mix given I’m very much a “cooking from scratch” fan, but once I spotted the packets of porridge flakes nestled amongst the other goodies, I felt certain this might prove to be our first purchase of the show. Delighted to IMG_0695[1] discover that the porridge contains rice and absolutely nothing else, I quickly snaffled 3 bags with my fingers tightly crossed that M would actually enjoy it as much as he insisted he would. I needn’t have worried. The rice porridge has been a massive success and is so easy to make too. Just 3 minutes in the microwave with some rice milk and his breakfast of choice is ready. Not only has he insisted on having it every morning, but it has become a popular bedtime snack of as well. I’m more than a little excited that this might also open up some options for snacks for M as delicacies such as flapjacks, biscuits and muffins all readily spring to mind.

M’s marks: 11/10 (and as he’s eaten 1.5 bags in a week, I’m thinking it’s an unmistakable hit!)

IMG_0687[1] Another producer I was determined to visit with G was Nutri-brex (recently rebranded from Nutri-bix), the overall winner of this year’s FreeFrom Food Awards and one of my personal favourites. Ever since I first tasted this breakfast cereal during my stint as a FFFA16 judge, I wanted to get some for G to try, but it has proved disappointingly difficult to find it in the less-than-well-stocked aisles of my local supermarkets. By the time we finally made it to their stand, G had gone at least 10 minutes without gorging herself on one of the many allergy-friendly samples that were on offer and was more than ready to try some of this cereal, in an attempt to shut Mum up if nothing else. The company had launched a brand new product at the show and G decided she would taste that with the added extras of some soya vanilla yoghurt and grated chocolate on top. IMG_0691[1] She was instantly won over and 2 boxes of the Coconut and Crispy Rice cereal bars soon joined the 2 original boxes that formed part of our goodie bags. Since coming home, G has enjoyed the original bars with raisins for her breakfasts and I’m so glad that I was finally able to introduce her to this product. It is tantalisingly close to being safe for M, but sadly until we trial sorghum, not something that is high priority for him right now, he’ll just have to stick to the porridge.

G’s marks: 10/10

IMG_0692[1] The day also introduced a couple of new-to-us milks, which have been brought home to trial. M is already very keen on the Rude Health Brown Rice Drink, which he claims has a slightly sweeter and nutty flavour in comparison to his regular rice milk. Whilst I love finding new products for M, given the recent problems with his broken leg, I prefer being able to buy rice milk that is fortified with calcium, something that this one doesn’t appear to be. Add to that the price of this product, which at around £2 per litre makes it considerably more expensive than the Rice Dream I usually buy for him, this will be saved as a treat for special occasions rather than an everyday commodity.

M’s marks: 10/10

IMG_0693[1] As for this last product, well the jury is definitely still out in the 7Y2D household and I will be withholding my judgement on it for quite a while. If you follow Nathalie at The Intolerant Gourmand, you may well have read about her 4-week trial of a2 milk and the conclusions she drew about it. I’ll be honest, the information we were given at the Show and that I have read via their website has left me more than a little confused. I understand the principles behind the milk and the exclusion of the a1 protein, but am unclear as to whether this means it is or isn’t safe for those struggling with lactose intolerance. Their representatives on the stand were more than happy to help, but not all of them were fully to speed with the claims the milk makes and whether it would be ok for G to drink it or not, given she can’t do dairy, but can tolerate goats’ milk. It’s a difficult one for me to assess as I have no intention of trialling G on it under the circumstances, but fortunately I had another willing tester in Mike, who is also lactose intolerant and was happy to give a2 milk a try, especially as they gave us a free carton to take away with us! The milk is incredibly creamy, far more so that either Mike and I expected for semi-skimmed and it took a couple of days for Mike to reach any conclusions. Whilst his stomach was certainly aware that he was drinking cows’ milk, something he hasn’t drunk for years, he didn’t suffer any extreme reactions to it. I’m not sure I’d rush to buy it again and would recommend that any one thinking of trying it does a lot of research first.

Mike’s marks: 8/10 and he commented that as someone who hasn’t had cows’ milk for years, the flavour took some getting used to.

An evening at Fat Sam’s

Allergy and FreeFrom Show 2016

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I am so glad that we made the decision to visit last weekend’s Allergy and Freefrom Show at Olympia London as we had the most amazing day and made some great finds. The show has always been one of those lovely experiences for the children, where they have been able to try so many of the foods and drinks on offer, although we have constantly had to remind them that they can’t assume that everything is safe, even though so many of the offerings are. IMG_0645[1] This year was no different and G ate her way around the show, delighted to try some old favourites as well as the new products that we hadn’t seen before. It was understandably a much harder show for M this time than ever before, but he pinpointed on the map which stalls he wanted to visit and was thrilled that we managed to find some great new food options for him too. I am also extremely glad that we chose to take the wheelchair with us as it proved to be useful, not just for helping M negotiate the crowds flocking round each stall, but also as a receptacle for the numerous bags of goodies we gained during the day.

The day was also a great chance to catch up with some old friends from the blogosphere and allergy community, though this year I didn’t manage to make the bloggers meet-up arranged for the Saturday morning IMG_0647[1] . It was fantastic to see G and M recognised and welcomed by so many of these lovely individuals and they happily chatted away almost as much as Mike and I did. We spent some time at the Allergy Adventures stand, where Hailey and her crew of cheerful helpers were once again providing entertainment for the children in the guise of paper crafts and story-telling time, although they couldn’t persuade G and M to make the paper lollipops planned. Instead my pair went off-piste and created an array of paper lizard heads (M) and chatterboxes (G) to fill their time, some of which I think were left behind and not just stuffed into pockets and down the sides of the wheelchair.

Between us, we came home with a huge selection of new products for both children to try and I can’t wait to share their reviews of these foods with you, especially those that are not just new to us, but to the market too. We spent the entire day at Olympia, getting in when the doors opened at 10am and leaving as the tannoy announced that the Show was closed at 5pm and I could quite easily have spent another day IMG_0651[1] discovering all those hidden gems that were tucked away in remote corners of the space. We had taken some safe food for M with us for his lunch as we just didn’t know what would be available at the site and G enjoyed a gluten- and dairy-free pizza from Schar that was cooked to order. The Show now visits 3 UK locations during the year – London, Liverpool and Glasgow – and I would highly recommend a visit if you get a chance to go. It is a brilliant day out for anyone living with food allergies and offers the opportunity to discover so many safe alternatives that often don’t make it to the High Street.

7 years to diagnosis

Searching for an answer