Tag Archives: Soya free

A cake for every occasion

We might have had Christmas, Easter and at least 2 birthdays since M first had his NG-tube, but they’ve all been celebrated without a morsel of cake passing his lips for 7 months.  He enjoyed Foxes Glacier mints for Christmas lunch, a “fake” cake for his birthday and a passable rice-flour biscuit for Easter; but we were all fully aware that none of them could possibly replace the role of cake in so many celebrations.  PV-2The harsh reality of so few ingredients has meant that even at my most inventive, a successful cake replacement has just not been achievable, but with the re-introduction of apple in the last couple of weeks, M’s dream of cake could, and has, finally been fulfilled.

It is all thanks to one of the lovely Mums that I have become friends with through FABED and whose son, under the care of the same consultant as us and who M met during his hospital stay last December, is a few weeks ahead of M with his food reintroductions after time on the elemental diet.  R and I have spent time chatting, texting and e-mailing about the boys and where we each are along our respective journeys, sharing stories and giving tips whenever possible.  Having gained the advantage of those few extra days, R has had some useful tips when it’s come to preparing food for M, the best one being this M-friendly cake recipe that I was able to try out at long last.20150626_144401

Apple purée is a popular egg-alternative, though not one I have previously used in my M-friendly baking as I have preferred to bake with ground flaxseed meal or mashed banana. With banana being a definite no for the time-being and flaxseed being low in our priorities of new foods to trial, it was finally time to put apple purée to the test. The first job was to prepare some apple purée before having to deal with the tough task of stopping M devouring it all at each and every opportunity that arose until I had a chance to actually try out the cakes. Despite his best efforts and enjoying lashings of purée with his rice pudding, there was just about enough leftover for these delicious apple and rice flour cakes.  The recipe is simple, easy to follow and perfect for anyone with such limited safe foods and, what’s more, I’m certain that it would be easy to replace any of the ingredients with an alternative that suits your particular dietary needs. The cakes are deliciously moist and have been a huge hit with M, who is asking for them morning, noon and night and are definitely a great addition to his school lunch-box.

Tempting tempura

I can’t begin to tell you how much I love being able to post new recipes on my blog once again.  Having a fourth safe food has really opened up some exciting opportunities for experimenting in the kitchen and I’ll be sharing the successes over the coming weeks as well as possibly lamenting the disasters.  Today’s recipe is actually one of the first I adapted when we started the process of food reintroductions and, just like my chicken liver pâté, is an old favourite harking back to the days when the children were small.  Arancini di riso, or Italian deep-fried savoury rice balls, have become a firm favourite for M’s tea and G, Mike and I all enjoy them occasionally too.

20150618_171855The key to their success lay in perfecting the tempura-style batter I wanted to use to coat them, as breadcrumbs won’t be seen in my kitchen for quite some time.  Tempura is a traditional Japanese light batter, which is typically made using flour and water, though some recipes include egg too.  I am very much a visual cook, rather than one to strictly follow a recipe and so my first few batches varied massively as I played with the quantities of rice flour and sparkling water used until I reached my idea of tempura batter perfection.  Using sparkling water makes the batter even lighter, but you can easily substitute it with cold tap water and will still end up with a delicious dish.  My final recipe has been carefully measured out and written down to share.

For me, the best bit about cooking Arancini di riso for M is that there are no rules.  Of course there’s a traditional Italian recipe, but you can add whatever you want to suit your dietary needs.  We have graduated far beyond the plain rice balls that I started with and now have numerous successes under my belt.  M’s current favourite is rice mixed with shredded chicken and cucumber and seasoned with salt, pepper and plenty of sage.  With my tempura batter recipe perfected, I have used it to cook M-friendly chicken “nuggets”, which have also been a big hit.  With the addition of apple, I’m planning to try a dessert version soon using stewed apple and some home-made and M-friendly caramel, but that, as they say, is a story for another day!

Feast or famine

There are times when recipes, just like buses and blog-posts, can be hard to find and then, just when you think you’re in for the long haul, a whole host of them appear from nowhere and flood your every waking moment.  Over the last few weeks, I’ve been desperate to find some more alternatives to plain chicken and rice to tempt M’s taste buds and it is thanks to some canny suggestions from M’s dietitian, a lovely reader and even my hairdresser that this past fortnight has seen me trialling some new inventions of my own.

or-kitchen-gf1Today’s recipe is one that might not appeal to everyone, but it has certainly been a huge hit with M:  Chicken Liver pâté.  Both G and M love pâté and when they were little, I found a quick and easy recipe and regularly used to make my own.  I’m not quite sure why it didn’t cross my mind to revisit this recipe in recent months, but thanks to a throwaway comment from our lovely dietitian about the possibility of cooking lamb’s liver and kidneys when M trials lamb, Chicken liver pâté suddenly sprang to mind. I spent a productive hour or so flitting between my computer and my recipe books, searching out traditional recipes as well as some that are dairy-free and quickly came to the conclusion that, with a clever few tweaks and variations of my own, this was definitely something I could cook up for M.

20150602_182343The base ingredients are easy to source: chicken livers, oil, rice flour, rice milk and herbs and seasonings; and I think that the recipe is easy to follow.  In my latest batch, I also added the last remaining drops of the “Rice whip” rice cream I had managed to buy months ago, which gave the pâté a creamier texture, but isn’t necessary to make a spread that everyone can enjoy. The pâté has given M another fab alternative to the monotony of his daily meals and he’s currently loving his pâté “sandwiches” (rice cakes with pâté) for lunch, instead of the dry alternative.

20150610_175428Pâté perfected, it was now time to put my second plan into action and create a M-friendly version of Beef Wellington.  Sadly at the moment for us there can be no pastry, mustard, mushrooms, crepe or indeed beef, but there is chicken, chicken liver pâté, cucumber and rice and that, I decided, was more than enough.  I carefully cut into a chicken breast and created a pocket, which I filled with thin slices of cucumber and lashings of the pâté.  I coated the filled breast with a rice crumb and then oven-baked.  M tucked into it heartily last night and devoured the lot, which was just amazing to see.  So that’s another dish to add to my repertoire, though perhaps the end result was more “Chicken Kiev“, than “Beef Wellington”, a “Chicken Wellington” you might say!

 

Flatbreads and Fajitas

It’s been quite a while since I last had a new recipe to share, but this one has become a definite favourite at home and M asked me to share photos of his “most delicious meal ever!” on my blog.  Chichen_Itza_El_CastilloWe are still stuck at 3 safe ingredients plus oils for cooking at the moment and it’s becoming more and more difficult to make rice, chicken and cucumber even remotely interesting to eat at every meal-time.  The inspiration for this new recipe came from G and her current post-SATs topic about the Mayans.  They had been looking at food in current day Mexico and she came home raving about wanting to try fajitas:

Once M can have some more foods, then you could make him spicy chicken and find some safe wraps and then we could both try chicken fajitas.

Her enthusiasm was catching and, as G is so often reluctant to try new flavours and ingredients, I started to wonder whether I could jump on this Mayan bandwagon and transform our staples into a version of this popular dish.  My first challenge was to find a recipe that could provide the wraps needed and stumbled across this great one for rice flour flatbread.  Deciding to not run before I could walk, I started by trying my hand at making flatbread and seeing what response it got from my discerning duo.  The recipe was easy to follow and simple enough to accommodate M’s new food needs as it just requires rice flour, water, oil and salt.  Flatbread made, I nervously served them and watched the entire plateful disappear before my eyes – an instant hit.

The original ingredients- I failed to get a photo of the finished fajita!

The original ingredients- I failed to get a photo of the finished fajita!

With the flatbread puzzle solved, it was now time to construct some M-friendly chicken fajitas for dinner.  I finely sliced some strips of cucumber, pan-fried some chicken with lots of black pepper and thyme (he’s not yet allowed to trial chilli flakes or anything spicier than green herbs) and used some of the home-made chicken liver pate I’d perfected at the weekend to add a little something extra.  He wasn’t quite sure how to put them together, so we decided on a thin spread of pate on top of the flatbread, a sprinkling of cucumber and some small pieces of chicken, before rolling the lot into a shape vaguely reminiscent of a fajita.  G added some sliced carrot and mayonnaise to hers and they both quickly scoffed the lot.  This is the first “sandwich” M has been able to enjoy in a long time and I doubt it will be the last!

United we stand

Yes, you guessed it, today is:

U for Unite-page0001

and signifies perhaps the hardest challenge we’ve taken on for EGID awareness week, ever. This week Mike and I are standing in solidarity with M and with all those other brave souls out there who have to battle with EGID every day and have no chance to opt out when things get tough. For the past 2 years, I’ve documented how we’ve followed M’s diet for the week, restricting our diets as he has to restrict his and even drinking the occasional glass of Neocate Active to get a glimpse into that aspect of his life.

IMG_0940When we first started planning our activities for this year’s awareness week, I briefly considered eating like M again, but dismissed it, thinking that the limitations of 3 ingredients and a litre of E028 on a daily basis might just prove to be too much for both Mike and me.  However, fast forward a few weeks to my preparations for my newspaper interview and I revisited the idea of “eating like M” and wondered if actually this might be something we could achieve.  I chatted it over with Mike, debated whether we could do it and, both being keen to give it a go, decided this would be our diet for the week.  Each day will be filled with 3 meals of rice, chicken and cucumber prepared in a variety of ways and Mike will even be drinking the litre of E028.  I have undertaken this with careful consideration of my own T1D and will be keeping an even tighter eye on my blood sugar management to make sure that I stay fit and healthy during the week.  I have also opted out of the E028, but will be partaking in a pint of Neocate Active everyday to show willing.

We’re not on our own either as there are other parents, family members and friends who will be spending some or all of this week eating like their loved ones. Trust me, it’s not an easy decision to make, but is a great way to raise awareness and get conversations started, which is reason enough to stick to it for a week. I am filled with admiration for just how well M has coped with such a bland diet for so long and have been struck with the harsh reality of how much pain he must have been in for years to be able to cope with these limitations just because it’s helping him feel better. Three_Musketeers_SwordsSo tomorrow when you’re tucking into your bowl of honey nut corn flakes or a bacon roll for breakfast, or sitting with your feet up dunking a chocolate biscuit into your cup of tea, or perhaps even enjoying a plate of fish and chips for tea, spare a thought for M and the others like him who are eating a restricted diet right now or may not be able to eat anything at all.  This week it really is a case of “All for one and one for all“.

Dinner Plans

The beauty of staying in the amazing Applause apartments in East Aldgate was the ease with which we could accommodate M’s current dietary requirements at mealtimes.  Every morning, he and G enjoyed a bowl of safe cereal and rice milk for breakfast, whilst Mike and I had coffee and brioche before we headed out for the day.  Once breakfast was done, the children and I would finish getting ourselves ready and Mike would make and pack lunches for us all.  The ability to prepare packed lunches was just what we needed as not only were we able to meet M’s extreme food requirements, but also the dairy- and gluten-free needs of G.

20150414_174629On our first day there, we stumbled across a fantastic shop called “Planet Organic“, where we were able to pick up some previously undiscovered M-friendly bits and pieces, including mini rice-cakes, which are perfect for his lunchbox.  Of course, with the packet now nearly empty, the race to find them closer to home is on before he finishes them off.  The brown rice noodles have also been a massive hit and make mealtimes just that little bit more interesting than they have been over the last 3 months.  Sadly, the one thing we had been hoping to find, rice pasta, was sold out and so my search for that alternative continues.

The more interesting task was that of our evening meal.  One of the things we have always loved to do is eat out as a family and it is one of the things that M in particular has found hardest about having his tube.  We have had a wealth of experience over the last decade of finding restaurants that will accommodate the ever-changing dietary needs of G, M and even me and we had settled on a few firm favourites that we knew would almost always meet our requirements.  Of course, the option to cook dinner where we were staying was great to have, but Mike and I were both looking forward to having a break from the monotony of 3-ingredient dinners and decided to do some focussed research before we even left the comfort of our own home.  We spent hours one evening trawling the internet, finding restaurants in the areas of London we were likely to be near at meal-times, looking at their menus and investigating whether they had allergen information readily available to read then and there.  To our delight, we found a few where we knew we could cater for G and where it seemed probable we would also be able to order safe food for M, and we couldn’t wait to put our selection to the test.

20150408_181702Our first was Giraffe, which is just round the corner from GOSH and a popular choice for our post-appointment dinners.  When we got to the restaurant, I asked the waitress at the door whether they would be able to cook safe food for M before she had time to find us a table and the response was fantastic.  She turned out to be the restaurant manager and headed off in the direction of the kitchen to talk to their chef and find out exactly what our options were. The chef assured us he could cook plain, boiled rice and grill a chicken breast for M without using any oil, so, feeling hopeful that this could prove a success, we found a table to enjoy our first family meal out for 5 months.  M was delighted with the plate of food that arrived for him and had no allergic reaction to any of it, reassuring us that Giraffe is a safe choice for the future.

IMG_0940As it turns out, Giraffe was the only restaurant we ate at that was able to cook plain rice for M, but we enjoyed 2 other great meals out and  both restaurants were more than happy for M to munch away on his own rice-cakes to accompany his chicken and cucumber.  The second restaurant was Bella Italia, a popular restaurant chain found across the UK and we had dinner at their St Martins Lane branch.   Again, our waiter worked with the chef to ascertain exactly what could be prepared for M and this amazing plate of food arrived – M joked that he thought they had cut him up a whole cucumber to make up for the lack of variety on his plate.  We were also impressed with how much their gluten-free offerings had improved since the last time we ate there as G was able to enjoy some GF garlic pizza bread alongside her GF margherita pizza with pancetta and ham with goats cheese.

20150411_152613My final recommendation is Jamie’s Italian and I can’t begin to tell you how impressed we were with the excellent service provided at their Canary Wharf restaurant.  From the greeter who listened to our initial needs to the manager who came to answer our questions before we even got to the table, they were keen to reassure us that they could meet all our requirements.  As for our amazing waiter, Tom H, he listened carefully and patiently to what we needed, made sensible suggestions based on M’s safe foods, checked with the chef that everything could be prepared safely and treated M just like any other child eating in the restaurant.  He was delighted with the plate of food that arrived at the table as it was presented in the exact same way as G’s dinner and his unparalleled attempt to eat almost all of the food served earned him the same prize that G was awarded for eating her salad – an achievement that we rarely manage at home.

All in all, our trip to London proved to be a fantastic and unexpected success when it came to our dinner plans for our stay.  We found 3 restaurants who were prepared to go the extra mile, make the effort and help us enjoy some great meals out.  Even better, M had the opportunity to feel more “normal” than he has done in a long time, which, for us, was absolutely priceless.

A tri-umph of rice-themed goodies!

Recently I’ve been spending my time baking and cooking up a whirlwind as the days ahead have been looking busy.  With a day for G and M at the holiday club run at Mike’s work, an appointment with M’s consultant and dietitian at GOSH to review his progress 4 months post-tube and a planned short stay in London to see the sights and to dip our toes into the world of being away from home with NG-tube in tow, a plethora of safe snacks and treats for M were much in need.  I prepared rice pudding, rice-flour sugar cookies and rice krispie cakes to satisfy the appetite of my youngest and to reassure myself that we would have some things with us to feed him whilst the rest of us enjoyed some much-missed meals out.  I also used the opportunity whilst trialling banana to add some to the mix and made some banana sugar cookies too.

The recipes can be found in the everything-free recipes section and are so easy to follow that next time round, my plan is to be sitting back with a cup of tea, whilst G and M get on with the task of creating their own delicious masterpieces!

20150314_213802 20150321_191535

20150403_162354

Who knew you could make so much from rice, sugar, rice milk and canola oil?  Any other suggestions for simple recipes will be very gratefully received!

Easter weekend

Last year, Easter weekend was all about…

20140419_203912

A slice or two of this

20140418_154823

  …several of these

moo free

….and quite a lot of this!

This year, it’s more about this…

20150402_183827 20150402_183532

Happy Easter!

“Muuummm, what’s for tea tonight?”

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Oh how this resonates..

If your family is anything like mine, that question usually comes just as you’re struggling through the door: with house keys in one hand, car key gripped firmly between your teeth, handbag on one arm, cello on your back, mobile phone pressed to your ear as you attempt to talk to the dietitian/consultant/other healthcare provider, who’s asking if now is a good time to talk and you can’t say no as you’ve been trying to contact them urgently for at least the last 3 days and who knows when they might call again; plus the school bag(s)/shopping bag(s)/extraneous bag(s)* (*delete as appropriate) you’ve picked up along the way are weighing down your other side and threatening to upset the delicate balance you’ve perfected in your struggle to cover the 100 yards or less from your car to the house.  Meanwhile, your curious offspring are waltzing in behind you, or possibly squeezing past you, through the already impossibly small and too-narrow-to-negotiate-safely doorway, bearing no more than a half-empty water bottle and their coat, worn superhero style to leave their hands free to carry absolutely nothing else at all.  And just as you think you’ve achieved it and managed to get everything safely inside, they open their mouth and ask that unavoidably fraught dinner-question and the peace shatters and your world tumbles down around your ears.  Does any of that sound familiar or is it just my household?

For M at the moment, my answer is fairly standard, although he adds his own unique twist by asking if dinner will be “chicken with rice and cucumber” or perhaps “rice and chicken with a side of cucumber”?  For a while, when he was still 100% elemental, he would even ask if he could have “air-sticks” – “like bread sticks you see, but without the bread” – showing that the ability to laugh his way through this experience is his greatest strength in beating this disease.  I have become a self-confessed expert in cooking with 3 principle ingredients – rice, chicken and cucumber – and the bonus extras of herbs, rapeseed oil and sugar.  Rice has been broadened to include its derivatives and the inclusion of rice milk, rice cream and rice pops (as long as they’re gluten-free) has added to my ever-increasing repertoire of 3-ingredient recipes.

Rice-flour sugar cookies

Rice-flour sugar cookies

In the past few weeks, as well as my fall-back favourites of roast or grilled chicken with plain boiled rice, I have also perfected deep-fried savoury rice balls, chicken nuggets, chicken and cucumber curry, fried rice, chicken stir-fry, rice-flour sugar cookies and rice pudding.  My Mum has also made M a chicken breast stuffed with rice and cucumber, courtesy of the inspiration and some nifty hints suggested by our hairdresser and which was an instant hit with our young diner.  It’s surprising just how many different recipes you can create with just a few ingredients and there’s even a few more that I’m hoping to try out in the coming weeks.  What started out as a daunting challenge to entice M’s appetite and encourage him to once again eat whilst navigating the tricky world of identifying his food allergies, has become yet another success story in our household.

Letter-to-the-EditorSqareMy victory with such a limited range of ingredients has been all the sweeter given the recent UK news story of the letter sent to the Daily Telegraph newspaper by over 100 top chefs and restauranteurs condemning recent EU legislation requiring restaurants to provide information about which of the top 14 allergens the dishes on their menus contain.  It was never a requirement that they did not cook with these ingredients, but rather that they should be able to inform diners of what the food prepared contains, with the knowledge and pride in their ingredients that I would expect from any talented chef.  Whilst widely welcomed by those of us in the allergy-world as a step towards helping us make informed decisions about eating out, these chefs warned that such requirements would harm “…the spontaneity, creativity and innovation restaurants and others in the industry have enjoyed up until now.

Like so many others in my situation, I wrote a response on the Telegraph website, pointing out that this legislation will help me to protect my children and give them experiences that will ensure their continued health and enjoyment,  I do not deny that it’s up to me (and they as they grow older) to ask about allergens, but there’s no point asking these questions if the restaurants, waiting staff or chefs cannot provide the information needed and the lack of understanding about cross-contamination risks is sadly common across the food industry.

20140818_143459Our experience last summer in Disney proved that this type of requirement does not need to be restrictive as excellent allergen information was readily available and nearly everywhere we ate produced meals for G and M that rivalled those being served to any other customer there with a “normal” diet. The chefs were knowledgable, came to our table to discuss their allergy needs and made the effort to find out what my challenging duo would like to eat – excellent service all done with a smile.

The big challenge was always to cook M-friendly food and these days that task has become even more testing.  In my opinion, these rules will have little impact on spontaneity or ingenuity – try cooking or baking when you need to avoid wheat/gluten, egg, dairy, soya and potato to name but a few.  Ingenuity comes when you try to prepare a meal that makes your child feel that they’re not missing out and that’s something I feel I’ve proved is possible, even for an amateur cook like me.

“I like rice…

..Rice is great if you’re hungry and want 2000 of something.”

– Mich Ehrenborg

I never realised just how daunting food could be until we embarked on our dietary journeys with our children.  It might sound ridiculous, but having achieved such a resounding success from M’s move to the elemental diet, the prospect of food reintroductions caused my heart to beat a little faster, my palms to grow a little sweatier and several middle-of-the-night awakenings to contemplate just how the whole process would work.  A big part of the problem was the lack of useful any information from the dietetics team about…well about anything I wanted to know.  I like to have a clear plan to follow and needed to understand how we would choose which foods to start with, how each food should be prepared, how much to give and how often.  The vagaries of sweeping statements such as serve M “a portion”, with no hard and fast details of the specifics drove me insane, but with lots of discussion, frantic e-mailing and a move back to our old and trusted dietitian rather than the one I’d had run-ins with during M’s admission, we finally got the answers we were after.

Courtesy of alternative-doctor.com

Courtesy of alternative-doctor.com

The decision was to begin with rice, commonly considered to be hypoallergenic and therefore a great starting place for M.  Whilst many children reintroducing foods following the elemental diet might trial potato first, this was one of the known triggers for M’s allergic reactions and so we needed to find a basic food that was likely to be safe.  Despite being told that we could comfortably start with a “portion” of rice, I chose instead to take things slow and M had just 1 tablespoon of plain, boiled rice on that first night.  He enjoyed his mouthful and, looking forward to having more the next day, carried on somewhat oblivious to the anxious monitoring I was trying desperately to hide.  The evening passed without event and we all went to bed happily – well, the rest of the family went to bed happily, I went battling the usual Mummy-paranoia that accompanies anything and everything that involves my children and their welfare.

Courtesy of smartwebsite.ru

Courtesy of smartwebsite.ru

Since that day, around 4 weeks ago now, we have been able to gradually increase the amounts of rice M eats each day and have branched out to include rice milk, rice cakes and gluten-free rice cereal – a veritable feast!  This week I even managed a rice batter, using rice flour and sparkling water and made some deep-fried rice balls to tantalise his taste buds.  M has shown an occasional atopic reaction to the rice as it triggered a rash across his shoulders and back, although the hives have now calmed down as his body has become accustomed to eating once again.  Despite this rash, we have seen no reaction in his bowels and are able to count rice as a “safe” food for him.  Even better, we have also been able to add chicken to the mix and this week have been trialling pineapple, though the jury is still out as to whether this may be causing a mild behavioural reaction akin to the one we’ve seen him experience before to soya.  Assuming all is well with the pineapple, we have plans to trial pork, cucumber and carrot over the coming weeks and may even have time to squeeze in another carbohydrate before we head back to GOSH in April.