Tag Archives: cinema

A Night Out New York-style

I don’t think it’s possible to visit New York without experiencing something of its nightlife and we had 3 very different nights out during our stay.

Ice Hockey at the Prudential Center, New Jersey: Unsurprisingly, the first was an evening of ice hockey and the first time either G or M have been to a proper NHL game. As soon as our flights and hotel were booked,  Mike was on the lookout for who would be playing where over the Christmas period and as soon as the final schedule was released, big decisions had to be made. We were originally considering a New York Rangers game at Madison Square Garden, but the cost of the seats combined with what we considered to be limited viewing based on our previous visit to see the New York Knicks meant that it looked unlikely we would go.

In a moment of almost sheer desperation, Mike decided to widen his search to see whether the New Jersey Devils were playing at home during our visit and there he struck proverbial gold. Not only were they playing on the 27th, but much to Mike’s delight, they were up against his team, the Toronto Maple Leafs. Even though we were crossing state lines, the trip to the Prudential Center in Newark by PATH train was easy and took us almost directly to the door. The children cheered their way through their first hockey game with G wearing proudly the NJ Devils hoodie she bought beforehand, mostly in a bid to rile Mike. It was a great family evening out for all of us with G and M now fully indoctrinated into the love of the sport and the right final result being achieved on the night, if you are to believe Mike and M!

Rockettes Christmas Spectacular, Radio City Hall:  This is an experience like no other and one that I would heartily recommend time and time again. It was also the reason behind my Mum’s wish to be in New York during the Christmas period for her 70th birthday. For the uninitiated, the Rockettes are a dance troupe started in 1925 in St Louis, inspired by the British Tiller Girls of the same era. They are known for their iconic and incredible dance line and the impressive precision and impeccable timing of their dance routines. To watch 36 dancers perform routine after routine in absolute sync with each other is simply breathtaking and both G and M were totally absorbed from the moment the music started.

Their Christmas Spectacular is, quite simply, that. Spectacular; and utterly awe-inspiring in just how spectacular it is. Radio City Hall is an amazing venue and one that I would happily visit again and I would love to do a backstage tour there if the opportunity should come up in the future. There were some wonderful surprises in store as we watched, the most outrageous of which I won’t share, just in case you are ever lucky enough to visit yourself. Let me just say, that the nativity scenes were not quite what we had expected and definitely worth a watch! M loved the Santa Claus routine, whilst G was hard-pressed to pick her favourite, so amazed was she by their skills and dance moves.

Movie night at AMC Empire 25, 42nd Street: Christmas for the last few years has meant one thing when it comes to films and that has been our family visit to see the latest in the Star Wars saga. 2019 was no different and given the epic nature of this final film, it only seemed fitting to watch “The Rise of Skywalker” somewhere amazing and different. Our unplanned evening out did not disappoint and we lapped up the opulent luxury of the AMC Empire 25 on 42nd Street, just opposite our hotel. We are not a family who splashes out on the VIP seating in our local cinema, but even we know that that has nothing compared to our seats at this NYC cinema, which had the functionality to make them recline and to raise a foot rest so that we were truly comfortable for the duration of the film.

Our last foreign movie night out was during our last trip to Canada, when we went to see “Avengers: Infinity War”  at a wonderfully old-school cinema in downtown Toronto. The experience was just as magical, but so very different in just about every way imaginable. It was a fitting end to our busy few days in NYC and we left the cinema with 2 very happy youngsters.

The Italian Job

Sometimes you just need some time off; a week away from it all; an opportunity to have a break from the everyday, to just rest and relax and be. The thing is that that is hard enough to achieve when you’re a parent and near on impossible when you’re a special needs parent. The stress of leaving your chronically ill child with someone else, even when accompanied by a small novel’s worth of detailed instructions about what to do in every possible and conceivable situation, threatens to overwhelm and can seemingly be insurmountable for a day or two, let alone more than that. Mike and I are lucky that my Mum lives close enough to give us some nights off during school holidays, but those days usually mean longer hours at work for me as I attempt to make up time missed for hospital appointments with M and include only the occasional trip out to the cinema or for dinner somewhere where we aren’t tied to the essentials of chicken, rice and cucumber of our everyday menus.

Last December, in fact the day before M was admitted to GOSH for those disastrous food challenges, I received a Facebook message out of the blue from one of my fellow FABED Mums:

“Is that you that has won a trip to Italy with schar? Saw Twitter post? Congratulations x”

and have to confess that at that point I had absolutely no idea what she was talking about! A quick unscheduled peek at my Twitter feed and a long look at my e-mails later, I was stunned to learn that she was indeed right and I had won a 4-night stay in Italy thanks to gluten-free producer Dr Schar and the Allergy and Free from Show, Liverpool. It has taken a little while to put all the necessary pieces in place, but finally, last week, 6 full months since I first received that message, Mike and I left G and M in my Mum’s more than capable hands and jetted off for a much-needed break from it all.

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Getting to that point did take some effort and there were last-minute wobbles before we finally left. It took an unbelievable amount of time to confirm the dates for our hotel stay due to the relaxed attitude of the Italian hotel staff and our flights were researched and scheduled by me once I knew the preferred airports for us to travel to and from. Two nights before we left, Mike questioned whether we really could go abroad given M’s current ill-health, but we trust my Mum implicitly and knew we needed to take some time for ourselves. That’s something that my Mum supported fully as she knows that reality as well as we do due to my T1D diagnosis at age 9. The truth is that you should never under-estimate the impact of a sick child on a marriage: the focus naturally shifts from each other to that child and home life inevitably revolves around what they need in every waking moment. In our household, those needs have not just been during the day, but at nighttime too as M’s sleep issues have been an ongoing problem that we continue to struggle with and every time we seem to be making some headway with it, something happens to set us back to where we were before. His broken leg has been no exception and has added to that regression as it has seen us playing musical beds with G moving to M’s cabin bed and Mike to G’s room to give M the comfort he needed to enable him to sleep in the weeks following the accident. The physical strain of looking after M with his broken leg has taken its toll on me, leaving me exhausted and Mike and I have had little time to spend with each other without interruption.

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Our plane is the one on the left, which looked tiny when seen next to the Easyjet one also waiting for passengers

Last Monday passed in something of a blur and proved to be a long day of travelling with more than its fair share of minor hiccups along the way, just to keep us on our toes. We were up at 3.30am to reach our regional airport before a 6.30am flight to Munich, followed by a couple of hours waiting at the airport before our shuttle bus arrived. Then there was the 30 minutes of pure stress as we failed to connect with the shuttle bus due to the unclear instructions as to where to wait that were written on the booking form and my tears of panic as Mike desperately tried to find a helpful German airport worker to help him communicate with the bus company, before all was finally resolved and the driver turned around to pick us up. IMG_0522[1]The following 4.5 hours in a minibus without functioning air-conditioning and unable to communicate with said driver due to my lack of German and his lack of English was interesting, though we drove through some amazing countryside and realised that 4 countries in 1 day (UK, Germany, Austria and Italy) was a record even for us. We finally reached Lana, our Italian destination, only to discover that the cable car to the hotel – the only way to reach it – had broken down and we were destined to wait for an indeterminate amount of time as the statement that “..it might be 5 minutes, it could be 30…” was accompanied by an unconcerned shrug. But, we got there in the end and, having reached what is an amazing resort, it was, without a doubt, all worth it in the end.