The beauty of staying in the amazing Applause apartments in East Aldgate was the ease with which we could accommodate M’s current dietary requirements at mealtimes. Every morning, he and G enjoyed a bowl of safe cereal and rice milk for breakfast, whilst Mike and I had coffee and brioche before we headed out for the day. Once breakfast was done, the children and I would finish getting ourselves ready and Mike would make and pack lunches for us all. The ability to prepare packed lunches was just what we needed as not only were we able to meet M’s extreme food requirements, but also the dairy- and gluten-free needs of G.
On our first day there, we stumbled across a fantastic shop called “Planet Organic“, where we were able to pick up some previously undiscovered M-friendly bits and pieces, including mini rice-cakes, which are perfect for his lunchbox. Of course, with the packet now nearly empty, the race to find them closer to home is on before he finishes them off. The brown rice noodles have also been a massive hit and make mealtimes just that little bit more interesting than they have been over the last 3 months. Sadly, the one thing we had been hoping to find, rice pasta, was sold out and so my search for that alternative continues.
The more interesting task was that of our evening meal. One of the things we have always loved to do is eat out as a family and it is one of the things that M in particular has found hardest about having his tube. We have had a wealth of experience over the last decade of finding restaurants that will accommodate the ever-changing dietary needs of G, M and even me and we had settled on a few firm favourites that we knew would almost always meet our requirements. Of course, the option to cook dinner where we were staying was great to have, but Mike and I were both looking forward to having a break from the monotony of 3-ingredient dinners and decided to do some focussed research before we even left the comfort of our own home. We spent hours one evening trawling the internet, finding restaurants in the areas of London we were likely to be near at meal-times, looking at their menus and investigating whether they had allergen information readily available to read then and there. To our delight, we found a few where we knew we could cater for G and where it seemed probable we would also be able to order safe food for M, and we couldn’t wait to put our selection to the test.
Our first was Giraffe, which is just round the corner from GOSH and a popular choice for our post-appointment dinners. When we got to the restaurant, I asked the waitress at the door whether they would be able to cook safe food for M before she had time to find us a table and the response was fantastic. She turned out to be the restaurant manager and headed off in the direction of the kitchen to talk to their chef and find out exactly what our options were. The chef assured us he could cook plain, boiled rice and grill a chicken breast for M without using any oil, so, feeling hopeful that this could prove a success, we found a table to enjoy our first family meal out for 5 months. M was delighted with the plate of food that arrived for him and had no allergic reaction to any of it, reassuring us that Giraffe is a safe choice for the future.
As it turns out, Giraffe was the only restaurant we ate at that was able to cook plain rice for M, but we enjoyed 2 other great meals out and both restaurants were more than happy for M to munch away on his own rice-cakes to accompany his chicken and cucumber. The second restaurant was Bella Italia, a popular restaurant chain found across the UK and we had dinner at their St Martins Lane branch. Again, our waiter worked with the chef to ascertain exactly what could be prepared for M and this amazing plate of food arrived – M joked that he thought they had cut him up a whole cucumber to make up for the lack of variety on his plate. We were also impressed with how much their gluten-free offerings had improved since the last time we ate there as G was able to enjoy some GF garlic pizza bread alongside her GF margherita pizza with pancetta and ham with goats cheese.
My final recommendation is Jamie’s Italian and I can’t begin to tell you how impressed we were with the excellent service provided at their Canary Wharf restaurant. From the greeter who listened to our initial needs to the manager who came to answer our questions before we even got to the table, they were keen to reassure us that they could meet all our requirements. As for our amazing waiter, Tom H, he listened carefully and patiently to what we needed, made sensible suggestions based on M’s safe foods, checked with the chef that everything could be prepared safely and treated M just like any other child eating in the restaurant. He was delighted with the plate of food that arrived at the table as it was presented in the exact same way as G’s dinner and his unparalleled attempt to eat almost all of the food served earned him the same prize that G was awarded for eating her salad – an achievement that we rarely manage at home.
All in all, our trip to London proved to be a fantastic and unexpected success when it came to our dinner plans for our stay. We found 3 restaurants who were prepared to go the extra mile, make the effort and help us enjoy some great meals out. Even better, M had the opportunity to feel more “normal” than he has done in a long time, which, for us, was absolutely priceless.
Today’s recipe is one that might not appeal to everyone, but it has certainly been a huge hit with M: Chicken Liver pâté. Both G and M love pâté and when they were little, I found a quick and easy recipe and regularly used to make my own. I’m not quite sure why it didn’t cross my mind to revisit this recipe in recent months, but thanks to a throwaway comment from our lovely dietitian about the possibility of cooking lamb’s liver and kidneys when M trials lamb, Chicken liver pâté suddenly sprang to mind. I spent a productive hour or so flitting between my computer and my recipe books, searching out traditional recipes as well as some that are dairy-free and quickly came to the conclusion that, with a clever few tweaks and variations of my own, this was definitely something I could cook up for M.
The base ingredients are easy to source: chicken livers, oil, rice flour, rice milk and herbs and seasonings; and I think that the recipe is easy to follow. In my latest batch, I also added the last remaining drops of the “Rice whip” rice cream I had managed to buy months ago, which gave the pâté a creamier texture, but isn’t necessary to make a spread that everyone can enjoy. The pâté has given M another fab alternative to the monotony of his daily meals and he’s currently loving his pâté “sandwiches” (rice cakes with pâté) for lunch, instead of the dry alternative.
Pâté perfected, it was now time to put my second plan into action and create a M-friendly version of Beef Wellington. Sadly at the moment for us there can be no pastry, mustard, mushrooms, crepe or indeed beef, but there is chicken, chicken liver pâté, cucumber and rice and that, I decided, was more than enough. I carefully cut into a chicken breast and created a pocket, which I filled with thin slices of cucumber and lashings of the pâté. I coated the filled breast with a rice crumb and then oven-baked. M tucked into it heartily last night and devoured the lot, which was just amazing to see. So that’s another dish to add to my repertoire, though perhaps the end result was more “Chicken Kiev“, than “Beef Wellington”, a “Chicken Wellington” you might say!
7 years to diagnosis 