FABED (Families Affected by Eosinophilic Disorders) is a charity close to our hearts. As I’ve mentioned on many occasions, FABED is a small charity supporting families like ours who are living with the challenges of a child, or children, diagnosed with eosinophilic disorders.
In the last 12 months since we’ve had M’s diagnosis, we’ve struggled to get to grips with the implications of EGID for M: how we can manage his health, coping with the impact of it on, not only M, but our family as a whole and how we communicate and explain this chronic illness to those surrounding us. In particular, we’ve found it hard to fully explain the effects of EGID on M to his teachers and school as they rarely see the negative side – the sleepless nights, the chronic pain, the diarrhoea and the frustrations – because M just gets on with life at school and keeps his melt-downs for home. Without the support of FABED and its wonderful families, I’m not sure how well we would have coped.
FABED is keen to produce an educational leaflet specifically for schools, separately aimed at both the Primary and Secondary education sectors. This will raise awareness of a rare, but increasingly prevalent condition, which can take years of struggle to diagnose. Helping schools to understand this disease will help alleviate just one of the many areas that families have to deal with.
This is where YOU can help. Galaxy Hot Chocolate are looking to help small, local community based projects and community minded people through their GALAXY Hot Chocolate Fund. Eighty £300 awards will be given to help small groups and we would love for FABED to receive this money and achieve their goal.
A vote from you will make a big difference to children like M and families like ours, so please take a moment and add your vote. Just click on the link below to cast your vote and remember to confirm from the e-mail sent to you: