Tag Archives: parenting

Eosinophilic Awareness Week 18th-24th May 2014

This week I’m delighted to welcome Kate from The Recipe Resource as my guest blogger. Her blog was set up to support those catering for multiple food allergies, particularly in children and Kate is a fellow EGID Mum, who I’ve been privileged to meet through the fantastic FABED.  I was going to write a post to tell you all about Eosinophilic Awareness Week, but found Kate had already done an amazing job on her own blog and she kindly agreed to let me share it with you all:

 

18th-24th May 2014 is Eosinophilic Awareness Week.  Read about EGID here

Gastro research is drastically UNDER FUNDED.  It is not “glamorous” and rarely on the radar for celebrities and focus groups, and rarely attracts public interest unlike cardiac care and cancer research.  Gastro conditions are badly neglected in the UK when it comes to research funding allocation, but without research treatment and outcomes are not likely to improve much.

Approximately 1% of the total amount of medical research funding available in the UK can be accessed for Gastro research.  There are currently no listed projects specifically for Eosinophilic Disorders on the National Research database.  GOSH are running a Gastro Research Project that will include related conditions/problems.  Alarmingly, children with allergic gut conditions are reaching epidemic proportions according to GOSH.

No one knows why the UK has the highest incidence for Allergy.  I went to Westmnister to attend the All Party Group for Allergy in October 2013 and heard how in the 19th Century, a study into Hay Fever took two decades as it was so rare and there were insufficient people to include in the study.  Today it is incredibly common.  The UK tops the league table in the incidence of allergy in its population, with Australia second – which is interesting as their population obviously share a similar root.  Allergic gut conditions are becoming common and hugely problematic for NHS paediatric services and Eosinophilic Disease is a specific subset of this group.

FABED is the main UK charity supporting families with members (adult and children) who suffer from eosinophilic disease.

FABED

FABED are UK partners supporting the United States Eosinophilic Awareness Week.  This is coordinated by APFED.  Two years ago they made this video to promote awareness.

Read more about Eosinophilic Diseases here.

During Eosinophilic Awareness Week, do something to raise awareness.  Tell someone about EGID and the appalling lack of funding for gastrointestinal disorders in the UK.

 

This blog was first posted on May 9th 2014 at The Recipe Resource here

A Quintessentially English MayDay Holiday

Picture, if you will, the scene:

Glorious sunshine in a brilliant blue sky with the merest wisps of cloud floating overhead; the gentle strains of traditional music playing in the background; and the company of good friends, all set against the idyllic backdrop of an English stately home nestling in the quiet beauty of the Cotswolds.  What better way to spend the May Day bank holiday than this?

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And, in all truth, the reality didn’t differ too much from this perfect setting.  So, we might have experienced some moments of bitter winds interchanged with the glorious sunshine and the sky might have more frequently been grey than blue.  It’s also true that the music may have been drowned out on occasion by the non-stop giggling and high-pitched squeals of my terrible two and their companions; but the day was fantastic.

20140505_114627We celebrated May Day in a traditional Victorian manner at the amazingly beautiful Sudeley Castle and it encompassed everything your quintessential English May Day should; after all, where else in the world could you combine Morris dancing, chimney sweeps, Punch & Judy, Penny Farthings, Maypole dancing and cups of tea in such a seamless way?  We spent the day visiting with G’s wonderful godmother, C and her fantastic family and enjoying everything Sudeley had to offer.

 

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Who knew that M would prove to be quite so adept at dancing round the Maypole, astounding and delighting the Morris dancers, who couldn’t quite believe he’d never done it before: and we couldn’t have picked a better place to visit for G, who was enthralled with the Tudor history as it’s her topic for the term.

We enjoyed a peaceful and amazing day discovering this hidden treasure and wouldn’t hesitate to make a return visit when we’re next in the area.

Our Girl done good!

I’m delighted to say that we found out today that G passed her Grade 1 Clarinet exam with flying colours.  Despite nerves and a few last minute panic-stricken tears, she performed well and though she would have liked to do better, I’m proud that she did so well on her first attempt.

Well done G!

Allergy UK Annual Conference

20140428_150922To say that mornings and I do not get along is something of an understatement, and early mornings are the worst.  I am, without a shadow of a doubt, a genuine, bona fide, card-carrying night owl and so anyone who saw me out and about at 6.30am last Saturday, was probably left checking their watches and convinced that something extraordinary was going on. The occasion was Allergy UK‘s first annual conference, being held at St Thomas’ Hospital in London.  I first heard about the event at the start of this year and had been excited about the prospect of finding out more about allergies from the experts attending and presenting at the conference.  The day had been designed to address the needs of individuals and families dealing with allergies on a daily basis and consisted of speeches and workshops as well as open Q&A sessions held during the afternoon.

Professor Peter Howarth of Southampton General Hospital was the keynote speaker for the day.  He opened the conference with a fascinating insight into the on-going and future research that is currently being carried out in the area of allergies and allergic responses. He talked about the recently well-discussed research into peanut allergies, which is looking at whether it is possible to “switch off” the allergic response through regular exposure to peanuts in known sufferers, and whether this approach could be applied to other allergies too.

I was also fascinated to learn from Professor Howarth about the link that appears to exist between Vitamin D and the allergic response.  Studies carried out suggest that Vitamin D can help to reduce the allergic response, particularly in individuals suffering from asthma or urticaria and it is evident that much more research into this area could be extremely beneficial, although there is no funding available for this at the moment.  This is definitely an area I will be keeping an eye on to see if it could be of benefit to M in the future.

Mike and I then attended 2 afternoon sessions, the first of which was a child allergy workshop and proved invaluable, not least because Dr Jo Walsh, who ran the session, explained clearly and concisely the difference between intolerances, IgE allergies and non-IgE allergies.  Her excellent explanation simplified what is a complex and much-misunderstood area and would be an amazingly useful tool when trying to explain M’s food allergies to anyone who comes into contact with him.  She also touched briefly on how to manage the risks to an allergic child out of the home and brought to our attention the NICE guidelines drawn up in 2011, that cover the diagnosis of food allergies and intolerances in children.

The second workshop was run by Dr Helen Brough and was aimed at looking at dealing with allergies with teenagers.  Although this workshop promised a lot, I felt that it didn’t really deliver on our expectations.  The time allowed was just too limited to even begin to touch on what is a complex situation and certainly didn’t really offer any practical tips on how to deal with your teenager and their approach to life with their allergies.  She focussed a lot on the Adolescent allergy clinics they are beginning to introduce, but the time was spent discussing what the parents and teens in the room would like from such clinics, rather than on what is actually provided.

All in all, we were impressed with the day and would be keen to attend another one should Allergy UK decide to hold it again.  There was lots of information available on the day, but I would recommend that the workshop sessions be extended in length as 45 minutes was just not long enough to spend in discussion on such an involving subject.  I will be keeping my ear to the ground to see if Allergy UK run another conference next year and will let you know the minute I hear anything about it.

 

Easter biscuits and Simnel Cake

Courtesy of annapolisfork.com

Courtesy of annapolisfork.com

I’m not entirely sure what madcap idea took hold last week,  but I decided to spend part of Good Friday baking Easter biscuits and Simnel Cake for M and G to enjoy.  My experience of these 2 culinary delights is limited; I have had the odd Easter biscuit to eat in the past 30-odd years, but have to confess that I’ve never even nibbled at a slice of Simnel Cake.  What possessed me to try my hand at a cake that I couldn’t pick out of a blind taste test, I have no idea, but I was inspired to produce adequate alternatives and let M and G try some traditional treats.

I expected Simnel cake to be my biggest challenge and decided to start researching a relatively easy recipe to adapt for M.  To my surprise and absolute delight, my Google search uncovered this wonderful recipe for gluten-, dairy- and egg-free SImnel cake that was published in The Guardian newspaper on April 12th.  I don’t think I have ever seen a recipe that is so allergy-friendly in the mainstream media and I couldn’t wait to start baking.

Not bad for a first attempt!

Not bad for a first attempt!

I was thrilled with the end result and decided to decorate it in a manner that dates back to the Victorian era.  Traditionally, 11 balls of marzipan are rolled and used, with the story that these represent the 12 apostles minus Judas, though you can also use 12 marzipan balls for Jesus, the 12 apostles minus Judas.  In trying to understand the meaning behind this decoration, I discovered that Simnel cake was traditionally baked on the middle Sunday of Lent, which is also Mothering Sunday in the UK, and allows a relaxing of the 40-day fast typically followed during Lent.

 

First item ticked off the list and it was time to move on to the Easter biscuits.  Having grown up in the West Country, I decided to use another traditional recipe and use Cassia Oil to flavour these delicate biscuits, instead of the usual mix of cinnamon and mixed spice.  Thanks to the amazing blog, Alimentary Bites, I was presented with not just one recipe, but 2 to choose from.  I picked one at random, made a few minor adjustments to accommodate M’s dietary needs and whipped up a batch for the children to try.  There’s nothing to match the delicious smell of home-baking filling the house and G and M quickly gathered around the oven to make their claim as the biscuits emerged from the oven.

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All in all, a winning baking session and 2 more recipes to add to my M-friendly repetoire. Both biscuits and cake were delicious, scored full marks from my discerning duo and disappeared quickly over the Easter weekend.  Children and adults alike complimented me on the flavour of these goodies and I’m thrilled to have successfully navigated another festival with some wonderful and safe treats.

The Great Easter Egg Hunt

Easter is always a tricky time for those suffering from food allergies, but there are some great options out there if you know where to look.  The selection for those who are dairy-free has improved and increased over the past 5 years and several of the leading supermarket chains now stock some of these alongside their “normal” counterparts.  My findings and recommendations for future Easters (as it’s probably a little late for this year now!) include:

Choices Dairy Free Easter Egg With White Chocolate ButtonsChoices Dairy-Free White Chocolate Easter Egg

 

 

 

KinnertonKinnerton Dairy Free Easter Egg     

 

  • Dairy, wheat, gluten and egg-free
  • Price: £4.99
  • Available from:  Sainsburys; Freefromforkids.co.uk; Tesco; Morrisons

 

 

 

 

SainsburysSainsburys Freefrom Easter Egg

  • Dairy, wheat, gluten and egg-free
  • Price: £2.99
  • Available from:  Sainsburys

 

 

chococoChococo Dark Chocolate Eggs

  • Dairy, wheat, gluten and egg-free
  • Price: £9.50+
  • Available from:  John Lewis; Chococo
  • Also available as Ginger, Honeycombe

NB – these are not guaranteed dairy-free as they are produced in a factory that also handles dairy chocolate, but a good alternative if you’re able to manage the risk

 

As always when it comes to M, our challenge for Easter is a little trickier.  Not only do we have to seek out a dairy- and soya-free option, but, due to his hypersensitivity, we also have to avoid any chocolate alternative that contains soya lecithin.  This isn’t an easy find, but I have discovered these few that are suitable, fun and delicious too:

 

moo freeMoo Free Organic Dairy Free Easter Egg

  • Dairy, wheat, gluten, soya and egg-free
  • Price: £3.49 – £7.09
  • Available from:  Sainsburys; Freefromforkids.co.uk; Alternativestores.com; Goodnessdirect.co.uk
  • Also available in Bunnycomb or sold in sets with a soft toy

 

 

maoamMaoam Pinballs Eggsplosions

  • Dairy, wheat, gluten, soya and egg-free
  • Price: £2.49
  • Available from: Freefromforkids.co.uk

 

 

hariboHaribo

  • Dairy, wheat, gluten, soya and egg-free
  • Price: £4.00
  • Available from: Waitrose

 

 

In years past, we have also opted not to buy Easter Eggs of any description, instead choosing small gifts such as books, crafts and even gardening equipment one year.  Whatever your choice, I hope you find your “perfect” egg and enjoy a marvellous Easter!

 

Oh la la, the ultimate baking challenge

Courtesy of theguardian.com

Courtesy of theguardian.com

Two weeks ago, G and M came home from school bursting with details of their up and coming MFL Day – a day to experience more about the Modern Foreign Languages they both learn at school.  Not content with themed craft activities, dance lessons and extra language practice on the day itself, school naturally decided a food treat would be an ideal extra for the day too.  G and the rest of Years 5 and 6 would be baking and then tasting their efforts in school, whereas M and the others in Years 3 and 4 were simply going to enjoy eating a shop-bought version. The teachers couldn’t decide on an easy, Spanish treat, so the whole school would try a French delicacy instead.

Just when I thought baking couldn’t get any harder, I was presented with the ultimate baking challenge – chocolate croissants!

It was relatively easy to accommodate G’s dietary needs for the day as she is only wheat- and dairy-free.  G could participate in the French cookery lesson, where the children were using supermarket croissant dough and milk chocolate to create their masterpieces, but rather than eating her own creation, G would give hers to her teacher and instead enjoy one of the marvellous Genius gluten-free Pains au chocolat that I had tracked down in our local Tesco. We hadn’t tried these before, but G assures me that they were absolutely delicious and she can’t wait to enjoy them again.

croissants

M, naturally, was a completely different story.  School had agreed that I could provide a M-friendly chocolate bar as an alternative to the chocolate croissants the rest of his class would be enjoying, but I wanted to see if I could bake an equivalent for him to eat.  Had I realised just how much work was involved in making these French delicacies, I might not have even entertained the thought, but having researched a recipe, I thought I’d give it a go.  M has been finding things tough recently and I didn’t want him to feel even more different from his classmates.  I was determined to attempt an edible and reasonably delicious safe version of chocolate croissants.

The original recipe I found was a vegan one and needed a little tweaking to allow for M’s current wheat- and gluten-exclusions.  I replaced the plain flour with rice flour and took the decision to not add xanthum gum this time round.  The croissant dough that resulted was difficult to work and I found it nearly impossible to perform the “laminating” process that is required when making this specialised pastry,   20140328_082805 (1) I will no doubt attempt these again and will play around with my recipe to include xanthum gum to see if I can achieve the perfect consistency needed for this dough.  I added the chocolate, baked the croissants and was pleasantly surprised at just how authentic my first attempt looked.

However, whilst the end result was not quite as I had imagined it, M was delighted that I had managed to produce a reasonable croissant and declared it an immediate hit.  At the end of the day, I got the result I was after, one happy boy!

 

Mothers’ Day Wishes

flowersmum

After a busy, but beautiful day spent with my Mum, Mike and my 2 wonderful children, this is just a short message to wish all Mums out there a very special Mothers’ Day.  Today has been a day to celebrate the joy of motherhood and perhaps even forget, for a few hours at least, the tough times that inevitably arrive too.  Whilst it’s not Mothers’ Day in Canada until May, we send heartfelt Mothers’ Day wishes to my mother-in-law, A, today.

mothersday

My Mum has been my rock over the last 10 years and has travelled every step of our journey with us.  She has been irreplaceable, offering support in whatever way we’ve needed it – making trips to London for hospital appointments when Mike hasn’t been able to; looking after G on the numerous hospital visits and stays we make each year; and giving Mike and me a much-needed break from time to time too.  She’s always there, holding my hand and offering emotional support when things get difficult and she’s certainly not afraid to offer some straight-talking advice whenever she feels it’s necessary.

Mum, I just want to say a big thank you and I love you very much.

And that’s a wrap

cookery

I don’t know about you, but I frequently find that mealtimes can get a bit repetitive, especially when we’ve had to cut yet another staple from M’s diet.  Much as I love to cook and bake, sometimes I really, really hate having to decide what to prepare for dinner.  Add into the mix the need for packed lunches on a daily basis, which are generally formed of the same key ingredients due to a restricted diet and I end up pulling my hair out in desperation.  M’s recent longing for a prawn mayonnaise sandwich meant that I had to seek inspiration and work out whether it was possible to create something even vaguely similar or not.

prawnsThe easy bit, believe it or not, was the prawn mayonnaise.  Using a squirt of some Really Not Dairy original mayonnaise, a dash of Heinz tomato ketchup and a generous serving of prawns, I was able to whip up a reasonable prawn cocktail. I diced a chunk of cucumber, grated some carrot and threw a handful of sweetcorn in to add a couple of portions of vegetables to the filling too.  This mayonnaise is egg-, dairy- and soya-free and tastes more like salad cream than traditional mayonnaise, but it does the job and has been a great find for M.

Next came the more challenging aspect, the bread.  G is able to enjoy Genius bread, which is the best gluten- and wheat-free bread we’ve tried, but unfortunately it contains both egg white and potato starch which are now excluded from M’s diet. 20140317_171113 M’s sandwiches are usually made from Sakata rice crackers as his bread is really only edible when toasted, but these are small and don’t lend themselves to being a critical part of a prawn mayonnaise sandwich!  Mike and I both enjoy eating wraps, either for lunch or filled and baked for a Mexican inspired dinner and at last year’s Allergy and Free From show we stumbled across the amazing Bfree gluten-free wraps.  These taste delicious and both children enjoyed them whilst we had some.  Unfortunately, they are incredibly difficult to source in the UK, though most larger Asda stores do stock them now and I headed to our nearest shop with my fingers tightly crossed to see if they were available.

Part of my regular shopping routine, even when buying foods that I’ve bought before, is to scan quickly through the ingredients list for anything that isn’t M-friendly.  Recipes do change, even on tried and tested products, so it’s worth those few extra minutes to avoid days or even weeks of pain because of a missed offending food.  To my dismay, I noted that the wraps contained potato starch, which is now a forbidden food for M and I thought my chances of buying a good alternative to satisfy M’s cravings were over.  I went home and even attempted to make some M-friendly wraps, but the rice flour didn’t lend itself to the recipe and the kids understandably turned their noses up at the finished product that was presented to them.

20140317_170320It was a couple of weeks later when I was in our local Waitrose, that I spied a new-to-me package on their free-from shelves, Newburn Bakehouse gluten-free wraps.  I picked it up to cast my eye over the ingredients, fully expecting to find either egg or potato flour or both lurking there, but to my delight, this new product contained nothing that wasn’t M-friendly and I quickly snapped up the remaining pack to take home and try.

I prepared M’s lunch using one of the Newburn Bakehouse wraps and a generous spoonful of my home-made prawn mayonnaise and called him to the table.  He was overwhelmed to see his much longed-for sandwich waiting for him and made short work of devouring it all.  He relished every bite and, what’s more, requested a second wrap, something that doesn’t happen all that often in our household.  The wraps looked and tasted good and, with 3 to a pack, there was enough left for his school lunchbox on Monday.  Both M and I award them with a much-deserved 10 out of 10 – a great product, delicious to eat and suitable for a MEWS-diet, what more could a Mum ask for?

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What a performance!

honkM’s love for the performing arts is something I can really relate to, having spent most of my formative years loving nothing more than singing, dancing and acting whenever possible. Both he and G regularly attend our local Stagecoach theatre school and have not only grown in confidence, but have also developed skills that will stand them in good stead in whatever career path they choose to follow.  G is not a natural performer, but her continued hard work, dedication and determination to be the best she can, has seen her win the lead role of “Ugly” in this term’s performance of the musical, “Honk”.  This isn’t a musical I’m familiar with and I’m looking forward to seeing the chosen extract in a few weeks’ time with my daughter in the starring role.  If her enthusiasm is anything to go by, it will be a fantastic experience.

G has also been spending time focusing on her clarinet and has two big events coming up over the next few months.  The first takes place at the end of March and that’s her Grade 1 clarinet exam.  She has been practising at home as well as at school and I delighted that she is confident enough to take the exam.  Secondly, she is once again performing in our local education authority’s music concert, which brings together instrumentalists from across the county to perform at a local music venue.  She loved doing it last year and is looking forward to playing in it soon.  G has had several pieces of music to learn for these occasions, but she’s determined to perform well at both and is working hard at perfecting the music as best she can.

Courtesy of swanwickhall.derbyshire.sch.uk

Courtesy of swanwickhall.derbyshire.sch.uk

M, on the other hand, was born to be on the stage and demonstrates a natural flair and understanding for direction in his classes.  He loves to take any and every opportunity to perform that comes his way.  It provides him with a focus away from his ill-health and he has had to develop a stamina to perform, no matter how his body is behaving.  After all, as we all know, “the show must go on“.  M is passionate about the stage and would love nothing more than a career on it; but he is also surprisingly realistic that not everyone can succeed and has talked extensively about what other opportunities the theatre could offer him in the future.

Over the last few months, two amazing opportunities have come M’s way and it’s been great to see him keen and able to make the most of both of them.  The first was offered by the Ellen Kent Opera Company, who were looking for child extras to be part of two operas they were performing at our local theatre and approached M’s Stagecoach school to find them. M was, unsurprisingly, desperate to be involved and was selected as 1 of 4 children who would perform a special dance during the performance of Aida.  He had 5 half-hour training sessions to learn the routine and the small group then had just one run through on stage with the orchestra on the evening of the performance itself.  We were nervous as to how M would cope with the extra rehearsals, his nerves and the stamina required, especially given how poorly he was in the run up to Christmas; but we needn’t have worried.

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Like the consummate professional he aspires to become, M worked hard, remained focused and gave a fantastic performance on the night.  The prospect of dancing on a “real” stage in front of a full house (approx. 2,000 people) didn’t phase him at all and we were all so proud to see him shine.  He stayed true to his character of a child slave in Ancient Egypt throughout his time on stage and Mike, my Mum and I all commented that we have never seen him remain so still and so focused for so long in his life.  It was our first experience of opera and we all enjoyed it, even G, who has asked to go and see another one in the future.

oliverIn contrast to this professional production, M has also been working on a local am-dram production of hit musical, “Oliver!”.  He is playing the part of “Nipper”, the cheeky youngest member of Fagin’s Gang, a part that, quite frankly, was made for him.  He takes part in every rehearsal with gusto, even though there have been occasions when he has been crying in pain less than 2 hours earlier.  I am amazed at how much M’s determination to succeed in this role has over-ridden any feelings of pain and discomfort that have been haunting him earlier in the day.  He has picked up the songs and dance routines quickly and now, as the final few weeks of rehearsals are ahead, he’s working on perfecting them as much as possible.

I am so proud of both our young performers and am looking forward to watching them doing something that they so obviously enjoy over the next few weeks.